Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,113 members•5,638 posts

All posts for February 2013

Good news!

Just got a call from the GP I saw this morning who said she called the Royal Free and spoke to the consultant's secretary who in turn spoke to one of the...

Just got a call from the GP I saw this morning who said she called the Royal Fre...

tcogb

•12 years ago

5 Replies

And the waiting continues..

Saw my favourite GP today. You know why she is my favourite? She actually turns away from her PC, moves closer to you and listens to what you want to say &...

Saw my favourite GP today. You know why she is my favourite? She actually turns ...

tcogb

•12 years ago

6 Replies

Very sore finger ...painful to the touch & swollen :(

My ring finger is so swollen & tender to the touch nasty sore red patch on one side of the tip & extremely sore - will this ulcerate ?

My ring finger is so swollen & tender to the touch nasty sore red patch on one ...

AliW

•12 years ago

3 Replies

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Immunoglobulin G treatment

Hi everyone has anyone had this treatment ? if so what for ? and what did it entail (overnight stay, duration ? tolerability?) Thanks in advance :)

Hi everyone has anyone had this treatment ? if so what for ? and what did it en...

living-the-dream-ssc-ray

•12 years ago

1 Reply

Coding and Health Unlocked

Hi folks... this is going to be a bit a none Raynaud's blog this time around. I might have mentioned and some have found out I am a bit of a geek when it comes...

Hi folks... this is going to be a bit a none Raynaud's blog this time around. I ...

Blue-Bunny

•12 years ago

3 Replies

toxcillizumab

i have raynauds and diffuse systemic scleroderma i have tried chemo for 9 months and mycophenolate for 9 months only to be told that its getting worse so i...

i have raynauds and diffuse systemic scleroderma i have tried chemo for 9 months...

llindylou

•12 years ago

10 Replies

Cure with Cayenne

Those of you suffering with hot feet or cold feet. Here is a major way to help yourself. Get the book Cure with Cayenne. By Sam Biser. Cayenne is a blood...

Those of you suffering with hot feet or cold feet. Here is a major way to help y...

Yogananda

•12 years ago

3 Replies

Back to GP...again....

Still waiting for my appointment to come through since my referral to the Royal Free. Meanwhile it's so difficult to get to see a GP of my choice and I have to...

Still waiting for my appointment to come through since my referral to the Royal ...

tcogb

•12 years ago

6 Replies

Even with three pairs of gloves, the Raynaud's still gets me! been to the doctor but she says there's nothing she can do, is this true???

nicolanymph

•12 years ago

29 Replies

preparing fruit

well interesting day today, after having a fresh pineapple ripping on the windowsill decided to cut it up!!!...wow!! took me ages as handling the fruit made my...

well interesting day today, after having a fresh pineapple ripping on the window...

sandycharlie

•12 years ago

6 Replies

I get Raynauds in my hands . I've tried Losartan but it made no difference and am wondering if nifedipine would help.

I read Sandycharlie's post and it seems a lot of people take it with success. What dose do you need to take and are there any side effects? Am 52 years old and...

I read Sandycharlie's post and it seems a lot of people take it with success. Wh...

DeedeeP

•12 years ago

10 Replies

Dilemma: Heating or Internet?

From my previous blog, you have have ascertained that my landlord hasn't put me in the best of situations. But I've been er...coping, with various different...

From my previous blog, you have have ascertained that my landlord hasn't put me ...

Blue-Bunny

•12 years ago

10 Replies

Just found this and thought i would share ;)xx

Dental/Raynaud's Disease Connection In my clinical experience since 1969, I have come to the realization that 70 to 90% of all medical problems have a...

Dental/Raynaud's Disease Connection In my clinical experience since 1969, I ...

fairygoddess83

•12 years ago

20 Replies

Keeping warm at football matches

Sorry those who do not like football! I am a keen supporter or my local team and have just got back from a late kick-off. My question is how do others keep...

Sorry those who do not like football! I am a keen supporter or my local team and...

Cammeronuk2

•12 years ago

10 Replies

Continuous iloprost.....how long does it take to work?

I had continuous iloprost this week in hospital, went in on Monday and got out today. Does anyone know how long it can take to work? I've had iloprost before...

I had continuous iloprost this week in hospital, went in on Monday and got out t...

scotgirl

•12 years ago

8 Replies

Anyone noticed that the RSA site is going reaalllly slowly?

I mean I have -_-; I'm still here waiting for it to load. I think people have been slacking on the other end with regards to the server bills but who knows....

I mean I have -_-; I'm still here waiting for it to load. I think people have be...

Blue-Bunny

•12 years ago

2 Replies

has any1 ever put a claim in against an employer? i have been told my raynauds poss caused by my last job as machine vibrated thro my hands

sandycharlie

•12 years ago

7 Replies

The Raynaud's Winter Survival Kit

Today I have spend literally the whole day putting together a list of (cost effective) items that I've found really useful during the cold season to help cope...

