Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,113 members•5,638 posts

All posts for May 2022

Hydroxychloroquine Sulphate

My consultant has prescriped Hydroxychloroquine Sulphate to treat my Secondary Raynaud's. I would be very grateful if others who have also been prescibed this...

My consultant has prescriped Hydroxychloroquine Sulphate to treat my Secondary R...

•3 years ago

hypersensitivity reactions (blocked nose, burning, or itching skin, ea) before lupus sjorgen and scleroderma

Dear all with Lupus, sjorgen syndrome and scleroderma, I have a question I hope you can all help me with. Have you had symptoms like a blocked nose, very...

Dear all with Lupus, sjorgen syndrome and scleroderma, I have a question I hop...

•3 years ago

Dry eyes

I have Raynards from birth. With very. Dry skin that l oil every day with baby oil or almond oil and a layer of lock in moisture cream.. Over the past two...

I have Raynards from birth. With very. Dry skin that l oil every day with baby o...

•3 years ago

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Domperidone and hydroxychloroquine

Hello everyone, I wondered if any of you have experience of taking both these meds? I’ve recently been prescribed Domperidone for oesophageal spasms, nausea...

Hello everyone, I wondered if any of you have experience of taking both these me...

•3 years ago

Weight loss

I was diagnosed with limited systemic scleroderma in 2018: one of the first symptoms was dramatic loss of weight – nearly a stone and a half in six months. The...

I was diagnosed with limited systemic scleroderma in 2018: one of the first symp...

•3 years ago

Nail Surgery, with Raynaud's and Erythromelalgia.

Hi, community. The sun is shining and the birds are singing, or in the case of the starlings, squabbling over the bird feeders. They are just like a bunch of...

Hi, community. The sun is shining and the birds are singing, or in the case of t...

•3 years ago

Quick question

Has anyone been treated for Erythromelalgia please and if so who did you see ? Thank you 🙏

Has anyone been treated for Erythromelalgia please and if so who did you see ? ...

•3 years ago

Help needed please

Anyone know if I should be on any medication as I have Systemic Scleroderma and Parenchymal Pulmonary Pathology? Don't seem to be getting anywhere as...

Anyone know if I should be on any medication as I have Systemic Scleroderma and ...

•3 years ago

Discomfort from dry eyes.

Has anyone else had to stop driving because of the discomfort from dry eyes? When I see the optician she always says my distance vision is OK for driving but...

Has anyone else had to stop driving because of the discomfort from dry eyes? W...

•3 years ago

Methotrexate and infections

Since I have been on methotrexate for my scleroderma ( for about a year now) I am struggling with repeated chest infections and seemingly ever returning...

Since I have been on methotrexate for my scleroderma ( for about a year now) I a...

•3 years ago

Covid protection advice/measures for Scleroderma

I'm just curious: what kind of advice are you getting about Covid protection from your doctors - and more importantly, what measures do you actually follow?...

I'm just curious: what kind of advice are you getting about Covid protection fro...

•3 years ago

Thoracoscopic sympathectomy

Hi, I just wondered if any of you lovely people have had a thoracoscopic sympathectomy for raynaurds?

Hi, I just wondered if any of you lovely people have had a thoracoscopic sympath...

•3 years ago

Does Nifedipine make ankles swell up?

Hello from New Zealand. I have been corresponding with a lady who has just been diagnosed by her GP with possible Scleroderma. The lady had been to a...

Hello from New Zealand. I have been corresponding with a lady who has just bee...

•3 years ago