Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,408 posts

All posts for November 2012

Hey i need some advice and any tips!!!

As it has started to get colder , im finding it hard to get anything out of the fridge or freezer.. plus getting wet washing out from the washing machine even...

As it has started to get colder , im finding it hard to get anything out of the ...

fairygoddess83

•11 years ago

9 Replies

Working outdoors. Should I quit my Job?

About 50% of my work is out doors as I'm an engineer. 6 weeks ago I was diagnosed with Raynauds. My Mum has it, we didn't realise it was hereditary. I've...

About 50% of my work is out doors as I'm an engineer. 6 weeks ago I was diagnos...

Nat1

•11 years ago

22 Replies

raynauds medication

are you on any raynauds medications?? my new consultant asked me if i wanted treatment for it...what do you take and how has it helped?? I said no as my...

are you on any raynauds medications?? my new consultant asked me if i wanted tre...

Kerry72

•11 years ago

26 Replies

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NIfedepine shortage?

My pharmacist has been trying to fill me recent prescription for the past two weeks, but can't get hold of supplies. We arein the north of England. Has anyne...

My pharmacist has been trying to fill me recent prescription for the past two we...

Pipsmum

•11 years ago

13 Replies

new rheumatologist

today i saw my new rheumatologist since moving recently...he seems very proactive in my treatment ...being sent for a barium meal and started me on...

today i saw my new rheumatologist since moving recently...he seems very proactiv...

Kerry72

•11 years ago

4 Replies

can anyone suggest something to help with dry mouth, I have Sjogren's but lately it is terrible.

uknlv

•11 years ago

11 Replies

Has anyone tried Back On Track gloves ore socks for their raynauds? It's a ceramic coated polyester material that reflects body heat.

pcokfarm

•11 years ago

6 Replies

Does anyone else with Raynauds suffer with mucous discharge from their back passage?

bookworm

•11 years ago

11 Replies

Any Ideas for dealing with "cold shoulder" Medication ? Clothing ?

Noddy32

•11 years ago

4 Replies

AntiScleroderma antibioties, Sevral +ANA -- Deep layers of Peeling and (almost) healing skin...now scarred finger tips.

PLEASE tell me what kind of doc specialty might help me? I literally begged for nitroglycerin cream, and was denied. Last night, the throbbing in my skinless...

PLEASE tell me what kind of doc specialty might help me? I literally begged for...

TwiceShyNow

•11 years ago

7 Replies

Thunderclap migraines

I was finally diagnosed after 18 months today with thunderclap migraines...so after all these months of suffering and many visits to the doctors and been...

I was finally diagnosed after 18 months today with thunderclap migraines...so af...

vonnie33

•11 years ago

3 Replies

Does anyone have atrophie blanche - a foot ulcer condition linked to limited scleroderma? Have you had Iloprost treatment and has it worked?

JemimaDoll

•11 years ago

5 Replies

wrinkled mouth- any suggestions on how to improve

I have Raynauds and Scleroderma with all the associated problems. However, and I know it is only vanity, one thing that does trouble me is my very small...

I have Raynauds and Scleroderma with all the associated problems. However, and I...

nannysue1950

•11 years ago

8 Replies

Wrist pain?

Does any body know what causes wrist pain I've been experiencing a lot of wrist pain this week can't apply pressure on it cause it kills in both wrists but its...

Does any body know what causes wrist pain I've been experiencing a lot of wrist ...

Lisa_Lovatt

•11 years ago

9 Replies

Stomach Issues

I have scleroderma, with additional problems one of which is stomach/bowel problems, which is having a significant impact upon my life, not wanting to go out...

I have scleroderma, with additional problems one of which is stomach/bowel probl...

SandraM

•11 years ago

23 Replies

Blood vessels

Hi everyone wandered if anyone out there can help with this. my hands keep going a dusky blue and Veins? capilleries? suddenly seem to blow causing severe pain...

Hi everyone wandered if anyone out there can help with this. my hands keep going...

kaabbechjajogefa

•11 years ago

7 Replies

Flying with severe lung conditions.

II rarely take holidays abroad, so when I was given the opportunity for a holiday in Marrakech I never gave a thought to my health causing a problem. Now as...

II rarely take holidays abroad, so when I was given the opportunity for a holida...

SandraMarie

•11 years ago

5 Replies

Hi All,

Just wondered I am having a lot of joint pain & stiffness in fingers, hips & thumb joints is this all part of having Scleroderma ? other than Ibuprofen which...

Just wondered I am having a lot of joint pain & stiffness in fingers, hips & th...

newton

•11 years ago

9 Replies

Anyone have trouble with tablet blister packs?

If so I bought a plastic device for popping tablets out of blister packs. It's such a simple device and cost less than five pounds, bit is absolutely...