Today I have spend literally the whole day putting together a list of (cost effe...

medsoph

•12 years ago

17 Replies

tissue damage following chill blains

i have suffered chill blain s as a result of secondary raynards for several winters now. on toe in particular is always tend and has never really returned to...

i have suffered chill blain s as a result of secondary raynards for several wint...

moss

•12 years ago

4 Replies

Has anyone used any voice activated software in relation to Raynauds or any other medical conditions and what has their experience been?

In particular has anyone used Dragon software?

strained1

•12 years ago

5 Replies

Hello kind people with Raynauds, Does anyone get the tingles all day long?

I was doing good but htan every other month or so my bicepts and thighs start tingling. I think again. I think possibly slight air drafts set it off. That is...

I was doing good but htan every other month or so my bicepts and thighs start ti...

danacetz

•12 years ago

5 Replies

does anyone find doing more exercise help with raynauds? (mine in hands only at mo), thinking bout getting exercise bike

sandycharlie

•12 years ago

12 Replies

exercise

been to the doctors and been referred to a rheumatologist so hopefully will get sorted but have been told exercise will help, i already walk my dog three times...

been to the doctors and been referred to a rheumatologist so hopefully will get ...

sandycharlie

•12 years ago

9 Replies

Mouth ulcers and raynauds connection?

Hello, I've had raynuads for about 5 or 6 years now diagnosed and am 18, I've been getting mouth, throat and tongue ulcers for a few moths, amorally once a...

Hello, I've had raynuads for about 5 or 6 years now diagnosed and am 18, I've...

DeGreenifyMe

•12 years ago

6 Replies

Having problems with travel insurance as I have lung involvement with scleroderma

Hi, am new to this site. Have been dianosed with raynauds and systemic sclerosis for five years now. I've recently had more lung involvement ie fibrosis and am...

Hi, am new to this site. Have been dianosed with raynauds and systemic sclerosis...

Bubbles01

•12 years ago

5 Replies

Skin rashes & large blister appearing overnight

After recent blood tests and years of various symptoms my GP has finally referred me to the Royal Free (just waiting for appointment to come through) after my...

After recent blood tests and years of various symptoms my GP has finally referre...

tcogb

•12 years ago

7 Replies

Pre-ulcer starting on my left outside ankle

I can't sleep because of the super strong needle sharp stabbing pains. Any suggestions to get out of pain? All I keep thinking is 6-12 months is a lllooonngg...

I can't sleep because of the super strong needle sharp stabbing pains. Any sugge...

danacetz

•12 years ago

5 Replies

Full or Fingerless Gloves?

More of a poll really for those who have tried the RSA Silver gloves. I have a pair of both full and fingerless gloves and to be honest the full pair make my...

More of a poll really for those who have tried the RSA Silver gloves. I have a p...

Blue-Bunny

•12 years ago

9 Replies

Warming cream?

Not officially diagnosed (although I do have lyme disease). My hands are always cold, and they are almost always a purple/pink colour. I don't get attacks per...

Not officially diagnosed (although I do have lyme disease). My hands are always ...

miffy

•12 years ago

3 Replies

So Many Questions.....

Well 3 months after doctors "diagnosis"most people talk about 1 or 2 fingers,all mine go white toes to.Have stopped smoking after 37 years(at least that...

Well 3 months after doctors "diagnosis"most people talk about 1 or 2 fingers,all...

Montiedon

•12 years ago

5 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for February 2013

Good news!

And the waiting continues..

Very sore finger ...painful to the touch & swollen :(

Immunoglobulin G treatment

Coding and Health Unlocked

toxcillizumab

Cure with Cayenne

Back to GP...again....

Even with three pairs of gloves, the Raynaud's still gets me! been to the doctor but she says there's nothing she can do, is this true???

preparing fruit

I get Raynauds in my hands . I've tried Losartan but it made no difference and am wondering if nifedipine would help.

Dilemma: Heating or Internet?

Just found this and thought i would share ;)xx

Keeping warm at football matches

Continuous iloprost.....how long does it take to work?

Anyone noticed that the RSA site is going reaalllly slowly?

has any1 ever put a claim in against an employer? i have been told my raynauds poss caused by my last job as machine vibrated thro my hands

The Raynaud's Winter Survival Kit

tissue damage following chill blains

Has anyone used any voice activated software in relation to Raynauds or any other medical conditions and what has their experience been?

Hello kind people with Raynauds, Does anyone get the tingles all day long?

does anyone find doing more exercise help with raynauds? (mine in hands only at mo), thinking bout getting exercise bike

exercise

Mouth ulcers and raynauds connection?

Having problems with travel insurance as I have lung involvement with scleroderma

Skin rashes & large blister appearing overnight

Pre-ulcer starting on my left outside ankle

Full or Fingerless Gloves?

Warming cream?

So Many Questions.....

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