Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,028 members•5,552 posts

All posts for September 2011

Indian Summer - how long will it last

Its nice to see the sun, for a change and not have to wear a coat. Anyone else have a nice sunny weather today? Though the downside is air conditioning in...

Its nice to see the sun, for a change and not have to wear a coat. Anyone else...

bookworm

•13 years ago

7 Replies

I have a lot of itching around my torso.

My skin doesn't become red or sore, its just annoying and embaressing. Does anyone know of any soaps/shower gels that will help?

My skin doesn't become red or sore, its just annoying and embaressing. Does anyo...

Jane18

•13 years ago

8 Replies

If Scleroderma isn't enough

Well my luck is going from bad to worse, was to sick to go to the conference last week and I decided to start this week off by doing a nose dive in the bath! I...

Well my luck is going from bad to worse, was to sick to go to the conference las...

uknlv

•13 years ago

5 Replies

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Hi, I've just found the link to this from the RSA website. I am 31 and was diagnosed with raynauds 2 years ago when my toes

ulcerated in the snowy weather, I then last year broke my foot (5th metatarsal) when I came down the stairs from carpet to floor boards and my foot went numb...

ulcerated in the snowy weather, I then last year broke my foot (5th metatarsal) ...

Boysy4

•13 years ago

2 Replies

How will I know if I have Scleroderma

I have looked at the list of symptoms and have four of the five listed .I was diagnosed with Raynaud's last year after my hands started to ulcerate.My hospital...

I have looked at the list of symptoms and have four of the five listed .I was di...

TJme

•13 years ago

4 Replies

Sigh, so annoyed I was to sick to go today and missed the conference. For those that went was it good?

uknlv

•13 years ago

2 Replies

Pins and Needles anyone?

I seem to have constant Pins and Needles- does anybody else have this and what can I do to stop it- it is so uncomfortable. Ax

I seem to have constant Pins and Needles- does anybody else have this and what c...

AMDP

•13 years ago

6 Replies

In flight oxygen

On my recent regular visit to the Brompton Hospital, as well as the usual lung function tests, I was given a fitness to fly test. Obviously I failed because I...

On my recent regular visit to the Brompton Hospital, as well as the usual lung f...

nannysue1950

•13 years ago

3 Replies

Fingers turning red and swollen

Over the past 6 months or so I've noticed that my fingers have become progressively more and more red, swollen and sensitive. Is this typical of Raynaunds? I...

Over the past 6 months or so I've noticed that my fingers have become progressiv...

faith89

•13 years ago

15 Replies

Raynaud's in only one finger?

Does anyone else have this? I first developed Raynaud's about a year ago, and it affected all my fingers. In recent weeks it has changed and is affecting only...

Does anyone else have this? I first developed Raynaud's about a year ago, and it...

lozzarox

•13 years ago

12 Replies

Calcinosis afecting nerves in finger

I have had a calcinosis growing on the side of my nuckle for 5-6 years. A previous calcinosis ended up bursting by itself and healing fine, but this one has...

I have had a calcinosis growing on the side of my nuckle for 5-6 years. A previ...

BeeBee

•13 years ago

4 Replies

Ok folks, any idea what the best electric toothbrush is for Raynaud's peeps?

David464

•13 years ago

6 Replies

ANA

What is ANA (in blood)

AMDP

•13 years ago

7 Replies

P A H

Does anyone know what a normal reading is?

Anteater

•13 years ago

7 Replies

I am going to be going to the Conference on Saturday in Chester, just wanted to see who else would be there? I can helpout if needed.

uknlv

•13 years ago

2 Replies

Recently had a blood test, bruised after badly has anyone else with Raynaud's had the same problem?

Had a blood test Wednesday, slowly the bruise has got worse over the days and spread becoming sore and painful.

Had a blood test Wednesday, slowly the bruise has got worse over the days and s...

bookworm

•13 years ago

3 Replies

Has anyone on this site ever had BOTOX in their hands or feet for Raynaud's/Ulcers?

