Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,191 members•5,671 posts

All posts for February 2025

Doctor for Scleroderma in India

I am from India and I am looking for a doctor in India who is already treating Scleroderma patients. If you know anyone from India who has Scleroderma and had...

I am from India and I am looking for a doctor in India who is already treating S...

•3 days ago

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lichen sclerosis

Has anyone been diagnosed with lichen sclerosis who also has a connective tissue disorder?

Has anyone been diagnosed with lichen sclerosis who also has a connective tissue...

•3 days ago

Raynaud’s

Hello, I’m 31 years old and my whole life I’ve had poor circulation purple blotchy legs cold hands and feet the older I’ve become the more obvious it is and...

Hello, I’m 31 years old and my whole life I’ve had poor circulation purple blotc...

•5 days ago

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Bad chilblains?

Having a bad attack of chilblains on my toes, usually get them on my fingers but none so far this winter. Saw GP today and they thought one toe looked...

Having a bad attack of chilblains on my toes, usually get them on my fingers but...

•6 days ago

Mornings

Just a quick one, I take an absolute age in the mornings to be able to get going. Like 2 to 3 hours before my body realises it's woken up anybody else get...

Just a quick one, I take an absolute age in the mornings to be able to get going...

•7 days ago

Royal Free appointment

I was due to be seen at Royal Free in May for my annual appointment. I was informed today it has been cancelled and rescheduled 6 months later in November....

I was due to be seen at Royal Free in May for my annual appointment. I was info...

•7 days ago

Newbie to the page

Hi Everyone, I was diagnosed with Reynauds in 2020, at the same time they did blood tests and it showed positive for Scleroderma. I’ve been under a...

Hi Everyone, I was diagnosed with Reynauds in 2020, at the same time they did bl...

•8 days ago

SRUK representative on the BBC morning news programme.

Did anyone see on the BBC morning News programme ? a lady from SRUK talking about Raynauds and slight mention off Sclerderma.lets hope it may raise...

Did anyone see on the BBC morning News programme ? a lady from SRUK talking a...

•8 days ago

hair loss

Hi everyone hope you are all well. I had my first visit to Royal Free Hospital. Thank you all for your suggestions they were so helpful. It was a busy day and...

Hi everyone hope you are all well. I had my first visit to Royal Free Hospital. ...

•8 days ago

How often should we have an endoscopy if we have reflux to check for Barrett's?

Hello everyone, Just wondering, those of you with reflux... how often have you had an endoscopy to check for Barrett's etc? I last had an endoscopy a...

Hello everyone, Just wondering, those of you with reflux... how often have you...

•10 days ago

Safest drug for Scleroderma

It seems that most of the drugs used in Scleroderma have severe side-effects. So, which one is the most safest one with minimal side-effects?

It seems that most of the drugs used in Scleroderma have severe side-effects. So...

•11 days ago

can anyone advise on knuckle sore patches?

Hello, I have had SSc and Raynauds for several years with a range of symptoms including digital ulcers. Just recently I have developed strange patches on my...

Hello, I have had SSc and Raynauds for several years with a range of symptoms in...

•11 days ago

Early ILD

Hello! Thank you to all who responded to my previous post. I have received a letter from my rheumatologist that he has reviewed all of the baseline diagnostic...

Hello! Thank you to all who responded to my previous post. I have received a let...

•14 days ago

Have you got serious problems like burning eyes after taking any herbal drug like L-Arginine?

I took a herbal drug called L-Arginine a many years ago back in 2010. After taking the tablets in the afternoon, I went to sleep but I woke up with burning...

I took a herbal drug called L-Arginine a many years ago back in 2010. After taki...

•14 days ago

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Recent diagnosis of MCTD

hi Short question has anyone been diagnosed with MDA5 antibody or does anybody have any information about this pls, looks like a rare antibody with a poor...

hi Short question has anyone been diagnosed with MDA5 antibody or does anybody...

•14 days ago

Immune Boosting Supplements

Hi, I'm curious...does anyone have any thoughts on immune boosting supplements when we have overactive immune systems? My father sadly passed away in...

Hi, I'm curious...does anyone have any thoughts on immune boosting supplements ...

•14 days ago

Myfortic

HiI was diagnosed with diffuse Scleroderma in 2015 I was on mycophenolate for nearly 5years however it caused alot of repeat infections and prevented healing...

HiI was diagnosed with diffuse Scleroderma in 2015 I was on mycophenolate for n...

•15 days ago

Working and life challenges

HiI recently got diagnosed with Systemic Sclerosis after 20 years of misdiagnosis. As a result I have become extremely resilient as had to be but I don't...

HiI recently got diagnosed with Systemic Sclerosis after 20 years of misdiagnosi...

•15 days ago

Omeprazole

Hi, I have Scleroderma with a handful of other conditions such as Pulmonary Hypertension, ILD, Gord, Raynauds etc. I have been taking Sildenafil and...

Hi, I have Scleroderma with a handful of other conditions such as Pulmonary Hype...

•19 days ago