Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,835 members • 5,407 posts

All posts for December 2012

Does anyone get inner chiliness with their raynauds?

I am always cold.

danacetz

•11 years ago

30 Replies

Talking to family members about our scleroderma

I'm waiting for some test results, which I'm worried about, and a family member told me, angrily, that I don't have enough evidence to be worried about it,...

I'm waiting for some test results, which I'm worried about, and a family member ...

JemimaDoll

•11 years ago

12 Replies

I have only just joined up and have loadsa questions....

Hello guys iv just been told i have mixed connecting tissue disorder with signs of limited scleroderma.Ive been having problems with my voice they say its due...

Hello guys iv just been told i have mixed connecting tissue disorder with signs ...

fruitpastle

•11 years ago

5 Replies

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ACE inhibitors

Hi - the Amlodipine aren't agreeing with me; been suggested that I try ACE inhibitors. Anyone give me any feedback if they are on them please? Thanks. Merry...

Hi - the Amlodipine aren't agreeing with me; been suggested that I try ACE inhib...

Carol-C

•11 years ago

5 Replies

Blood and protein in urine

Hi - just found out that the urine sample that the Rheumatologist recently asked for contained blood and protein and has been sent away for analysis. Bit...

Hi - just found out that the urine sample that the Rheumatologist recently asked...

Carol-C

•11 years ago

3 Replies

Some advice for a Newby please?

Hello everyone & happy Christmas. I have recently come to this site from Lupus UK. I thought I'd check it out as I've had Raynaud's all my life, Lupus &...

Hello everyone & happy Christmas. I have recently come to this site from Lupus U...

roobarb

•11 years ago

11 Replies

working outside

have just been diagnoised,i work outsidetoo.And the recent cold spell made it impossible to work.By the time i had driven there,my toes were allready numb &...

have just been diagnoised,i work outsidetoo.And the recent cold spell made it im...

Montiedon

•11 years ago

10 Replies

itchy!!!! any ideas??

me again!!! just this last week the tops of my hands are very itchy and i get tiny hard spots, not visable but i can feel them...also the tops of my feet, top...

me again!!! just this last week the tops of my hands are very itchy and i get ti...

Kerry72

•11 years ago

8 Replies

Has anyone tried continuous illoprost for 5 days?

I was at the connective tissue disease clinic on Thursday in Bristol. I have mixed connective tissue disease and my raynauds is really bad. I was under a...

I was at the connective tissue disease clinic on Thursday in Bristol. I have mi...

scotgirl

•11 years ago

4 Replies

Teeth!!!

Hi guys Ive just came back from my denist.. to find that lot of my teeth are very weak!! And could lose my k9 and the one next it... :( I'm not a very happy...

Hi guys Ive just came back from my denist.. to find that lot of my teeth are ve...

fairygoddess83

•11 years ago

6 Replies

Sertraline!!!

Hi there I have given yet another different med called sertraline and was wondering if anyone else has taken them? If so how did you get on? X x

Hi there I have given yet another different med called sertraline and was wonder...

fairygoddess83

•11 years ago

7 Replies

Amitriptyline - has anyone tried this for pain relief?

My main problem is painful, sore fingers. I can pretty much tolerate and cope with the pain during the day but at night it can become unbearable and make...

My main problem is painful, sore fingers. I can pretty much tolerate and cope wi...

nannysue1950

•11 years ago

16 Replies

Pain behind both knees!!

Hi everyone for the last 2 weeks I've been having pain behind both my knees!! They feel swollen inside, it's a constant ache and then occasionally it's quite a...

Hi everyone for the last 2 weeks I've been having pain behind both my knees!! Th...

Kerry72

•11 years ago

7 Replies

hi my son is 15 and been diagosed with severe raynards can l claim dla for this as his has lots of problems with his hands and feet

wendy68

•11 years ago

5 Replies

Pain management

How do you cope with the pain, I'm taking Tramodol, ibuprofen and paracetamol for fun and I still can't sleep for long periods as the pain wakes me up all the...

How do you cope with the pain, I'm taking Tramodol, ibuprofen and paracetamol fo...

acezero121

•11 years ago

2 Replies

Feet

Does anyone else have severe Raynaud's? I've on occasion lost all my toenails and all the skin on my feet. Has now grown back but just wondered?

Does anyone else have severe Raynaud's? I've on occasion lost all my toenails a...

Hidden

•11 years ago

12 Replies

raynards

hi all had major hand surgery for this , as i'v tried everything else going !!! still not sure but its the last thing to try, but i was glad i woke up with all...

hi all had major hand surgery for this , as i'v tried everything else going !!! ...

pepper15

•11 years ago

5 Replies

Has anyone been prescribed Thymoxamine for Peripheral Circulation?

