Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,113 members•5,638 posts

All posts for May 2021

Raynaurds disease

Pic of my arm

Seeley

•4 years ago

16 Replies

Raynaurds disease

This is a few pics of my raynaurds disease.

Seeley

•4 years ago

5 Replies

Raynaurds disease

Does anyone with raynaud's disease get it in the mouth to. A pic of my leg .

Seeley

•4 years ago

4 Replies

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Low Blood platelets

Hello to all and hope warm weather helping in UK. Anyone have/had low platelet count with Scleroderma? If so, did any treatment improve it please as mine......

Hello to all and hope warm weather helping in UK. Anyone have/had low platelet ...

Bruffingtons2

•4 years ago

7 Replies

Vacine for covid

Who here has had the vacine and what where your side effects? I have crest amd reynauds , im still debating . Ive been staying healthy and being very careful ....

Who here has had the vacine and what where your side effects? I have crest amd r...

Emfrenette

•4 years ago

18 Replies

Anyone try Lotion bar for dry skin?

Hi there im looking for anyone whos possibly tried DIY lotion bars for their dry skin . Trying to find more organic solution than whats in stores filled with...

Hi there im looking for anyone whos possibly tried DIY lotion bars for their dry...

Emfrenette

•4 years ago

8 Replies

Scleroderma & Raynaud's Publications

The SRUK website has helpful factsheets on a variety of topics. You can choose to download them, or you can also request hard copies to be posted to you if...

The SRUK website has helpful factsheets on a variety of topics. You can choose ...

Lorrainej

Volunteer•4 years ago

1 Reply

Raynaulds primary but constantly numb/tingling hands and feet

Hello I recently had my bloods back and rhemy says v mild elevated ANA and nothing else. This has been the same steady state for 6 years of testing ( every 2...

Hello I recently had my bloods back and rhemy says v mild elevated ANA and nothi...

SmilesBarnaby

•4 years ago

12 Replies

Help with pain relief after oxford vaccine

I have systematic scleroderma and Raynauds I had my first covid vaccine 8 weeks ago and the day after I was wracked with pain ( light I’d been in a boxing...

I have systematic scleroderma and Raynauds I had my first covid vaccine 8 weeks ...

Lunar15

•4 years ago

6 Replies

Face cheeks raw inside with skin thickening

I have restricted mouth opening because of systemic sclerosis. Skin thickening quite bad on cheeks of face. Just wondered if anyone else was bothered with the...

I have restricted mouth opening because of systemic sclerosis. Skin thickening q...

Eden1234

•4 years ago

4 Replies

Undiagnosed and positive ANA

I joined in 2013 with a positive ANA Test 1:80 Nucleolar pattern suggesting schleroderma. I had follow up tests and no diagnosis. I’ve had 3 failed Endoscopes,...

I joined in 2013 with a positive ANA Test 1:80 Nucleolar pattern suggesting schl...

angelharley

•4 years ago

18 Replies

Those with severe reflux may find this helpful

I came across this physiotherapist video regarding reflux. Found it interesting and hopefully helpful. https://youtu.be/XUty6UI8RsE

I came across this physiotherapist video regarding reflux. Found it interesting ...

amc282

•4 years ago

6 Replies

split fingertips

i have been getting split fingertips for about a year now. what can i do to relieve the pain?

i have been getting split fingertips for about a year now. what can i do to reli...

parche683

•4 years ago

9 Replies

Just been diagnosed with Raynaud's a couple of weeks ago

I have just been diagnosed and am very grateful to have found a forum which might offer support. I first realised I had a problem when my feet got icy cold and...

I have just been diagnosed and am very grateful to have found a forum which migh...

Pam45

•4 years ago

37 Replies

Will you get your Covid-Anibodies checked after your second jab ? SARS-CoV vaccination responses with immune-mediated inflammatory diseases

Dear all, will you get your Covid-Anibodies levels checked after your second jab ? What have you Dr. s recommended ? Background of my question:...

Dear all, will you get your Covid-Anibodies levels checked after your second jab...

waermebaer

•4 years ago

9 Replies

Webinar - SRUK Presents: 'Welfare Benefits with Mr Richard Conway'

Webinar - SRUK Presents: 'Welfare Benefits with Mr Richard Conway' Monday 24th May, 3pm...

Webinar - SRUK Presents: 'Welfare Benefits with Mr Richard Conway' Monday 24th M...

Lorrainej

Volunteer•4 years ago

2 Replies

SSc ILD & PAH

Dear all, I was wondering who of you have been suffering from ILD and/or PAH and if so for how long ? How has it affected your life and what medications have...

Dear all, I was wondering who of you have been suffering from ILD and/or PAH and...

waermebaer

•4 years ago

12 Replies

What is happening to my hands?

Hi everyone. I’m Caroline and I’m 25. Nice to meet you all. I’ve always known my hands were strange. People used to make fun of them because they’ve always...

