Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,409 posts

All posts for January 2013

My four year old is suffering with Raynaud's and awaiting consultation - any practical help out there?

toftsie

•11 years ago

9 Replies

How many people in this forum suffer from Restless Legs Syndrome?

I saw a few posts about RLS, and Parkinsons's meds, so I know some of you do. Just wodering how prevalent it is with Raynaud's. I manage several online support...

I saw a few posts about RLS, and Parkinsons's meds, so I know some of you do. Ju...

nightdancer

•11 years ago

9 Replies

i have got chillblaines on 2 of my fingers anyone got any cures for this? doctor gave me hydrocortisone acetate, don't seem to be helping xx

sandycharlie

•11 years ago

6 Replies

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nifedipine

well day 2 on nif and happy to say now side affects yet..haha just hope it stays this way and the tabs work....hands not to bad today as weather bit warmer but...

well day 2 on nif and happy to say now side affects yet..haha just hope it stays...

sandycharlie

•11 years ago

9 Replies

Blister like lump and bruising on my pinky toe any 1 else had or have this

Just need to no if any 1 can tell me.as I am aware I don't have raynauds in my feet. But about 4 weeks ago. I noticed a lump and bruise on my pinky toe. Only...

Just need to no if any 1 can tell me.as I am aware I don't have raynauds in my f...

tinaparkii

•11 years ago

3 Replies

Appearance of Brusing, swelling, and pain symmetrical in large toes

I have Raynaud's and maybe systemic scleroderma (I say maybe because I had a diagnosis 13 years ago with no follow up. Long story). Anyway, I have "sores" or...

I have Raynaud's and maybe systemic scleroderma (I say maybe because I had a dia...

ffrasure

•11 years ago

10 Replies

Help please with erectile dysfunction.

What help is there (or advice please) on my partner's erectile dysfunction. I believe that as a Raynaud's sufferer he may be able to get Viagra on...

What help is there (or advice please) on my partner's erectile dysfunction. I b...

toftsie

•11 years ago

2 Replies

Does anyone get pain in their wrists and ankles....?

Hi, I have had Raynauds for about the last 16 years. Apart from the usual symptoms I occasionally get a pain in my wirst, all I can describe it as its like...

Hi, I have had Raynauds for about the last 16 years. Apart from the usual sy...

Ammyj

•11 years ago

5 Replies

i have been given 10mg nifedipine to take daily has anyone got good reports on this as scared to take as heard so much bad side affects :(

sandycharlie

•11 years ago

8 Replies

DO YOU QUALIFY - £130 TOWARDS YOUR HEATING via The Warm Home Discount Scheme!!

THIS INFO FROM THE UK GOVERNMENTS WEB SITE MAY BENEFIT MANY MEMBERS CHECK BELOW IF YOUR SUPPLIER IS PART OF THE SCHEME Part 1: Overview...

THIS INFO FROM THE UK GOVERNMENTS WEB SITE MAY BENEFIT MANY MEMBERS CHECK...

Hidden

•11 years ago

6 Replies

£130 HEATING GRANT - DO YOU QUALIFY for THE WARM HOME DISCOUNT SCHEME ?? SUPPLIERS TAKING PART

A UK Government Grant Scheme started in 2011 which will run for 4 years. APPLY asap Sept to March NOTE: See below for suppliers taking part - It...

A UK Government Grant Scheme started in 2011 which will run for 4 years. A...

Hidden

•11 years ago

3 Replies

Has anyone tried the Nutribullet?

I was wondering if it is better than the regular blenders. I have swallowing issues and thought if it makes the food smoother? Any ideas or unbiased reviews...

I was wondering if it is better than the regular blenders. I have swallowing i...

Susl

•11 years ago

2 Replies

has anyone found caffeine makes raynauds worse as i heard this, i am newly diagnosed and trying anythink to help thanks

sandycharlie

•11 years ago

6 Replies

I have raynauds & have recently developed little slit like cuts on my fingers, could these be related? Seeing rheumy in March at last.

shyanne

•11 years ago

7 Replies

will methotrexate help reynauds and diseminated sclerosis. No meds. helping now. Very swollen legs and feet and breathlessness too

Really bad hands with renauds swollen feet and legs get breathless, diagnosed diseminated(?) sclerosis also prostate cancer but PSA goes up and down. No pills...

Really bad hands with renauds swollen feet and legs get breathless, diagnosed di...

Kevla

•11 years ago

1 Reply

grant for electricity

one of your members posted last week that a £130 pounds grant was available via your energy provider , I contacted them only to be told that there was no money...

one of your members posted last week that a £130 pounds grant was available via ...

redtommy07

•11 years ago

14 Replies

Help! where can I find a qualified distributor?

Hi everyone, where can I find a qualified distributor? Our compnay is leading of electronic heated apparel and footwear&gloves. www.hyheatwear.com,...

Hi everyone, where can I find a qualified distributor? Our compnay is leading o...

hyheatwear

•11 years ago

4 Replies

Not really a question but a late report back on alternative treatment for dry mouth

Before Christmas, in answer to someone's question (think it was danacetz (don't think I've spelled that correctly, sorry) I said that I'd been advised to try...