Hello, I saw a Reumatologist a couple of weeks ago and he has asked my GP to prescribe Thymoxamine for my Peripheral Circulation to help Raynauds mainly in my...

Hello, I saw a Reumatologist a couple of weeks ago and he has asked my GP to pre...

Jessie122

•11 years ago

Be the first to reply

What is shelf life of Iloprost ?

Goreon

•11 years ago

3 Replies

Has anyone tried sheepskin gloves for Raynaud's

Chriswell

•11 years ago

13 Replies

My scalp itches like crazy and even more when perspiring

walter4

•11 years ago

5 Replies

Does anyone have any tips for staying with people, when their house is cold, and maybe they don't put on the heating very much ?

I feel like I'm being impolite to be cold, as if I am commenting on the way my hosts are heating their house! But of course, none of us can help it, when we...

I feel like I'm being impolite to be cold, as if I am commenting on the way my h...

JemimaDoll

•11 years ago

35 Replies

Mild Raynauds for 7 years is getting worse-any ideas to what might help??

Hi, I have had Raynauds for the past 7 years and it seems to be getting worse. I had a blood test taken the other day, and I am still awaiting the results, as...

Hi, I have had Raynauds for the past 7 years and it seems to be getting worse. I...

AmeliaCross

•11 years ago

3 Replies

Mild Raynauds for 7 years is getting worse-any ideas to what might help??

Hi, I have had Raynauds for the past 7 years and it seems to be getting worse. I had a blood test taken the other day, and I am still awaiting the results, as...

Hi, I have had Raynauds for the past 7 years and it seems to be getting worse. I...

AmeliaCross

•11 years ago

Be the first to reply

Amlodipine

Hi - I saw the Rheumatologist today and he has put me on Amlodipine 5mg tablets as I got constant headaches with the Adalat LA and the Nifedipine. Anyone else...

Hi - I saw the Rheumatologist today and he has put me on Amlodipine 5mg tablets ...

Carol-C

•11 years ago

4 Replies

I've been digonised with raynauds earlier this year after 3 years off pain im on all the meds the doc give but I can't warm up any answers

k_kell04

•11 years ago

7 Replies

Bruises.

Does anyone get random bruises that appear in odd places all over your body? I do.. I don't bang myself, they can be big or small, and I had a bruise that kept...

Does anyone get random bruises that appear in odd places all over your body? I d...

sunshine11

•11 years ago

11 Replies

The answer to keeping warm at home

Hi Everyone, About three weeks ago I sent for an electric throw from Amazon. Well if any of you want the best Christmas present ever ask for this. It's just...

Hi Everyone, About three weeks ago I sent for an electric throw from Amazon. We...

chrissieH

•11 years ago

4 Replies

Illoprost - how soon will it start working ?

I've just undergone my first course of illoprost, how long do others find before it kicks in ? I found it quite intense & the max I got up to over the week was...

I've just undergone my first course of illoprost, how long do others find before...

rosie_girl

•11 years ago

4 Replies

Raynauds after being prescribed a Parkinson's medication?

hi everyone! i had my first Raynaud's experience while defrosting my freezer. talk about painful hands! i had no idea what was up until i saw the blanched...

hi everyone! i had my first Raynaud's experience while defrosting my freezer....

Kathlene

•11 years ago

3 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for December 2012

Does anyone get inner chiliness with their raynauds?

Talking to family members about our scleroderma

I have only just joined up and have loadsa questions....

ACE inhibitors

Blood and protein in urine

Some advice for a Newby please?

working outside

itchy!!!! any ideas??

Has anyone tried continuous illoprost for 5 days?

Teeth!!!

Sertraline!!!

Amitriptyline - has anyone tried this for pain relief?

Pain behind both knees!!

hi my son is 15 and been diagosed with severe raynards can l claim dla for this as his has lots of problems with his hands and feet

Pain management

Feet

raynards

Has anyone been prescribed Thymoxamine for Peripheral Circulation?

What is shelf life of Iloprost ?

Has anyone tried sheepskin gloves for Raynaud's

My scalp itches like crazy and even more when perspiring

Does anyone have any tips for staying with people, when their house is cold, and maybe they don't put on the heating very much ?

Mild Raynauds for 7 years is getting worse-any ideas to what might help??

Mild Raynauds for 7 years is getting worse-any ideas to what might help??

Amlodipine

I've been digonised with raynauds earlier this year after 3 years off pain im on all the meds the doc give but I can't warm up any answers

Bruises.

The answer to keeping warm at home

Illoprost - how soon will it start working ?

Raynauds after being prescribed a Parkinson's medication?

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