Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,410 posts

All posts for February 2024

Anyone applied for/ been awarded PIP?

Hi all. I’m wondering whether anyone on here has been successful in applying for PIP due to the problems caused by Systemic sclerosis and if so what points/...

Hi all. I’m wondering whether anyone on here has been successful in applying for...

•2 months ago

Surgery

So on Tuesday the 27th I will be going to the doctor about my fingers. They are performing what is called an angiogram extremity’s bilateral procedure, they...

So on Tuesday the 27th I will be going to the doctor about my fingers. They are ...

•2 months ago

Cold hands

I have conventional Raynaud's disease but I have notic ed when I play table tennis or do other things with my hands they remain cold even though the rest of my...

I have conventional Raynaud's disease but I have notic ed when I play table tenn...

•2 months ago

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Treatment for Raynaud’s

Good evening, is anyone under any successful medication to prevent hands vasospasm? Thank you

Good evening, is anyone under any successful medication to prevent hands vasospa...

•2 months ago

Liver

Hello, just wondering, does anyone with Raynaud's and Limited Scleroderma have elevated Gamma GT readings in blood tests? Mine are always high. Doctors always...

Hello, just wondering, does anyone with Raynaud's and Limited Scleroderma have e...

•2 months ago

wax treatments

having had an appointment with the specialist nurse yesterday I have been referred to occupational therapy for some help with my clawed hands. Really hoping I...

having had an appointment with the specialist nurse yesterday I have been referr...

•2 months ago

Steroids for digital ulcer

I have Reynauds, Scleroderma, and Sjogrens. I have been referred to a rheumatologist but only seen GP so far. I have been prescribed steroids (4 x 5mg per day...

I have Reynauds, Scleroderma, and Sjogrens. I have been referred to a rheumatol...

•2 months ago

SBQ1971

Hi folks, has anyone had a reaction from swimming in hot mineral baths. A number of years ago I went with family to Bath Spa taking advantage of the pools...

Hi folks, has anyone had a reaction from swimming in hot mineral baths. A num...

•2 months ago

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Generic Cellcept.

After years of receiving my prescription of Roche MMF from my Doctor’s surgery, recently I have been switched to the hospital pharmacy & have been taking a...

After years of receiving my prescription of Roche MMF from my Doctor’s surgery, ...

•3 months ago

any suggestions

I suffer from Raynaud’s disease and my finger starting doing this I find it hard to sleep at night it feels like stinging sensation when I lay down and try to...

I suffer from Raynaud’s disease and my finger starting doing this I find it hard...

•3 months ago

Has anyone had CO2 Laser treatment (carbon dioxide laser treatment) for calcinosis in their fingers/thumbs?

I'd be interested to know whether anyone has had experience of CO2 laser treatment to remove calcinosis in their fingers/thumbs/arms/legs.

I'd be interested to know whether anyone has had experience of CO2 laser treatme...

•3 months ago

nail problems

Does anyone have problems with the nails on their hands? The sides of three of my nails are rough and breaking away from finger. I do have Raynauds and...

Does anyone have problems with the nails on their hands? The sides of three of ...

•3 months ago

Royal Free visit

Hi all, I just thought I would give a quick update. I attended the Royal Free Hospital last Thursday ,I was seen in the Scleroderma clinic by a member of...

Hi all, I just thought I would give a quick update. I attended the Royal Free...

•3 months ago

Chilblains. Any Recommendations?

I’m not sure if my right hand has erupted with multiple chilblains or it’s something else. Does anyone have any recommendations for an interim home remedy for...

I’m not sure if my right hand has erupted with multiple chilblains or it’s somet...

•3 months ago