Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,825 members • 5,405 posts

All posts for June 2013

Aching joints

When I am stressed (like at the moment) I have more Raynauds attacks butt also get really bad joint pain.. Is this "normal"?

When I am stressed (like at the moment) I have more Raynauds attacks butt also g...

sandraj

•11 years ago

16 Replies

pills

Does anybody know the name of the pills you get giving in slowing the bowel down meaning slowing down running to the loo .

Does anybody know the name of the pills you get giving in slowing the bowel down...

stevieboy

•11 years ago

7 Replies

whooooooo

appointment for the first time is in 2 hours, hopefully they will have some answers, wish me luck!!

appointment for the first time is in 2 hours, hopefully they will have some answ...

littlemissshy

•11 years ago

9 Replies

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Thermal biofeedback and Raynaud's

I have read about the benefits of thermal biofeedback for Raynaud's mainly on US websites. Does anyone know of practitioners in the UK or had experience of...

I have read about the benefits of thermal biofeedback for Raynaud's mainly on US...

Chrispy

•11 years ago

4 Replies

Help!!! Can anyone and everyone please help me

Hey guys, I really need some help to find some literature on the effects to the body from raynauds.. I have just moved in to my lovely new eco home gave to me...

Hey guys, I really need some help to find some literature on the effects to the ...

fairygoddess83

•11 years ago

9 Replies

Blue lips and face?

My 2 year old daughter keeps going blue in the face around her lips and her lips, as well as her hands and feet. Is this normal? We have no official diagnosis...

My 2 year old daughter keeps going blue in the face around her lips and her lips...

Emmejkelly

•11 years ago

5 Replies

Does anyone else have a toddler with Reynauds?

How do you control it? Everything sets her off. Our laminate flooring, the leather sofas, a drink, cold food, getting out of the bath etc. I use extra socks...

How do you control it? Everything sets her off. Our laminate flooring, the leath...

Emmejkelly

•11 years ago

2 Replies

Anybody else out there being treated at Glasgow Royal?

Does the connective tissue element of LSS have more profound effect if you pull or strain muscles? The pain is horrendous.

Does the connective tissue element of LSS have more profound effect if you pull ...

Madge51

•11 years ago

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My Issues

I have't long been diagnosed, I get it mildly in my hand at the moment, but what I would like to know is."how quickly can it develop and get worse"?

I have't long been diagnosed, I get it mildly in my hand at the moment, but what...

Rookley

•11 years ago

3 Replies

eating

anyone else find eating strenuous? i cant hold my arms up to eat at the table for long.... also i have difficulty swallowing.....thankyouuuu.... :-D

anyone else find eating strenuous? i cant hold my arms up to eat at the table fo...

littlemissshy

•11 years ago

9 Replies

I got treated for red swollen fingers whilst on holiday in Tenerife and I need to find out what treatment it was that they gave me.

On advice, on holiday I went to a Spanish teaching hospital to get my fat red fingers checked out. I am still mystified about the treatment given because of...

On advice, on holiday I went to a Spanish teaching hospital to get my fat red fi...

lenny111

•11 years ago

2 Replies

raynards crest

iv got raynards and im suffering painfull feet and swollon hands

ukbabes45

•11 years ago

1 Reply

Single blue/purple finger for a few days! :( Advice needed

Hi folks, I have Raynauds 18 yrs and have other autoimmune diseases as well. I have had one purple finger now for 2 days and it shows no sign of letting up. it...

Hi folks, I have Raynauds 18 yrs and have other autoimmune diseases as well. I h...

SuzCurran

•11 years ago

12 Replies

Thanks for all your advice......

I've been a member of this website for about 4 months, I came across it when doing some research after being diagnosed with Raynaud's, having never heard of...

I've been a member of this website for about 4 months, I came across it when doi...

jogoody

•11 years ago

5 Replies

How to get medical notes from an operation on my feet !!!

I may be paranoid but I really want to find out if there was an error in my surgery I had on my toes both feet! Ever since then my circulation to my legs and...

I may be paranoid but I really want to find out if there was an error in my surg...

fairygoddess83

•11 years ago

7 Replies

Does anyone know if you can make a self referrals to the royal free hospital.

Hey I 've been trying to get my doctor to send me to the royal free hospital but they won't... they just look at me and say there is not one pill that will...