Has anyone on this site ever had BOTOX in their hands or feet for Raynauds/Ulcers?? I have had BOTOX in my hands twice now for Raynaud's.

Has anyone on this site ever had BOTOX in their hands or feet for Raynauds/Ulcer...

Anteater

•13 years ago

6 Replies

I'm taking mycophenolate and have enlarged lymph nodes in my stomach, that need a biopsy anyone else had similar problem?

BevMyers

•13 years ago

1 Reply

Cold nose?

Does anyone have any tips for warming up a cold nose? We've had a query here at RSA Head Office and thought we'd put it to our HealthUnlocked community....

Does anyone have any tips for warming up a cold nose? We've had a query here...

RSA_Hannah

•13 years ago

5 Replies

Iloprost

On Monday I had my first Iloprost treatment and within a couple of hours my joints started ache really badly and my hands and feet became painfully stiff and...

On Monday I had my first Iloprost treatment and within a couple of hours my join...

AMDP

•13 years ago

7 Replies

Iloprost

On Monday I had my first Iloprost treatment and within a couple of hours my joints started ache really badly and my hands and feet became painfully stiff and...

On Monday I had my first Iloprost treatment and within a couple of hours my join...

AMDP

•13 years ago

10 Replies

Skin peeling hands. Is this a consequence of Raynaud's?

http://imageshack.us/photo/my-images/24/connectivetissuedisorde.jpg/ Please click on the link above to see a picture of my hands. I developed a severe flare...

http://imageshack.us/photo/my-images/24/connectivetissuedisorde.jpg/ Please c...

Naomi1

•13 years ago

12 Replies

Follow up appts.

I had my follow up appointment with Rheumatology last week and boy am I disapointed! I got a Registrar who really didn't seem to know anything about my...

I had my follow up appointment with Rheumatology last week and boy am I disapoin...

uknlv

•13 years ago

9 Replies

Aquagenic Pruritus - Itching after showering

JPhlps

•13 years ago

3 Replies

How did your systemic sclerosis start? What were the early symptoms?

I have rheumatoid arthritis/inflammatory arthritis and Raynaud's. I have only just been diagnosed. My consultant thinks I have another autoimmune disease too....

I have rheumatoid arthritis/inflammatory arthritis and Raynaud's. I have only ju...

Naomi1

•13 years ago

5 Replies

I am diagnosed with inflammatory arthritis and Raynaud's. My consultant thinks I have another autoimmune disease too. Can anyone help me?

I have had minor joint pains for years plus fatigue. In April of 2011 I went into some kind of massive flare up overnight and it lasted for weeks. I had frozen...

I have had minor joint pains for years plus fatigue. In April of 2011 I went int...

Naomi1

•13 years ago

8 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for September 2011

Indian Summer - how long will it last

I have a lot of itching around my torso.

If Scleroderma isn't enough

Hi, I've just found the link to this from the RSA website. I am 31 and was diagnosed with raynauds 2 years ago when my toes

How will I know if I have Scleroderma

Sigh, so annoyed I was to sick to go today and missed the conference. For those that went was it good?

Pins and Needles anyone?

In flight oxygen

Fingers turning red and swollen

Raynaud's in only one finger?

Calcinosis afecting nerves in finger

Ok folks, any idea what the best electric toothbrush is for Raynaud's peeps?

ANA

P A H

I am going to be going to the Conference on Saturday in Chester, just wanted to see who else would be there? I can helpout if needed.

Recently had a blood test, bruised after badly has anyone else with Raynaud's had the same problem?

Has anyone on this site ever had BOTOX in their hands or feet for Raynaud's/Ulcers?

I'm taking mycophenolate and have enlarged lymph nodes in my stomach, that need a biopsy anyone else had similar problem?

Cold nose?

Iloprost

Iloprost

Skin peeling hands. Is this a consequence of Raynaud's?

Follow up appts.

Aquagenic Pruritus - Itching after showering

How did your systemic sclerosis start? What were the early symptoms?

I am diagnosed with inflammatory arthritis and Raynaud's. My consultant thinks I have another autoimmune disease too. Can anyone help me?

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