Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,409 posts

All posts for March 2012

How different are finger, toe, nose & ear ulcers and pulp lesions?

I'm very glad for the recent ? And replies about finger ulcers. Aren't these ulcers basically something that start with boils in the flesh that then burst or...

I'm very glad for the recent ? And replies about finger ulcers. Aren't these ulc...

Barnclown

•12 years ago

2 Replies

what does a finger ulcer look like BEFORE it breaks through the skin?

Cava

•12 years ago

5 Replies

Im a runner with raynauda I've had 6 stress fractures are the to connected I try to rest often but it doesn't seam to help?

Ottman3

•12 years ago

5 Replies

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Do all rheumatologists specialize in autoimmune diseases?

BIGI

•12 years ago

7 Replies

Knuckle "lines" are bright red

I have Limited Scleroderma with signs of REST (not the C). The palms of my hands have the appearance of a gala apple...sort of red and white with red dots....

I have Limited Scleroderma with signs of REST (not the C). The palms of my hand...

BIGI

•12 years ago

8 Replies

What does ANA 1/1000 centromere pattern mean?

Hello, I'd be really grateful if someone could tell me what this means? Thank you very much

Hello, I'd be really grateful if someone could tell me what this means? Th...

DeGreenifyMe

•12 years ago

5 Replies

I sometimes have the sensation that "inside" of my arm is cold. Not the outside. Weird! Any ideas?

BIGI

•12 years ago

4 Replies

i have serve primary raynauds.. what why do i have really bad itchy rash at times on legs and arms.. looks like i ve just burnt my self ..

it really does feel like they are on fire.... plus on one of my legs the rash looks like a butterfly which was funny xx plus i hate it when i have fat fingers...

it really does feel like they are on fire.... plus on one of my legs the rash lo...

fairygoddess83

•12 years ago

4 Replies

I cant believe it ... bloody doctors :( i wen to my docotors appt. yesterday to get my meds for serve primary raynauds..

i told my rhummy a few months ago that i didnt like taking nifidiphine due to side effects... then when i went to my gp i told him that i need some new med's...

i told my rhummy a few months ago that i didnt like taking nifidiphine due to si...

fairygoddess83

•12 years ago

7 Replies

disability tribunal

well that was a total waste of time but i supose the fight will go on,

glyn

•12 years ago

10 Replies

hi dose anyone suffer from creaky joints?

when i go up hill , upstairs, or walk far my hips creak like a creaky door

llindylou

•12 years ago

6 Replies

any help with a VERY itchy scalp, I could rip it to bits with the itch, please help

RaffC

•12 years ago

16 Replies

? eczema on eyelids

I have recently developed ? eczema on both my eyelids. I have limited scleroderma and wondered if this could be the cause or not. Has anybody else had similar...

I have recently developed ? eczema on both my eyelids. I have limited scleroderm...

dex1

•12 years ago

3 Replies

can anyone tell me if raynaud's is classed as a disability ?

tracy2012

•12 years ago

8 Replies

Morphia type of scleroderma

does anyone have this kind? What are you doing for it How long have you had it. Has it progressed? A worried Mom here.

does anyone have this kind? What are you doing for it How long have you had it. ...

mamajo089

•12 years ago

22 Replies

You Won't Believe This...My Dog has an autoimmune illness...

I just can't believe that my beautiful, sweet, dog has some kind of skin-related autoimmune disease (her nose is raw and has been for months) treated with the...

I just can't believe that my beautiful, sweet, dog has some kind of skin-related...

frostykitten

•12 years ago

15 Replies

Hello!

Hello there! I just wanted to introduce myself as this is my first blog entry.I'm in bed testing out my new iPad, which is very exciting!There is a little...

Hello there! I just wanted to introduce myself as this is my first blog entry.I...

Alexandra-M

•12 years ago

28 Replies

I have been passed from neurology to rheumatology and told I have MCTD but there is no treatment is this the case ?

has anyone had any medication that helps with Raynauds and other symptoms of MCTD ?

has anyone had any medication that helps with Raynauds and other symptoms of MCT...

sylviagreenhalgh

•12 years ago

7 Replies

Low dose steroids & other meds - pros and cons

Does anyone have experience of low dose steroids (Prednisolone) for inflammation associated with Scleroderma and also Plaquenil for same inflammation? I am...

Does anyone have experience of low dose steroids (Prednisolone) for inflammation...

Suze932

•12 years ago

6 Replies

cold knees

anybody suffer with the feeling of sitting in a draught all the time as my knees are constantly cold

anybody suffer with the feeling of sitting in a draught all the time as my knees...

glyn

•12 years ago

7 Replies

Question below

Think I may have 'lost' my question !!! My Gp has referred me to Rheumatology Clinic at Treliske. Has anyone been seen there and what do I expect? I havent...

