Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,409 posts

All posts for October 2011

Cyclophosphamide.... HELP

I have just been told I need to start Cyclophosphamide treatment once a month for 6-12 months, has anybody else had this? And what side effects are there? As I...

I have just been told I need to start Cyclophosphamide treatment once a month fo...

•12 years ago

Typing and Reynaud's

I've just found out that I've got Reynaud's, so this is all new to me. I've read that white finger can come from using vibrating tools, but what about from...

I've just found out that I've got Reynaud's, so this is all new to me. I've read...

•13 years ago

Have been recommended ginkgo biloba for raynauds(high strengh 6,000 mg Seems to be helping although only been on a short time so too soon to

tell Have heard such a high dose can cause retinal bleed Does anyone have any info on this? Or has any one had experience using ginkgo?

tell Have heard such a high dose can cause retinal bleed Does anyone have any in...

•13 years ago

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BOTOX - How do you go about getting it?!

Hi, I have systemic sclerosis and raynaud's and get severe ulcers on my fingers that just won't go!! I'm on viagra at the minute, but only for a short period....

Hi, I have systemic sclerosis and raynaud's and get severe ulcers on my fingers ...

•13 years ago

I have a 3 year old granddaughter that has been diagnosed with Raynauds does anyone else out there have some one this young with it?

The local Pediatrician is planning a drugs trial with my granddaughter and I am worried so was wondering if there are other children out there with it and what...

The local Pediatrician is planning a drugs trial with my granddaughter and I am ...

•13 years ago

I think i had 'forgotten' what it feels like to have raynauds.

Time to moan!! Im fed up with the cold all ready,. my fingers are swelling and have that really annoying ache with random shooting pains that go up each...

Time to moan!! Im fed up with the cold all ready,. my fingers are swelling an...

•13 years ago

No Pain, just hot hands and feet at night. Anyone else?

I was diagnosed with mild Raynaud's many years ago, but I don't think it is related. In the past, this symptom has waked me up. I go to the tub and run cold...

I was diagnosed with mild Raynaud's many years ago, but I don't think it is rela...

•13 years ago

Help!

my mum was diagnosed with raynaulds &scleroderma about 6 years ago after years of doctors not knowing what was wrong. This week she has been admitted to...

my mum was diagnosed with raynaulds &scleroderma about 6 years ago after years o...

•13 years ago

Flying

does any1 no if u can fly with skeroderma raynards epelepsy and phybrosis on the lungs plz I am going threw he'll with my family because I don't want to fly...

does any1 no if u can fly with skeroderma raynards epelepsy and phybrosis on the...

•13 years ago

Stressed?

Just wondering, does anyone else find that stress/anger/upset can trigger your Raynauds? I'm having a hard time at school, starting A levels amongst many...

Just wondering, does anyone else find that stress/anger/upset can trigger your R...

•13 years ago

Sklero and the lungs

as anyone developed skleroderma on there lungs just been told I have in right lung 20% really taking it's toll on me doctor wants me to go on chemotherapy...

as anyone developed skleroderma on there lungs just been told I have in right lu...

•13 years ago

So Glad I Found You

Hi everyone, This is the first time I've 'met' anyone else who has Raynaud's and I'm so relieved after reading some of your posts. I got diagnosed 3 years...

Hi everyone, This is the first time I've 'met' anyone else who has Raynaud's ...

•13 years ago

I have developed revolting ringworm on my feet which seems to be spreading in spite of the anti fungal cream I got from the chemist

Is it in anyway connected to the scleroderma? I probably will go to the doctor this week, but just wondered if it's the compromised immune system/skin problems...

Is it in anyway connected to the scleroderma? I probably will go to the doctor t...

•13 years ago

Does anyone else with raynauds, suffer with nosebleeds

or other ENT problems such as dry/ sore mouth

or other ENT problems such as dry/ sore mouth

•13 years ago

does anyone else with raynauds, have trouble sleeping?

•13 years ago

Where to from here?

Help. Two and a half years ago I was diagnosed with RA then it was Chronic Regional Pain Syndrome then it was Connective Tissue Disease with scleroderma, now...

Help. Two and a half years ago I was diagnosed with RA then it was Chronic Regio...

•13 years ago

i first went to the doctors in february with pins and needles and numbness in my feet i had blood tests all clear my fingers had been going

white and numb but i put that down to working in a cold garage as there was no heating over the worst of last winter and i still had to work i was diagnosed...

white and numb but i put that down to working in a cold garage as there was no h...

•13 years ago

Fed Up

I am quite frankly fed up of my Raynauds. It's making me so fed up and upset that I'm left out of socail activites because I can't be outside, I have trouble...

I am quite frankly fed up of my Raynauds. It's making me so fed up and upset tha...

•13 years ago

How many Raynaud's attacks per day is safe?

Hello all. I am on Nifedipine for Raynaud's (secondary to rheumatoid arthritis). I was getting about 15 attacks per day before going on medication. I still get...

Hello all. I am on Nifedipine for Raynaud's (secondary to rheumatoid arthritis)....

•13 years ago

Here we go again at the Doctors

Just been the Doctors explaining what I was going through, so dam angry to be told its all in my head and stress related in other words maybe I‘m clinically...

Just been the Doctors explaining what I was going through, so dam angry to be to...

•13 years ago

Any advice welcome

I have been suffering with joint pain for about 10 years it has recently got worse all my blood tests are normal i have just been diagnosed with reynoyds but...

I have been suffering with joint pain for about 10 years it has recently got wor...

•13 years ago