Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,409 posts

All posts for May 2017

LOVELY SUMMER WEATHER

Hello everybody, isn"t this weather great, the raynauds seems to like it too. I'm slapping on the SPF50, getting as much sun as I can, although if I stay...

Hello everybody, isn"t this weather great, the raynauds seems to like it too....

fairy56

•7 years ago

3 Replies

Wish I could get answers and help to stop these symptoms

Have been told I have vaso spasms really unsure to what this is and how it started and why.When asking gp and rheumatologist neither have much to say which...

Have been told I have vaso spasms really unsure to what this is and how it start...

littleones

•7 years ago

8 Replies

Is primary Raynaud's painful?

Hi, I've not really been active on this much since I joined but I think I could really benefit from the community you guys have on here. I've been having...

Hi, I've not really been active on this much since I joined but I think I could ...

slothpie

•7 years ago

2 Replies

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lower back pain following celulitus

Hi, i had severe celulitus April 22 and emergency surgery to under arm to remove an abscess on my lymph nodes and surgery to lower chest wall to clear...

Hi, i had severe celulitus April 22 and emergency surgery to under arm to remove...

Patwood

•7 years ago

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Who else gets 'caught out' ?

So this lovely weather has been amazing and has put me in the happiest of moods ever! However this type of weather keeps catching me out - I bet I'm not the...

So this lovely weather has been amazing and has put me in the happiest of moods ...

Rp321

•7 years ago

11 Replies

Confused

Has anyone been to North Western University in Chicago? precisely the "scleroderma program"? w

Has anyone been to North Western University in Chicago? precisely the "scleroder...

KingJames

•7 years ago

2 Replies

Confused

I'm 61 female and have Scleroderma/Raynaud's and suffer ulcers on my fingers, recently I had my left index finger amputated and now my ring finger on the right...

I'm 61 female and have Scleroderma/Raynaud's and suffer ulcers on my fingers, re...

KingJames

•7 years ago

2 Replies

Trying Fluoxetine(Prozac) for Raynauds

I was recently diagnosed with limited systemic sclerosis with secondary Raynauds. Honestly, the Raynauds and hand swelling has been the worst ongoing symptoms...

I was recently diagnosed with limited systemic sclerosis with secondary Raynauds...

Boisecgm13

•7 years ago

4 Replies

Mycophenolate

I have been on mycophenolate for about 4 weeks and just noticed on the advisory note that you are supposed to avoid sunlight. Does anyone know how dangerous it...

I have been on mycophenolate for about 4 weeks and just noticed on the advisory ...

newbe

•7 years ago

15 Replies

Who has uk private health insurance - worth it or not?

I've not actually been diagnosed with Scleroderma and Raynauds but I matched the symptoms myself. Private health insurance don't cover current conditions but...

I've not actually been diagnosed with Scleroderma and Raynauds but I matched the...

loadsofissues

•7 years ago

2 Replies

Cindyione

I am 62 but have been feeling much older. I have multiple ailment that are pretty intolerable that range from limited scleroderma, Raynaud's disease,...

I am 62 but have been feeling much older. I have multiple ailment that are pret...

Cindyione

•7 years ago

2 Replies

Cindyione

I read about eating a few almonds to take care of heartburn and it is working for me. I previously took two omeprozole tabs a day for my gerd and heartburn...

I read about eating a few almonds to take care of heartburn and it is working fo...

Cindyione

•7 years ago

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Throat problems

Hi All, I am diagnosed Scleroderma with swallowing difficulties. recently I have the feeling of a lump in my throat when swallowing which feels uncomfortable...

Hi All, I am diagnosed Scleroderma with swallowing difficulties. recently I have...

newton

•7 years ago

15 Replies

How Many

Just a thought. I know Scleroderma is a rare disease but how may people suffer with it in the UK?

Just a thought. I know Scleroderma is a rare disease but how may people suffer...

PaleIndian2

•7 years ago

5 Replies

Strange

After seeing the GP on Monday, we had a chat and I'm off all meds now. I saw the person at the hospital in February who said an appointment will come through...

After seeing the GP on Monday, we had a chat and I'm off all meds now. I saw the...

avtargill31

•7 years ago

16 Replies

Good news i think

Had a chance to see professor Chris Denton with my rheumatologist and 14 other medical professionals, he thinks my scleroderma was triggered by my cancer and...

Had a chance to see professor Chris Denton with my rheumatologist and 14 other m...

mad4cavs

•7 years ago

5 Replies

The royal free vitamin sheet part two

Sorry for doing it in 2 posts Sheet for vitamins from the royal Free for raynauds

Sorry for doing it in 2 posts Sheet for vitamins from the royal Free for rayna...

Sami13

•7 years ago

1 Reply

Royal free vitamin sheet part one

I was given this by the raynaulds and scleroderma team At the royal free Hi mc_clean_david Couldn't find a way to send you it in one go so have taken 2...

