Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,113 members•5,638 posts

All posts for September 2017

faecal incontinence

i have limited scleraderma ,sjogrens ,hypothyroidism and raynauds. I am having feacol incontinence been to hospital keep sending me to bio feed back clinic....

i have limited scleraderma ,sjogrens ,hypothyroidism and raynauds. I am having f...

janome4800

•7 years ago

39 Replies

Feels like a lump

Hi everyone. I have raynauds it's mainly in my toes, been diagnosed with it for about 3 months, my issue I'm having is there feels like a lump in my foot when...

Hi everyone. I have raynauds it's mainly in my toes, been diagnosed with it for ...

littleme1981

•7 years ago

2 Replies

Psychological effects of scleroderma

Hi all, I am new to this site. My mum has been diagnosed with diffuse systemic sclerosis. Her symptoms started with Raynauds in December 2016, it has now...

Hi all, I am new to this site. My mum has been diagnosed with diffuse systemic ...

ERosti

•7 years ago

12 Replies

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Anything to help weight gain??

Hi all So my husband eats very well a lot of food but doesn't gain weight with scleroderma his weight has always been the same but now seems to be decreasing...

Hi all So my husband eats very well a lot of food but doesn't gain weight with...

Kc_1411

•7 years ago

29 Replies

Flexiseq

Hi all, Has any one tried flexiseq for joint pain or stiffness? Thanks, Naila

naila_007

•7 years ago

2 Replies

BBC website today Scleroderma explained.

Do read this article and well done to the courageous young woman featured. My advice is to forward the article to friends and family. It's a starting point for...

Do read this article and well done to the courageous young woman featured. My ad...

bluesgirl

•7 years ago

1 Reply

Eye sight

Hi does this disease affect your eyes as I am not due a eye test till next august my eye sight is all fuzzy

Hi does this disease affect your eyes as I am not due a eye test till next augus...

Sandie12

•7 years ago

12 Replies

Methotrexate

I start 15mg of methotrexate sometime this weekend, though I am putting it off, I've heard some horror stories, really not looking forward to maybe feeling...

I start 15mg of methotrexate sometime this weekend, though I am putting it off, ...

Hidden

•7 years ago

9 Replies

Awaiting an Iron Infusion

Hi all! I have been diagnosed with Systemic Scleroderma and Raynaud's three months ago and am very anaemic. I have just received a letter from my consultant...

Hi all! I have been diagnosed with Systemic Scleroderma and Raynaud's three mont...

Misty2552017

•7 years ago

6 Replies

LIVING WITH CREST

What medications are good.

Belinda1960

•7 years ago

1 Reply

New to the group

Hi I was diagnosed with diffuse systemic sclerosis earlier this month. I was informed by a 5 minute conversation over the phone, a leaflet in the post and an...

Hi I was diagnosed with diffuse systemic sclerosis earlier this month. I was inf...

Rebecca99

•7 years ago

16 Replies

Cold Agglutinin Syndrome

Hi, this is my 1st post. I've had Cold Agglutinin Syndrome for nearly 20 years. I've never met anyone else with it. I've belonged to SRUK and previously RSA...

Hi, this is my 1st post. I've had Cold Agglutinin Syndrome for nearly 20 years. ...

judymic

•7 years ago

2 Replies

Living with Crest!

I was giving Pentoxifylline 400 mg for my Digital Ulcers, has anyone tried that before?

I was giving Pentoxifylline 400 mg for my Digital Ulcers, has anyone tried that...

Belinda1960

•7 years ago

3 Replies

mycophenolate

Hey all, Any one on mycophenolate? Just wondering how everyone getting on with mycophenolate - i have been on it for 4 months now and have seen lots of skin...

Hey all, Any one on mycophenolate? Just wondering how everyone getting on with m...

naila_007

•7 years ago

11 Replies

Which products do you use in bath and creams for skin help with dryness itching tightness general well being of skin???

All answers would be much appreciated thanks again guys x

Kc_1411

•7 years ago

15 Replies

Time to start the treatment

So I've had all the blood tests to check for infections etc, all clear, so now time to start the methotrexate and folic acid, not looking forward to it but if...

So I've had all the blood tests to check for infections etc, all clear, so now t...

Hidden

•7 years ago

2 Replies

Sidinefil

I've seen a lot of posts that you are taking this as you meds. What side effects do you have? With this Med?

I've seen a lot of posts that you are taking this as you meds. What side effects...

