In 2012 I telephoned to say I had not received an appointment all year and was firstly told I had been discharged. When I said I had the results of my heart echo which the operator had handed to me to submit to the consultant at my next appointment and was yet to be analysed, I was given an appointment immediately over the phone. My GP was then forced to write to them asking for my yearly Iloprost admission. When I saw the rheumy she asked why I had not attended for my lung function test and heart echo. I handed her the test results which proved I had attended. "Oh yes" she said sheepishly. "So you did". I then get an appointment for my Iloprost thanks to my gp's intervention. I am handed my discharge summary upon discharge from this, and it states on it ' please make a rheumatology appt for July '13. July is here, so last Friday I rang Rheumatology apps to enquire after the appointment. They tell me no appointment is indicated on their computer for me. " you may have been discharged" she says. I phone my consultant's secretary. There is an answer phone and I leave my name, telephone number, and mrn number. Someone calls me back to say the secretary is on holiday, and what do I want. I explain. Nothing on computer. I know this. Phone PITUITARY since the discharge notes would have come from there. I do. No answer. This is getting ver Kafkaresque! Is this sort of thing only happening to me? Is it right that a progressive and life threatening illness such as Scleroderma should be so overlooked and can they just discharge a patient suffering with it without warning? I am getting quite paranoid as if they are reducing the number of patients on their books. Please let me know if anybody out there is having problems with their appointments or anything related. Best wishes to all .
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