I was given this by the raynaulds and scleroderma team At the royal free Hi m...

Sami13

•7 years ago

5 Replies

tests for scleroderma and APS

Hi I just wanted to say a quick hello. Hope things are going OK. Im having blood tests for scleroderma and APS. My symptoms include swollen purple fingers,...

Hi I just wanted to say a quick hello. Hope things are going OK. Im having bloo...

charlieab

•7 years ago

23 Replies

Anyone else have Raynauds in their 30's

I keep being told that Raynauds is very common but in older people. (Sorry not calling u all old!!). But I'm 33 and have got hit with severe Raynauds 9 months...

I keep being told that Raynauds is very common but in older people. (Sorry not c...

mc_clean_david

•7 years ago

16 Replies

Diffuse schelorderma Skin scores

Hi, Just wondering what the skin scores actually mean? I was 10 in November 16 15 in December 16 and May 17 20. I will be starting on an immunsuppresesnt in...

Hi, Just wondering what the skin scores actually mean? I was 10 in November 16 1...

naila_007

•7 years ago

3 Replies

Skin rashes

Hi I have limited scleroderma fibromyalgia and arthritis in my spine and hips as well as sjorgens and raynauds the last 7 months I have a rash on my face...

Hi I have limited scleroderma fibromyalgia and arthritis in my spine and hips as...

irishgal

•7 years ago

4 Replies

Methotrexate and mycophenelate together

I have generalised morphoea. Have had 8 weeks of methotrexate - 15mg. Have just been to dermatologist who is adding in 500mg of mycophenelate twice a day....

I have generalised morphoea. Have had 8 weeks of methotrexate - 15mg. Have just ...

ChrisM28

•7 years ago

2 Replies

I'm new

My name is Marilyn I suffered Raynards 35yrs now this year my two big frozen toes have not recovered at all ...usually do in spring..they ulcerated this...

My name is Marilyn I suffered Raynards 35yrs now this year my two big frozen ...

-josephine-

•7 years ago

6 Replies

MTX Auto-Injections

I just started the 20mg of MTX injection and was wondering if one of the side effects is sluggishness. I take it at night before bed. Can anyone assist?

I just started the 20mg of MTX injection and was wondering if one of the side ef...

Marts911

•7 years ago

4 Replies

Whatever next 😂

Ok so I've just notice some of my nails have completely changed shape. Almost like a triangle. They have one long ridge running down the middle. They are...

Ok so I've just notice some of my nails have completely changed shape. Almost ...

Sami13

•7 years ago

13 Replies

Skin tightening

Hoping someone can help me. I have a diagnosis of limited cutaneous systemic sclerosis, which was diagnosed about 3 years ago have been relatively ok until...

Hoping someone can help me. I have a diagnosis of limited cutaneous systemic sc...

LittleMissH

•7 years ago

24 Replies

I need a Consultant reccomendation

East Midlands - Lincolnshire My GP does not seem to understand that I need to see a Rheumatologist despite being prescribed Adinpine for some years. Getting...

East Midlands - Lincolnshire My GP does not seem to understand that I need to se...

Moirawest

•7 years ago

7 Replies

gp request my emergency blood test since 06/05/2017 and I attended some one today dates 15/05/2017 to take my blood which she can't managed!

Hi all my friends as I said on last message scleroderma sclerosis with rynoud with hypertension with Kidny transplant . In having problems with my tummy pains...

Hi all my friends as I said on last message scleroderma sclerosis with rynoud wi...

Nurmohammed

•7 years ago

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Heat intolerance in Raynaud's?

Hello😊 I have Raynaud's and I was wondering if anyone can help me with these symptoms. I get the usual Raynaud's symptoms when I go out in winter or touch a...

Hello😊 I have Raynaud's and I was wondering if anyone can help me with these sy...

Kessa

•7 years ago

15 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for May 2017

LOVELY SUMMER WEATHER

Wish I could get answers and help to stop these symptoms

Is primary Raynaud's painful?

lower back pain following celulitus

Who else gets 'caught out' ?

Confused

Confused

Trying Fluoxetine(Prozac) for Raynauds

Mycophenolate

Who has uk private health insurance - worth it or not?

Cindyione

Cindyione

Throat problems

How Many

Strange

Good news i think

The royal free vitamin sheet part two

Royal free vitamin sheet part one

tests for scleroderma and APS

Anyone else have Raynauds in their 30's

Diffuse schelorderma Skin scores

Skin rashes

Methotrexate and mycophenelate together

I'm new

MTX Auto-Injections

Whatever next 😂

Skin tightening

I need a Consultant reccomendation

gp request my emergency blood test since 06/05/2017 and I attended some one today dates 15/05/2017 to take my blood which she can't managed!

Heat intolerance in Raynaud's?

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