Kc_1411

•7 years ago

8 Replies

Sore face

Hi everyone can anyone help me as I have a very sore face it's just sore down the one side so sore

Hi everyone can anyone help me as I have a very sore face it's just sore down th...

Sandie12

•7 years ago

10 Replies

Finger tip ulcer help!

I have had a painful ulcer on my index finger which ran under the nail too. It took 6 months to heal, and has just had granulated/crust skin over the site....

I have had a painful ulcer on my index finger which ran under the nail too. It t...

Dunhorse123

•7 years ago

14 Replies

Minocycline

Hey guys So I have been reading this book "scleroderma the proven therapy that can save your life" by Henry scammell Well he goes on to say this lady has...

Hey guys So I have been reading this book "scleroderma the proven therapy that...

Kc_1411

•7 years ago

5 Replies

Anything to help exhaustion??

Hi all is there any help with exhaustion my husband tends to sleep for over 12 hours sometimes and just says I'm too tired I'll get up when I'm ready. Anyone...

Hi all is there any help with exhaustion my husband tends to sleep for over 12 h...

Kc_1411

•7 years ago

11 Replies

Life insurance with scleroderma

Hello everyone. Any advise or ideas would be greatly appreciated. I am 42 years old and we have recently remortgage our house. However, now I am struggling to...

Hello everyone. Any advise or ideas would be greatly appreciated. I am 42 years ...

Aubmtz

•7 years ago

5 Replies

living with scleroderma and raynaud

i got scleroderma and raynaud's .i have had 2 amputation in the last 9 months.trying to find mittens to keep my hand warm

i got scleroderma and raynaud's .i have had 2 amputation in the last 9 months.tr...

lindacamp

•7 years ago

7 Replies

Gloves

Morning all on this freezing cold day... I was just wondering what brand gloves do you use in this weather also I heard of these heated gels you keep in your...

Morning all on this freezing cold day... I was just wondering what brand glove...

Kc_1411

•7 years ago

13 Replies

Tender scalp

For some time now, the top of my head gets very sore and tender, I don't know what causes it, I have raynauds and other things going on but it really hurts...

For some time now, the top of my head gets very sore and tender, I don't know wh...

marie5454

•7 years ago

8 Replies

Flu jab

Has anyone else been told that a flu jab could provoke a flare up of scleroderma?

Has anyone else been told that a flu jab could provoke a flare up of scleroderm...

gussy3

•7 years ago

5 Replies

Legs

Morning all, just wondered if anyone else feels like their legs are a ton weight, not too much pain but really heavy making it hard to walk round and tiring x

Morning all, just wondered if anyone else feels like their legs are a ton weight...

Maryjcl

•7 years ago

17 Replies

itching around collar bone and neck

Hi Everyone, does anyone else have itching around their neck and collarbone - i have been applying steriod cream - helps a little. On another note my wrists -...

Hi Everyone, does anyone else have itching around their neck and collarbone - i ...

naila_007

•7 years ago

7 Replies

The validity of discontinuing long term Warfarin (coumadin) therapy

I've been taking Warfarin for a stroke that occurred 19 years ago. Earlier, I had Myocarditis and congestive heart failure, both of which were treated and...

I've been taking Warfarin for a stroke that occurred 19 years ago. Earlier, I h...

Patatie50

•7 years ago

8 Replies

Advice please😄

Hi There This is my first time writing on this interesting forum. I have been diagnosed with Undifferented connective tissue disease, the Rheumatoligst I see...

Hi There This is my first time writing on this interesting forum. I have been di...

trace67

•7 years ago

3 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for September 2017

faecal incontinence

Feels like a lump

Psychological effects of scleroderma

Anything to help weight gain??

Flexiseq

BBC website today Scleroderma explained.

Eye sight

Methotrexate

Awaiting an Iron Infusion

LIVING WITH CREST

New to the group

Cold Agglutinin Syndrome

Living with Crest!

mycophenolate

Which products do you use in bath and creams for skin help with dryness itching tightness general well being of skin???

Time to start the treatment

Sidinefil

Sore face

Finger tip ulcer help!

Minocycline

Anything to help exhaustion??

Life insurance with scleroderma

living with scleroderma and raynaud

Gloves

Tender scalp

Flu jab

Legs

itching around collar bone and neck

The validity of discontinuing long term Warfarin (coumadin) therapy

Advice please😄

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