Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,833 members • 5,407 posts

All posts for February 2021

A-typical Raynaud's

My diagnosis is a-typical Raynaud's because it is not the classic white finger syndrome. In cold weather mine starts with a pink sore area on a finger, which...

My diagnosis is a-typical Raynaud's because it is not the classic white finger s...

carofromlondon

•3 years ago

7 Replies

Any thoughts what this could be

Hi I’ve not been able to see a doctor and from sending pictures they say it looks like contact dermatitis? I’m have attached pictures as I’m just unsure and...

Hi I’ve not been able to see a doctor and from sending pictures they say it loo...

Natz36

•3 years ago

5 Replies

Itching

Hello, I am new here, 84 yrs old and suffer from incredible itching on my scalp, on areas of eyelashes, eyebrows, armpits, pubic area and don't want to live...

Hello, I am new here, 84 yrs old and suffer from incredible itching on my scalp,...

AdrianaB

•3 years ago

26 Replies

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Swollen stinging fingers😢😭!!!!

Very painful swollen finger tips that sting and feel very sore due to Raynauds...Does anyone know how manage this..I am in so much pain? I am a Scleroderma...

Very painful swollen finger tips that sting and feel very sore due to Raynauds.....

eembee1

•3 years ago

2 Replies

Energy boost for fatigue

Fatigue is horrible want a pick me up, need a boost ideas please I eat well and daily exercise, take high dose magnesium and b12 at bedtime. Tried few tonics...

Fatigue is horrible want a pick me up, need a boost ideas please I eat well and ...

Deby177

•3 years ago

14 Replies

Part 3 - Just to compare xx

Levido Reticularis. Gotta love it...

Vicrum88

•3 years ago

2 Replies

Liar Liar Pants On Fire!! Part 2

So, same Doctor, same appointment, and I also ask the GP to look at my inflamed Levido Reticularis which is agony at the moment. He refused to assess it. I...

So, same Doctor, same appointment, and I also ask the GP to look at my inflamed ...

Vicrum88

•3 years ago

9 Replies

Liar Liar Pants On Fire!! Part 1

Hi everyone! So, how many of us have been to a doctor with an ailment, been examined, been given a viable answer for our questions but have still left the...

Hi everyone! So, how many of us have been to a doctor with an ailment, been exa...

Vicrum88

•3 years ago

13 Replies

Mctd and Raynauds

Hi, Has anyone tries cbd oil and is it helpful? I would like to find alternatives pain relief etc. Thanks

Hi, Has anyone tries cbd oil and is it helpful? I would like to find alternative...

Ygould

•3 years ago

7 Replies

Trying to reduce ppi.

I have been on a ppi for probably 20 years now but have oesteoporosis and SIBO now too which can be caused by long term ppi treatment. I wanted to ask if any...

I have been on a ppi for probably 20 years now but have oesteoporosis and SIBO n...

Halfwayuphill

•3 years ago

13 Replies

What Covid vaccination Group are you in?

I have MCTD (RA, Scleroderma, Raynauds & ? Lupus). I take no medication at present (was on plaquenil) and was going to discuss with my rheumatologist the...

I have MCTD (RA, Scleroderma, Raynauds & ? Lupus). I take no medication at prese...

llamehtdos

•3 years ago

6 Replies

A Special Live Event - US time

Join us at 2 p.m. EST Saturday, Feb. 27 as we celebrate Rare Disease Month with a special free virtual event for everyone affected by rare disease — patients,...

Join us at 2 p.m. EST Saturday, Feb. 27 as we celebrate Rare Disease Month with ...

amc282

•3 years ago

1 Reply

Interesting study of patient experiences

https://sclerodermanews.com/2021/02/19/eurordis-international-survey-finds-worse-healthcare-experience-rare-disease-patients-than-chronic-disease-patients/?utm_

https://sclerodermanews.com/2021/02/19/eurordis-international-survey-finds-worse...

amc282

•3 years ago

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Raynauds

Morning all, I have recently been diagnosed with raynauds, I also have mctd. Any recommendations on how to keep on top of it and reduce symptoms?

Morning all, I have recently been diagnosed with raynauds, I also have mctd. An...

Ygould

•3 years ago

2 Replies

Kitchen Witch Remedies or Pharmaceutical? 420 VS Painkillers?

Hi Everyone!! Firstly, Happy Fri-yay!! I hope everyone is keeping as safe and well as humanly possible. Today I've been reading up on self medicating while...

Hi Everyone!! Firstly, Happy Fri-yay!! I hope everyone is keeping as safe and ...

Vicrum88

•3 years ago

3 Replies

Any ideas?

I am a raynaud's sufferer and recently I have developed a raised irritation on my left hand. It sometimes cracks and bleeds and looks like little cuts. I...

I am a raynaud's sufferer and recently I have developed a raised irritation on m...

Lenrythe8th

•3 years ago

8 Replies

Calcinosis

Hi all I am struggling with calcinosis, particularly in my index fingers. I have one area in which hard calcium breaks through and gets infected. Eventually a...

