Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,837 members • 5,410 posts

All posts for August 2023

Winter coat

Hello everyone, hope all of you are well! As summer is already gone 😞 ….the cold nightmare is around the corner. I struggle finding a good winter coat that...

Hello everyone, hope all of you are well! As summer is already gone 😞 ….the co...

•8 months ago

Article in the Guardian on Vegus Nerve

I posted this on Lupus forum too. Retched spell check changed the title though! Interesting article in todays Guardian re research into the Vegus Nerve. As...

I posted this on Lupus forum too. Retched spell check changed the title though!...

•8 months ago

SRUK Concert with Matthew Slater

SRUK are delighted to be hosting a classical concert specially curated by composer Matthew Slater. Matthew's credits include the TV series Endeavour, Tome...

SRUK are delighted to be hosting a classical concert specially curated by compos...

•8 months ago

Be the first to reply

Want to take advantage of all our features? Just log in!

or

Fatigue and joint and body pain- what helps?

Hi everyone. I received my formal diagnosis of limited systemic sclerosis last week and am waiting to have ECHO and PFT to see it has affected my organs yet....

Hi everyone. I received my formal diagnosis of limited systemic sclerosis last w...

•9 months ago

Hydroxychloroquine

Hi, I have Sjogrens disease and the Hydroxychloroquine really helps me. It has been like a miracle drug for me actually. My immune system is very strong. I...

Hi, I have Sjogrens disease and the Hydroxychloroquine really helps me. It has b...

•9 months ago

Scalp & Feet

hello to all, I am still at the relative early stages of my scleroderma journey and beginning to notice red patches on my scalp and feet that come and go - I...

hello to all, I am still at the relative early stages of my scleroderma journey...

•9 months ago

Getting blood out of a stone (like hand)

My work has given me a free "thriva" blood test to take (for vitamin d), however my attempt at filling the small vial was messy and the lab rejected the little...

My work has given me a free "thriva" blood test to take (for vitamin d), however...

•9 months ago

Diagnosed by anecdote

My doctor has diagnosed me with Raynauld's not by a blood test but by my description of my (admittedly fairly obvious) symptoms. He also seems to have nothing...

My doctor has diagnosed me with Raynauld's not by a blood test but by my descrip...

•9 months ago

Mycophenolate, sun protection and swimwear

Hi, I'm currently on mycophenolate (mg / x2 / twice daily) and in the active stages of systemic sclerosis. I have had some very mild skin tightening on the...

Hi, I'm currently on mycophenolate (mg / x2 / twice daily) and in the active sta...

•9 months ago

Collegen supplements

Hi. Has anyone had advice about taking collegen supplements. I have MCT disorder so I don't know if I am making too much collegen or if its just inflammation...

Hi. Has anyone had advice about taking collegen supplements. I have MCT disorder...

•9 months ago

Dental Problems

Hi All, I’m having increasing problems with skin tightening on my face, due to this my mouth has got tighter , making it difficult to open my mouth, smile...

Hi All, I’m having increasing problems with skin tightening on my face, due to ...

•9 months ago

ongoing health

Good morning to my just an update on my ongoing health scroll on if not interested and for those of you who are here goes xxx On Monday I travelled to...

Good morning to my just an update on my ongoing health scroll on if not interes...

•9 months ago

Systemic Sclerosis symptoms during pregnancy

Hi everyone, I'm 3 months pregnant with my first child. Was diagnosed with limited cutaneous systemic sclerosis 5 years ago (Scl-70 and ANA positive) but had...

Hi everyone, I'm 3 months pregnant with my first child. Was diagnosed with limi...

•9 months ago