Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,410 posts

All posts for December 2023

Hi newbie here. Probable secondary Raynauds advice please.

Hi I have many health conditions a lot are auto immune. RA, Hypothyroidism, Excema, Asthma plus Epilepsy.. I had foot surgery on both feet last February...

Hi I have many health conditions a lot are auto immune. RA, Hypothyroidism, Ex...

•4 months ago

Colostomy

Hi all. I have had scleroderma (diffuse) for 20 years and it seems to have become more active recently. One of my problems is poor bowel control and I have...

Hi all. I have had scleroderma (diffuse) for 20 years and it seems to have beco...

•4 months ago

christmas

it’s that day again! I wish you all a happy and peaceful Christmas. Enjoy today and don’t worry about tomorrow.

it’s that day again! I wish you all a happy and peaceful Christmas. Enjoy today ...

•4 months ago

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calcium deposits on my eye scans have Mac degeneration of eyes

recently had a circle floater round my eye won’t go away xxxhas anybody experienced this just came on the other day xxxhave limited scleroderma with calcium...

recently had a circle floater round my eye won’t go away xxxhas anybody experien...

•4 months ago

mycophenolate in advanced fibrosis

Hi Has anyone with quite advanced fibrosis started on mycophenolate? My mums scleroderma has seemed to be advancing recently. Her breathing has become very...

Hi Has anyone with quite advanced fibrosis started on mycophenolate? My mums...

•5 months ago

ct abdominal scan with contrast

I have limited systematic scleroderma for 10 years affecting hands and joints with calcium deposits xx due to bowel problem need a ct scan with contrast is...

I have limited systematic scleroderma for 10 years affecting hands and joints wi...

•5 months ago

More red spots

Also these. Like the previous pictures they appear very quickly, suddenly, in the time it takes to drive to work for example. I've had them on my toes...

Also these. Like the previous pictures they appear very quickly, suddenly, i...

•5 months ago

More red spots

It's been suggested I post these here. I have Raynaud's but much less since being on hydroxychloroquine. Occasionally I still have an episode and unlike...

It's been suggested I post these here. I have Raynaud's but much less since bein...

•5 months ago

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Grim!

I’d be grateful for sympathy from you kind people! Life is more challenging than usual. No complaints about medical attention: pulmonary function test due...

I’d be grateful for sympathy from you kind people! Life is more challenging t...

•5 months ago

sore facial rash

I have been suffering with a sore and slightly acne looking type rash on my face. It started when I first started on mycophenolate about a year ago and my...

I have been suffering with a sore and slightly acne looking type rash on my face...

•5 months ago

Topical steroid & osteoporosis

Hi, I have severe osteoporosis as well as diffuse systemic sclerosis. I am having 6 monthly injections of denosumab. I also have chronic ulcers on feet which...

Hi, I have severe osteoporosis as well as diffuse systemic sclerosis. I am havin...

•5 months ago

Reynaud's Problems

Hi there, I'm wondering if anyone has any help or suggestions for me keeping my fingers warm at my work, I'm a postman and my Reynaud's is causing me big...

Hi there, I'm wondering if anyone has any help or suggestions for me keeping my ...

•5 months ago

Season's greetings for Reynauds sufferers

Preparations for going shopping: Locate electric hand-warmers and make sure they're both fully charged. Locate fleecy gloves and put on radiator to warm....

Preparations for going shopping: Locate electric hand-warmers and make sure the...

•5 months ago

Surgery and immuno suppressants

Hi everyone. I am due to have minor surgery on my wrist and have been asked by my surgeon to cease taking mycophenolate for a week before and a week after my...

Hi everyone. I am due to have minor surgery on my wrist and have been asked by ...

•5 months ago