Think I may have 'lost' my question !!! My Gp has referred me to Rheumatology C...

Bee346

•12 years ago

15 Replies

This was written by someone on the Lupus Site ::: So Scary = how are we going to cope!!!

Ability Disabled I've been trying to pin down a hazy idea that's been floating about in my blog-head for a few weeks now. Disability. People...

Ability Disabled I've been trying to pin down a hazy idea that's been floati...

Anteater

•12 years ago

14 Replies

Hi ! Has anyone been taking or taken Bosentan for secondary Raynaud's and did it give you nose bleeds ? thanks !

living-the-dream-ssc-ray

•12 years ago

3 Replies

just wanted to check if those who have raynauds - can take decongestants - like sudafed

As suffer from nosebleeds so i can't have them. Also i had to go to the pharmicist was ill with nausea and so on that sort of cleared, then had blocked...

As suffer from nosebleeds so i can't have them. Also i had to go to the pharmic...

bookworm

•12 years ago

3 Replies

2nd systemic sclerosis world congress, Madrid 2012

Hi everyone ! Im so excited to be able to access the notes (free downloads) from the presentations given at the recent WORLD congress meeting on scleroderma !...

Hi everyone ! Im so excited to be able to access the notes (free downloads) fro...

living-the-dream-ssc-ray

•12 years ago

10 Replies

Does anyone have any information regarding Cyclophosphemide and hair colour treatment.

I am on third session of Cyclophosphemide infusion, and wonder if it is O.K. to have my roots coloured....I have thick hair no loss but maybe a little thinner...

I am on third session of Cyclophosphemide infusion, and wonder if it is O.K. to ...

Carolanne

•12 years ago

9 Replies

Bit worried about this pain in my left side of my chest !!

Plus i couldnt move hurt everytime i breathed in and my left arm was numb and dark purple.. was very scary as this went on of 4 hours.... i have serve raynauds...

Plus i couldnt move hurt everytime i breathed in and my left arm was numb and da...

fairygoddess83

•12 years ago

4 Replies

Im in need of a rant !!!!!

I cant beilive my family at all .. i hardly ever see them and when i do they just make out that im not telling the truth and thta there is nothing wrong with...

I cant beilive my family at all .. i hardly ever see them and when i do they jus...

fairygoddess83

•12 years ago

7 Replies

stuck in

darent go out for fear of attack isit in my flat with my hat and thermal gear on roll on summer might be able to ditch the thermals :)

darent go out for fear of attack isit in my flat with my hat and thermal gear on...

adrianhillson

•12 years ago

7 Replies

Is it caused by scleroderma or is it just old age?

I have only been diagnosed about 2 years but like many people I think I have had the condition for many years before. Since being put on slow release Adalat...

I have only been diagnosed about 2 years but like many people I think I have had...

creditcrunchie

•12 years ago

2 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for March 2012

How different are finger, toe, nose & ear ulcers and pulp lesions?

what does a finger ulcer look like BEFORE it breaks through the skin?

Im a runner with raynauda I've had 6 stress fractures are the to connected I try to rest often but it doesn't seam to help?

Do all rheumatologists specialize in autoimmune diseases?

Knuckle "lines" are bright red

What does ANA 1/1000 centromere pattern mean?

I sometimes have the sensation that "inside" of my arm is cold. Not the outside. Weird! Any ideas?

i have serve primary raynauds.. what why do i have really bad itchy rash at times on legs and arms.. looks like i ve just burnt my self ..

I cant believe it ... bloody doctors :( i wen to my docotors appt. yesterday to get my meds for serve primary raynauds..

disability tribunal

hi dose anyone suffer from creaky joints?

any help with a VERY itchy scalp, I could rip it to bits with the itch, please help

? eczema on eyelids

can anyone tell me if raynaud's is classed as a disability ?

Morphia type of scleroderma

You Won't Believe This...My Dog has an autoimmune illness...

Hello!

I have been passed from neurology to rheumatology and told I have MCTD but there is no treatment is this the case ?

Low dose steroids & other meds - pros and cons

cold knees

Question below

This was written by someone on the Lupus Site ::: So Scary = how are we going to cope!!!

Hi ! Has anyone been taking or taken Bosentan for secondary Raynaud's and did it give you nose bleeds ? thanks !

just wanted to check if those who have raynauds - can take decongestants - like sudafed

2nd systemic sclerosis world congress, Madrid 2012

Does anyone have any information regarding Cyclophosphemide and hair colour treatment.

Bit worried about this pain in my left side of my chest !!

Im in need of a rant !!!!!

stuck in

Is it caused by scleroderma or is it just old age?

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