Hey I 've been trying to get my doctor to send me to the royal free hospital but...

fairygoddess83

•11 years ago

9 Replies

Does anyone know if it's OK to have treatment for thread veins if you have Raynauds and Lupus?

gimme3steps

•11 years ago

2 Replies

neutrogena cream....

my d.t teacher recommended this as it apparently slightly warms the hands and keeps them clean...has anyone used this? if so, what happened??

my d.t teacher recommended this as it apparently slightly warms the hands and ke...

littlemissshy

•11 years ago

7 Replies

I get dark feet when I sit or stand still for 10 min. or more

ArtistAnne

•11 years ago

15 Replies

Yaaaaaaaaaay!!!

I've just managed to open a bottle of bleach, without help, for the first time in years! :D

I've just managed to open a bottle of bleach, without help, for the first time i...

Skwiglee

•11 years ago

5 Replies

has anyone had an infusion of sodium thiosulphate for calcinosis, did it help and were there any side effects ? x

redtommy07

•11 years ago

4 Replies

queens hospital burton

hi does anyone on here go to this hospital in burton upon trent....I am under them for my raynauds and scleroderma...just going through all the 1st round of...

hi does anyone on here go to this hospital in burton upon trent....I am under th...

sandycharlie

•11 years ago

5 Replies

Chrohns ,Fibromyalgi, Lupus SLE, Raynaud`s, Erythromelalgia ???

Hi All,I suffer from the above conditions. I have been suffering from burning fingertips which radiates up my arm causing my veins to bulge,( which worsens...

Hi All,I suffer from the above conditions. I have been suffering from burning fi...

Loopy-loo

•11 years ago

11 Replies

What to expect...

What should i expect when i go to the rheumatologist (nevill hall hospital) ???

littlemissshy

•11 years ago

11 Replies

Hi, I am male and have Raynauds. Anyone live in or near Waltham Abbey in Essex that wants to get in touch?

woolf200

•11 years ago

6 Replies

does anyone have experience of sodium thiosulphate infusions for calcinosis ?

redtommy07

•11 years ago

1 Reply

Has anybody had any of these problems

For a few weeks know ,ive had a burning feeling on my tongue,i have a few white patches on my tongue,i also got burning at the back of my nose ,and a sore...

For a few weeks know ,ive had a burning feeling on my tongue,i have a few white ...

jenkins31

•11 years ago

7 Replies

is it normal to be constantly hungry and sometimes feel sick with rays? its only come on in the last few months(along with everything else!)

littlemissshy

•11 years ago

10 Replies

raynauds and sceledroma (??) awareness month....

apparently there is a r.a.s.a.m.?? if so how have people raised awarness in the past? i think we should all do something....not sure what you think....or when...

apparently there is a r.a.s.a.m.?? if so how have people raised awarness in the ...

littlemissshy

•11 years ago

9 Replies

Painful toes :(

Hi all I'm at my wits end with the pain I've been in all weekend, been told I have more than likely got Raynaud's just waiting on the MRI results before the...

Hi all I'm at my wits end with the pain I've been in all weekend, been told I ha...

jogoody

•11 years ago

8 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for June 2013

Aching joints

pills

whooooooo

Thermal biofeedback and Raynaud's

Help!!! Can anyone and everyone please help me

Blue lips and face?

Does anyone else have a toddler with Reynauds?

Anybody else out there being treated at Glasgow Royal?

My Issues

eating

I got treated for red swollen fingers whilst on holiday in Tenerife and I need to find out what treatment it was that they gave me.

raynards crest

Single blue/purple finger for a few days! :( Advice needed

Thanks for all your advice......

How to get medical notes from an operation on my feet !!!

Does anyone know if you can make a self referrals to the royal free hospital.

Does anyone know if it's OK to have treatment for thread veins if you have Raynauds and Lupus?

neutrogena cream....

I get dark feet when I sit or stand still for 10 min. or more

Yaaaaaaaaaay!!!

has anyone had an infusion of sodium thiosulphate for calcinosis, did it help and were there any side effects ? x

queens hospital burton

Chrohns ,Fibromyalgi, Lupus SLE, Raynaud`s, Erythromelalgia ???

What to expect...

Hi, I am male and have Raynauds. Anyone live in or near Waltham Abbey in Essex that wants to get in touch?

does anyone have experience of sodium thiosulphate infusions for calcinosis ?

Has anybody had any of these problems

is it normal to be constantly hungry and sometimes feel sick with rays? its only come on in the last few months(along with everything else!)

raynauds and sceledroma (??) awareness month....

Painful toes :(

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