Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,409 posts

All posts for August 2019

Empower yourself

Annual tests: www.sruk.co.uk

Annual tests: www.sruk.co.uk

•5 years ago

Information on Annual Tests For SCLERODERMA

Hi All, Ask for annual tests:

Hi All, Ask for annual tests:

•5 years ago

Empower yourself

Hello, I find this site helps in being able to express myself with concerns that I have with people that have an understanding of the daily battle that we all...

Hello, I find this site helps in being able to express myself with concerns that...

•5 years ago

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Fustrated

Just need some guidance , i am getting fustrated with my rheumatologist .. i wait 5 mths to go see him i had a list of things i wanted to talk about everything...

Just need some guidance , i am getting fustrated with my rheumatologist .. i wai...

•5 years ago

Pioneer

I had stem cell treatment May 2018 as my condition was not being controlled by Microphenolate & was progressing very aggressively. My skin score was up to 48...

I had stem cell treatment May 2018 as my condition was not being controlled by M...

positivedaybyday

•5 years ago

Summer temperature reactions

My 14 year old daughter was diagnosed with Primary Raynaud's in 2017. Her reactions to cold weather are becoming more controllable but we are experiencing...

My 14 year old daughter was diagnosed with Primary Raynaud's in 2017. Her react...

•5 years ago

Anyone get bladder issues?

Is bladder issues common with scleroderma? I’ve been told i have a connective tissue disease (although they since have said its likely CREST). I had the the...

Is bladder issues common with scleroderma? I’ve been told i have a connective ti...

•5 years ago

HAS ANYONE ELSE EVER HAD A C.T. SCAN OF THEIR OWN TO LOOK AT

What amazing things they are, I been trying to work out how to use them

What amazing things they are, I been trying to work out how to use them

•5 years ago

Be the first to reply

Is Raynaurds An Auto Immune Or An Auto Survival Spasm

As i dont think it attacks the body tissues itself Like Arthritis, It is a spasm designed to safeguard the body core temperature and it seems that allot of the...

As i dont think it attacks the body tissues itself Like Arthritis, It is a spasm...

•5 years ago

Advice

Just had hand and wrist ultrasound and found no joint issues despite being very swollen in fingers (and completely numb) and wrists but did find significant...

Just had hand and wrist ultrasound and found no joint issues despite being very ...

•5 years ago

Raynaurds Back Body and organs possibly for me ? I am a new soul hear not a young one. I support broken back broken ribs enthusiasm rules

I have recently been diagnosed with Raynaurds Phenomenon to my complete surprise. As I went to Doctor about very painful thumbs. Doctor saw something i had...

I have recently been diagnosed with Raynaurds Phenomenon to my complete surprise...

•5 years ago

PIP AWARD FOR SCLERODERMA

I am in shock! Enhanced care and mobility!!! Was on middle rate care and high mobility on DLA, condition has changed with addition of Angina and degenerative...

I am in shock! Enhanced care and mobility!!! Was on middle rate care and high mo...

•5 years ago

Idiopathic pulmonary fibrosis

I have had a pretty rubbishy few months now with worsening symptoms to my body through Systemic Sclerosis ...and severe osteoarthritis in my joints. Every time...

I have had a pretty rubbishy few months now with worsening symptoms to my body t...

•5 years ago

Methotrexate

Hi has any one been on Methotrexate the metoject pen please my Rheumatologist is putting me on it to see if helps but after reading all the awful things it can...

Hi has any one been on Methotrexate the metoject pen please my Rheumatologist is...

•5 years ago

Scleroderma help

Utis with scleroderma

Utis with scleroderma

•5 years ago

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Does any diet help you?

I wrote on here before and someone mentioned diet had helped. I have recently been trying to look into this more and wanted to see if any diet had helped...

I wrote on here before and someone mentioned diet had helped. I have recently be...

•5 years ago