If so I bought a plastic device for popping tablets out of blister packs. It's s...

meders

•11 years ago

3 Replies

Raynauds

i have raynauds and i was just wondering what i can't take with having it as the other day i found out having things with caffeine in can make it worse that's...

i have raynauds and i was just wondering what i can't take with having it as the...

Lisa_Lovatt

•11 years ago

19 Replies

Hi folks. I'm thinking of getting Blazewear heated gloves. Anyone have these and could recommend which type are best for Winter driving ?

CauldLoon

•11 years ago

1 Reply

Dairy free diet

Has anybody tried going dairy free. It is supposed to help with inflammation and as my hands and feet are really painful at the moment I'm tempted to give it a...

Has anybody tried going dairy free. It is supposed to help with inflammation and...

AMDP

•11 years ago

11 Replies

Length of time to see Rheumatologist Consultant

In Cardiff the waiting list is 10 to 11 months. I phoned them up a few weeks ago to find out where I am on the list and was politely advised "oh don't worry...

In Cardiff the waiting list is 10 to 11 months. I phoned them up a few weeks ag...

Hidden

•11 years ago

21 Replies

Cellulitis in hand following surgery removing calcinosis lumps?

I am worried about a fellow sufferer who has cellulitis in her one hand after surgery for calcinosis lumps removal in both hands- she is on anti biotics but...

I am worried about a fellow sufferer who has cellulitis in her one hand after s...

AliW

•11 years ago

5 Replies

does anti - depressants affect Raynaud's?

Has anyone taken anti-depressants and do you think it makes raynuad's symptoms worse?

Has anyone taken anti-depressants and do you think it makes raynuad's symptoms w...

sunshine11

•11 years ago

6 Replies

Hi, I am looking to follow a wheat free diet and wonder does anyone know which supermarket supplies the best wheat free products, thanks

RaffC

•11 years ago

13 Replies

I am on diltiazem and my new dr. wants to put me on nifedipine

but I am scared to try it since it could cause blockage or symptoms of a heart attack. Anybody have any severe symptoms?

but I am scared to try it since it could cause blockage or symptoms of a heart a...

danacetz

•11 years ago

18 Replies

Just diagnosed officially - Heated gloves on the NHS? What are they like?

I've had Raynaud's for aaaaaaaaaaaages but I finally saw a Rheumy who officially diagnosed me and sent me off to orthotics to get measured up for heated gloves...

I've had Raynaud's for aaaaaaaaaaaages but I finally saw a Rheumy who officially...

Blueberry

•11 years ago

11 Replies

Anyone else tried Kelocote scar gel?

I was given a free sample of this at a conference - it is a silicone based gel that is intended for use on scars to soften them and help them heal. I was...

I was given a free sample of this at a conference - it is a silicone based gel ...

Coldfeet

•11 years ago

4 Replies

Has anyone experienced tight, shiny skin on your face, neck and body?

I have raynauds and limited scleroderma......... over the last few months I have noticed that that the skin on my arms, knees, shins and shoulders is becoming...

I have raynauds and limited scleroderma......... over the last few months I have...

wartsandall

•11 years ago

11 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for November 2012

Hey i need some advice and any tips!!!

Working outdoors. Should I quit my Job?

raynauds medication

NIfedepine shortage?

new rheumatologist

can anyone suggest something to help with dry mouth, I have Sjogren's but lately it is terrible.

Has anyone tried Back On Track gloves ore socks for their raynauds? It's a ceramic coated polyester material that reflects body heat.

Does anyone else with Raynauds suffer with mucous discharge from their back passage?

Any Ideas for dealing with "cold shoulder" Medication ? Clothing ?

AntiScleroderma antibioties, Sevral +ANA -- Deep layers of Peeling and (almost) healing skin...now scarred finger tips.

Thunderclap migraines

Does anyone have atrophie blanche - a foot ulcer condition linked to limited scleroderma? Have you had Iloprost treatment and has it worked?

wrinkled mouth- any suggestions on how to improve

Wrist pain?

Stomach Issues

Blood vessels

Flying with severe lung conditions.

Hi All,

Anyone have trouble with tablet blister packs?

Raynauds

Hi folks. I'm thinking of getting Blazewear heated gloves. Anyone have these and could recommend which type are best for Winter driving ?

Dairy free diet

Length of time to see Rheumatologist Consultant

Cellulitis in hand following surgery removing calcinosis lumps?

does anti - depressants affect Raynaud's?

Hi, I am looking to follow a wheat free diet and wonder does anyone know which supermarket supplies the best wheat free products, thanks

I am on diltiazem and my new dr. wants to put me on nifedipine

Just diagnosed officially - Heated gloves on the NHS? What are they like?

Anyone else tried Kelocote scar gel?

Has anyone experienced tight, shiny skin on your face, neck and body?

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