Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,841 members • 5,411 posts

All posts for April 2024

how did your GI/gut symptoms start?

Hi All I hope everyone is doing well. looking for some insight - I’ve been diagnosed nearly 2 years. recently I have been having some minor gut issues and...

Hi All I hope everyone is doing well. looking for some insight - I’ve been di...

•2 days ago

Low BP

I've used Amlodipine for long time to help Raynauds, recently BP has become quite low so have stopped Amlodipine. Has anyone used Naftidrofuryl as it has been...

I've used Amlodipine for long time to help Raynauds, recently BP has become quit...

•3 days ago

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Nightmares

Hi everyone I haven't posted anything for a long time but I'm just wondering does anyone else suffer from night terrors and think it might be linked to...

Hi everyone I haven't posted anything for a long time but I'm just wondering doe...

•5 days ago

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Really itchy face and tiny spots

Hi I was diagnosed with scleroderma 2019 and since then I've always had itchy skin on my body so I'm on ceterizine 4x10mg a day but over the last week my face...

Hi I was diagnosed with scleroderma 2019 and since then I've always had itchy sk...

•7 days ago

Dry eyes and cataract operation

I have scleroderma and am suffering with dry eyes for which I use drops and a night ointment.I have been advised to have cataract surgery. Anyone any...

I have scleroderma and am suffering with dry eyes for which I use drops and a ni...

•9 days ago

Recently diagnosed

Hi - This is my first post - I was only recently diagnosed with scleroderma after what feels like an eternity of basically figuring out and chasing most of it...

Hi - This is my first post - I was only recently diagnosed with scleroderma afte...

•13 days ago

Raynaud's in dark skinned patients

Hi all! My mum has secondary Raynaud's, like triggered by heart meds that unfortunately, she has to take. Diagnosis came very late as she didn't get the...

Hi all! My mum has secondary Raynaud's, like triggered by heart meds that unfort...

•17 days ago

Tinnitus

I wonder if anyone else is suffering from tinnitus. I have noticed my tinnitus is getting worse and was reading up on it. So it seems it can affect people with...

I wonder if anyone else is suffering from tinnitus. I have noticed my tinnitus i...

•17 days ago

Nifedipine/blood pressure

it’s been a long time since I posted . I do however read other people’s stories and I think the conversations are amazing with so much advice been given thus...

it’s been a long time since I posted . I do however read other people’s stories...

•17 days ago

Elimination of symptoms through change of diet (such as AIP) - has anyone tried it?

Hi all, Has anyone ever tried AIP (Autoimmune Protocol) Diet or any other diet to get rid of symptoms of auto immune diseases? I have been speaking with the...

Hi all, Has anyone ever tried AIP (Autoimmune Protocol) Diet or any other diet ...

•19 days ago

Constant, crippling nausea: gastroparesis

Hi all, I have Dssc and medicated x2 twice daily mycophenolate which I've been on for about a year. My symptoms are generally under control after I began...

Hi all, I have Dssc and medicated x2 twice daily mycophenolate which I've been o...

•22 days ago

Tofacitinib

Hi, I’ve posted on here a few times about large areas of calcinosis ( I have diffuse systemic sclerosis) but as it’s a rare side of dSSc I have had very...

Hi, I’ve posted on here a few times about large areas of calcinosis ( I have d...

•23 days ago

Sclerosing Mesenteritis

hi folks this is my first time posting here, I have lupus SLE and recently been diagnosed with sclerosing Mesenteritis which is extremely rare - I have ended...

hi folks this is my first time posting here, I have lupus SLE and recently been ...

•27 days ago

really itchy legs

Hey 👋 so I have Raynauds and Inflammatory Arthritis and I’m the last 18 months I’ve been loosing hair on my calves badly. Now on one of the calves I have an...

Hey 👋 so I have Raynauds and Inflammatory Arthritis and I’m the last 18 months ...

•28 days ago

Change of rheumatology consultant! 😬

Hi guys, so I was diagnosed with Scleroderma two years ago and have regular yearly bloods. The consultant deems them stable and doesn't consider the results...

Hi guys, so I was diagnosed with Scleroderma two years ago and have regular year...

•29 days ago

Finger nails and raynauds

Hi ..I have raynauds and limited schleroderma and was wondering if anyone has the problem of there finger nails being discoloured and lifting off the nail bed...

Hi ..I have raynauds and limited schleroderma and was wondering if anyone has th...

•29 days ago

What creams are good for skin thickening? What do you use?

Hi All, I am noticing the scalyness on my hands is going worse and it is going down to my wrist now which is causing the tightening and stiffness around there....

Hi All, I am noticing the scalyness on my hands is going worse and it is going d...

•29 days ago