Hi everyone. I’m Caroline and I’m 25. Nice to meet you all. I’ve always known my...

4eversick

•4 years ago

3 Replies

What is happening to my hands?

Hi everyone. I’m Caroline and I’m 25. Nice to meet you all. I’ve always known my hands were strange. People used to make fun of them because they’ve always...

Hi everyone. I’m Caroline and I’m 25. Nice to meet you all. I’ve always known my...

4eversick

•4 years ago

6 Replies

GTN Patches

Hi All, I joined this community not too long ago and I’ve been looking at some of the posts that come up. I was just wondering if anyone has any experience...

Hi All, I joined this community not too long ago and I’ve been looking at some ...

TopCat07

•4 years ago

8 Replies

Sign up for Monthly E-News

Here's What You Missed Out On In Our Monthly E-News 📰 From information on diet to the the latest updates on everything from research to fundraising news -...

Here's What You Missed Out On In Our Monthly E-News 📰 From information on die...

Lorrainej

Volunteer•4 years ago

Be the first to reply

Digital ulcers? And - Treatment?!?

Have undifferentiated connective tissue disease - first they thought lupus, then scleroderma, then rheumatoid arthritis, have a fair few overlapping symptoms....

Have undifferentiated connective tissue disease - first they thought lupus, then...

bengali

•4 years ago

6 Replies

Raynauds treatment

I have tried Nifedipine andLosartan for Raynauds, but both gave me terrible night time itching. Is there a medication that won't give me this as a side...

I have tried Nifedipine andLosartan for Raynauds, but both gave me terrible nigh...

valeria123

•4 years ago

4 Replies

Raynauds persistent blue finger tip

Can you let me know what you are prescribed as vascular dilators? My finger tip has been blue for several days and I can’t get it to pink up with heat, massage...

Can you let me know what you are prescribed as vascular dilators? My finger tip ...

trunchalobesity

•4 years ago

29 Replies

Telangiectasia and crest

Does anyone have the “paper money” on their face? I have it on my entire right cheek only. I have a few telangiectasias on my chest right below my neck. On...

Does anyone have the “paper money” on their face? I have it on my entire right ...

Lorelle09

•4 years ago

9 Replies

Please could someone help me out with this !

Hey All, Quick question I have Raynauds, they are now looking into Scleroderma. But back November last year I nearly died from having a few pulmonary embolisms...

Hey All, Quick question I have Raynauds, they are now looking into Scleroderma. ...

Rachel100876

•4 years ago

6 Replies

Iloprost infusion

I’ve been in hospital for 5 days having iloprost infusion for my digital ulcers and I’m hoping it might benefit my pulmonary hypertension . I’m new to all of...

I’ve been in hospital for 5 days having iloprost infusion for my digital ulcers ...

Natbec4541

•4 years ago

3 Replies

other medications available?

hi im wondering if there a re any other treatments for screaderma and rheynards as in struggling to take myclophenolate as i have to take 8 tablets plus...

hi im wondering if there a re any other treatments for screaderma and rheynard...

hawkinse

•4 years ago

2 Replies

SRUK Helpline telephone number

Our Helpline - 0800 311 2756 We have a dedicated helpline that offers support to people affected by scleroderma and Raynaud's. If you would like to speak with...

Our Helpline - 0800 311 2756 We have a dedicated helpline that offers support to...

Lorrainej

Volunteer•4 years ago

1 Reply

Managing Digital Ulcers

Managing Digital Ulcers 🖐🏽 Today we revisit our recent webinar on assessing and managing digital ulcers in systemic sclerosis. If you're affected by digital...

Managing Digital Ulcers 🖐🏽 Today we revisit our recent webinar on assessing an...

Lorrainej

Volunteer•4 years ago

1 Reply

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for May 2021

Raynaurds disease

Raynaurds disease

Raynaurds disease

Low Blood platelets

Vacine for covid

Anyone try Lotion bar for dry skin?

Scleroderma & Raynaud's Publications

Raynaulds primary but constantly numb/tingling hands and feet

Help with pain relief after oxford vaccine

Face cheeks raw inside with skin thickening

Undiagnosed and positive ANA

Those with severe reflux may find this helpful

split fingertips

Just been diagnosed with Raynaud's a couple of weeks ago

Will you get your Covid-Anibodies checked after your second jab ? SARS-CoV vaccination responses with immune-mediated inflammatory diseases

Webinar - SRUK Presents: 'Welfare Benefits with Mr Richard Conway'

SSc ILD & PAH

What is happening to my hands?

What is happening to my hands?

GTN Patches

Sign up for Monthly E-News

Digital ulcers? And - Treatment?!?

Raynauds treatment

Raynauds persistent blue finger tip

Telangiectasia and crest

Please could someone help me out with this !

Iloprost infusion

other medications available?

SRUK Helpline telephone number

Managing Digital Ulcers

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