Before Christmas, in answer to someone's question (think it was danacetz (don't ...

BarbJ

•11 years ago

Be the first to reply

Does anyone suffer bowel problems....

Hi guys hope everyone is coping well in this weather.I just wanted to know does anyone suffer with their bowels? When i wake up the first thing i do is rush...

Hi guys hope everyone is coping well in this weather.I just wanted to know does ...

fruitpastle

•11 years ago

8 Replies

OWCH !

Well the weather might be getting better but I appear to be falling apart , both of my hands are swollen and I have lost all mobility in my fingers , I can't...

Well the weather might be getting better but I appear to be falling apart , both...

TJme

•11 years ago

10 Replies

i have got two fingers where the skin has broken an sore to the touch has anyone got any ideas to help this clear up.... :(

sandycharlie

•11 years ago

11 Replies

Help!!!

HI there, I am new on here and came across this website on my search for more information about Raynaud's. The Dr's just handed me a generic printout and told...

HI there, I am new on here and came across this website on my search for more in...

Cammeronuk2

•11 years ago

8 Replies

Blobs tiny blood vessels near the cuticles

I have really bad raynauds I been to my rheumatology and they said my tiny blood vessels near the cuticles have got blobs I had to have bloods done getting...

I have really bad raynauds I been to my rheumatology and they said my tiny blood...

panthersgirl74

•11 years ago

5 Replies

No Medical Help!

Is it just me or do any other sufferers feel cut afloat with no medical help. I go to see my GP very rarely but he has no knowledge of Scleroderma although I...

Is it just me or do any other sufferers feel cut afloat with no medical help. I ...

suzy66641

•11 years ago

8 Replies

Help for my Lichen Sclerosis

I was diagnosed with Lichen Sclerosis last year,I had visited my GP several times beore the diagnosis with constant vulval itching. I was given various creams...

I was diagnosed with Lichen Sclerosis last year,I had visited my GP several time...

wendy1066

•11 years ago

3 Replies

Please give advice,

I have been blessed with a part-time job (about 20) but it is data entry and my index finger is painful and calloused at the finger tip and I am afraid it is...

I have been blessed with a part-time job (about 20) but it is data entry and my ...

danacetz

•11 years ago

8 Replies

UK Residents - Government Grant £130 a year for heating

Hi everyone, not sure how many of you are aware you can claim £130 for your electric (they only pay to the electric account as not everyone has gas). This is...

Hi everyone, not sure how many of you are aware you can claim £130 for your elec...

Hidden

•11 years ago

23 Replies

Are electric gloves any good and if so where can I buy them?

I'm often now getting a few fingers going completly white to the knuckle joint and its both incredibly painful when the blood starts circulating again - any...

I'm often now getting a few fingers going completly white to the knuckle joint a...

Flimey

•11 years ago

7 Replies

Swollen itchy fingers :((( any remedies ?

I look like I've got sausage fingers - & toes chilblains are a nightmare :(( Can you help ?Took Nifedipine yesterday & all it did was give me a headache &...

I look like I've got sausage fingers - & toes chilblains are a nightmare :(( Ca...

AliW

•11 years ago

11 Replies

silk socks and gloves for raynauds

Kerry72

•11 years ago

20 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for January 2013

My four year old is suffering with Raynaud's and awaiting consultation - any practical help out there?

How many people in this forum suffer from Restless Legs Syndrome?

i have got chillblaines on 2 of my fingers anyone got any cures for this? doctor gave me hydrocortisone acetate, don't seem to be helping xx

nifedipine

Blister like lump and bruising on my pinky toe any 1 else had or have this

Appearance of Brusing, swelling, and pain symmetrical in large toes

Help please with erectile dysfunction.

Does anyone get pain in their wrists and ankles....?

i have been given 10mg nifedipine to take daily has anyone got good reports on this as scared to take as heard so much bad side affects :(

DO YOU QUALIFY - £130 TOWARDS YOUR HEATING via The Warm Home Discount Scheme!!

£130 HEATING GRANT - DO YOU QUALIFY for THE WARM HOME DISCOUNT SCHEME ?? SUPPLIERS TAKING PART

Has anyone tried the Nutribullet?

has anyone found caffeine makes raynauds worse as i heard this, i am newly diagnosed and trying anythink to help thanks

I have raynauds & have recently developed little slit like cuts on my fingers, could these be related? Seeing rheumy in March at last.

will methotrexate help reynauds and diseminated sclerosis. No meds. helping now. Very swollen legs and feet and breathlessness too

grant for electricity

Help! where can I find a qualified distributor?

Not really a question but a late report back on alternative treatment for dry mouth

Does anyone suffer bowel problems....

OWCH !

i have got two fingers where the skin has broken an sore to the touch has anyone got any ideas to help this clear up.... :(

Help!!!

Blobs tiny blood vessels near the cuticles

No Medical Help!

Help for my Lichen Sclerosis

Please give advice,

UK Residents - Government Grant £130 a year for heating

Are electric gloves any good and if so where can I buy them?

Swollen itchy fingers :((( any remedies ?

silk socks and gloves for raynauds

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