Hi all I am struggling with calcinosis, particularly in my index fingers. I have...

Lyndabickley

•3 years ago

13 Replies

Can't get off this carousel!!

Hi all! It's not my style to show anger in my posts but today I can't help my frustration. I feel like I'm going round and round and round in circles just...

Hi all! It's not my style to show anger in my posts but today I can't help my f...

Vicrum88

•3 years ago

18 Replies

SRUK Support Group Midlands online meeting dates until August 2021

Hi folks Please find the time and dates for meetings until August 2021. Topic: SRUK Midlands regional meet up Time: Feb 7, 2021 11:00 AM London Every month on...

Hi folks Please find the time and dates for meetings until August 2021. Topic: S...

avtargill31

•3 years ago

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eosinophilic fasciitis

Does anyone have experience of this condition? I've been told that it is a component in unclassified connective tissue disease - in other words, doctors aren't...

Does anyone have experience of this condition? I've been told that it is a compo...

knoppia

•3 years ago

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Mixed tissue disease

Hi, I've recently been diagnosed with mixed tissue disease after suffering with symptoms for several months. Im confused , scared and unsure as to what the...

Hi, I've recently been diagnosed with mixed tissue disease after suffering with ...

Ygould

•3 years ago

12 Replies

Covid Jab

Hi All, Has anyone had the Covid Jab? Am on immune suppressants and have Systemic Scheloris (scleroderma diffuse). Received my text message to book for the 1st...

Hi All, Has anyone had the Covid Jab? Am on immune suppressants and have Systemi...

naila_007

•3 years ago

10 Replies

When The Pity Party Goes On Parade

Hey everyone! It's only me again, the Human Giraffe! Back with another update and of course - Questions!! It's been a big week for me this week! I finally had...

Hey everyone! It's only me again, the Human Giraffe! Back with another update an...

Vicrum88

•3 years ago

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Tail bone pain

Hello, does any one else have tailbone pain? I'm wondering if it is just me, or whether it could be linked to my scleroderma. I've also noticed that my...

Hello, does any one else have tailbone pain? I'm wondering if it is just me, or ...

Shona_69

•3 years ago

9 Replies

Possum gloves

Have just seen the advert in the latest SRUK News magazine for Kiwi Country Clothing. Kiwi Sheepskins also sell possum gloves but theirs are £19.95 with free...

Have just seen the advert in the latest SRUK News magazine for Kiwi Country Clot...

lynntregaron

•3 years ago

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Feels like a death sentence or shouldn't it ?

Dear Scleroderma warriors, thank you to everyone that responded by one way or the other to my post from approx. 3 weeks back. Much appreciated ! Being new to...

Dear Scleroderma warriors, thank you to everyone that responded by one way or th...

waermebaer

•3 years ago

12 Replies

Swollen hands - worsening Raynauds or something else?

Hi, I’ve had Raynauds for a few years, usually just affects my feet turning them numb and blue. I’ve been taking 2 x 10mg Nifedipine which helps somewhat, but...

Hi, I’ve had Raynauds for a few years, usually just affects my feet turning them...

ShonaGreen

•3 years ago

10 Replies

what is wrong with me

dermatology said xrays show connective tissue but no calcification to suggest scleroderma of mny hands, choking on food, spit it back up solids

dermatology said xrays show connective tissue but no calcification to suggest sc...

Sanmateogirl107

•3 years ago

8 Replies

It’s me!!

Hi all - I just clicked on a link from a previous posting on here to https://www.sruk.co.uk only to find.... MY HAND staring me in the face! Was quite funny!...

Hi all - I just clicked on a link from a previous posting on here to https://www...

DJK99

•3 years ago

1 Reply

Freaky Freckles and Mysterious Moles?

Hey everyone, it's just me again! Today I'm looking for some advice and guidance. I don't even know what topic to put this post under because it's a bit of an...

Hey everyone, it's just me again! Today I'm looking for some advice and guidanc...

Vicrum88

•3 years ago

3 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for February 2021

A-typical Raynaud's

Any thoughts what this could be

Itching

Swollen stinging fingers😢😭!!!!

Energy boost for fatigue

Part 3 - Just to compare xx

Liar Liar Pants On Fire!! Part 2

Liar Liar Pants On Fire!! Part 1

Mctd and Raynauds

Trying to reduce ppi.

What Covid vaccination Group are you in?

A Special Live Event - US time

Interesting study of patient experiences

Raynauds

Kitchen Witch Remedies or Pharmaceutical? 420 VS Painkillers?

Any ideas?

Calcinosis

Can't get off this carousel!!

SRUK Support Group Midlands online meeting dates until August 2021

eosinophilic fasciitis

Mixed tissue disease

Covid Jab

When The Pity Party Goes On Parade

Tail bone pain

Possum gloves

Feels like a death sentence or shouldn't it ?

Swollen hands - worsening Raynauds or something else?

what is wrong with me

It’s me!!

Freaky Freckles and Mysterious Moles?

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