Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,409 posts

All posts for June 2020

Reflux problems at night

Hi, I suffer from severe reflux at night. What have others found helpful. Head of bed is on 4 blocks. Am needing three pillows as well but if my back is not...

Hi, I suffer from severe reflux at night. What have others found helpful. Head o...

•4 years ago

Severe pain stomach

Slow motility, severe lower stomach cramps wit blood and alot of mucus in stool

Slow motility, severe lower stomach cramps wit blood and alot of mucus in stool...

•4 years ago

Job interview

I have a job interview tomorrow 😀 For my current job I didn’t mention my raynauds and then got into trouble because I didn’t declare I had a disability -...

I have a job interview tomorrow 😀 For my current job I didn’t mention my rayna...

•4 years ago

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B12 deficiency and raynauds

Hi - I wonder if anyone in this group can advise? I am stuck somewhere between b12 deficiency nerve damage and raynauds? Does anything in thread below make any...

Hi - I wonder if anyone in this group can advise? I am stuck somewhere between b...

•4 years ago

Pain relief?

Hi 👋 What pain relief do you use for joint pain? I’m on Plaquenil but it’s not helping yet. Nurofen is good (hard on stomach)

Hi 👋 What pain relief do you use for joint pain? I’m on Plaquenil but it’s not...

•4 years ago

Hair loss

Hi guys, I have diffuse cutaneous scleroderma- I've noticed a lot of hair loss on my scalp - is that due to scleroderma? Is there anything I can do to prevent...

Hi guys, I have diffuse cutaneous scleroderma- I've noticed a lot of hair loss o...

•4 years ago

Zoledronic Acid

I have to make a decision re having a yearly infusion of the above medication for osteoporosis. I have for many years taken ilandronic and alendronic orally...

I have to make a decision re having a yearly infusion of the above medication fo...

•4 years ago

Booze

Has anybody found that sparkling wine makes your joints ache more than usual?

Has anybody found that sparkling wine makes your joints ache more than usual?

•4 years ago

UCTD

Morning everyone. I have only just found this forum. An ad popped up on my Instagram. Why I have missed it I have no clue. Anyway, I have been suffering...

Morning everyone. I have only just found this forum. An ad popped up on my Insta...

•4 years ago

Fingernails changing

Weird huh Crest

Weird huh Crest

•4 years ago

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Vitamin D3 and K2 supplement

I have been told and done some research into how the above supplements can help with Raynaulds and Scleroderma . Has anyone tried this?

I have been told and done some research into how the above supplements can help ...

•4 years ago

Thickening patches of skin

Can anyone tell me if they have 'patches' of thickening skin. I have Sys. sclerosis which has mainly damaged my lungs but am having some small patches of...

Can anyone tell me if they have 'patches' of thickening skin. I have Sys. sclero...

•4 years ago

Pain

Hi Everyone the pain in my back and neck have gotten much worse the past few days, even my forehead and cheek bones hurt. I wonder if the nitro bid ointment I...

Hi Everyone the pain in my back and neck have gotten much worse the past few day...

•4 years ago

Newbie 😊🇮🇪

Hello all I was diagnosed this week with Limited Scleroderma- lucky me! My symptoms are raynauds, tiredness, sore throat and a little dry skin mainly on feet....

Hello all I was diagnosed this week with Limited Scleroderma- lucky me! My sympt...

•4 years ago

Conference Call every Sunday @ 11am

Hi folks, a gentle reminder that we will be having our usual conference call at 11am GMT. We are using the Zoom and this will allow you to stay just on audio...

Hi folks, a gentle reminder that we will be having our usual conference call at ...

•4 years ago

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Newly diagnosed

HI there! I was recently diagnosed with sclerderma. I had some blood tests done twice to double check and I have high autoantibodies for scl-70, systemic...

HI there! I was recently diagnosed with sclerderma. I had some blood tests done ...

•4 years ago