Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,408 posts

All posts for January 2018

Iron pills

I am anemic so am prescribed iron pills. The trouble is they give me constipation. My gp was asked to change to a different pill but are mucking about and not...

I am anemic so am prescribed iron pills. The trouble is they give me constipatio...

Inamoment

•6 years ago

6 Replies

Diffused scleroderma and eye problems

Just a query really. Has anyone else suffered with an eye condition whilst taking micophenolate? During the last couple of weeks the vision in my left eye has...

Just a query really. Has anyone else suffered with an eye condition whilst taki...

kimmo

•6 years ago

8 Replies

Electric toothbrushes

Ok so been a while but I was wondering what you fellow Raynauds folks use when it comes to electric toothbrushes? I’ve tried using electric shaver when I first...

Ok so been a while but I was wondering what you fellow Raynauds folks use when i...

james87

•6 years ago

6 Replies

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High CRP and ESR for the first time ever in bloods since 2015.

Hi all, I had been feeling unwell for 6 days and knew I needed antibiotics but put off seeing my GP until after I had my planned appointment for extensive...

Hi all, I had been feeling unwell for 6 days and knew I needed antibiotics but p...

Queencara78

•6 years ago

2 Replies

Very dry skin on hands

Is this what happens to your skin when you have limited systemic scleroderna? Many thanks.

Is this what happens to your skin when you have limited systemic scleroderna? Ma...

Rudiguer

•6 years ago

13 Replies

Prominent veins on fingers

Hello, I was wondering if anyone has had prominent veins on the fingers and hands. Not sure what is happening

Hello, I was wondering if anyone has had prominent veins on the fingers and han...

agnbg0826

•6 years ago

14 Replies

Raynauds

My 12 year old has secondary Raynauds with RA. We live in Utah where the Winters are doing a number on her Raynauds. Should we move to Tucson, Arizona where...

My 12 year old has secondary Raynauds with RA. We live in Utah where the Winters...

Mypoorbaby

•6 years ago

8 Replies

Hi I am Seaside88

Hi everyone I have just realized I have not introduced myself. I am 64 and I suffer with a long list of conditions including Crest, Limited Systemic Sclerosis,...

Hi everyone I have just realized I have not introduced myself. I am 64 and I suf...

Seaside88

•6 years ago

2 Replies

Too young to die

I've got less than a year to live I've been puking for days in the hospital still going on 6 months I'm desperate to getting well its so gross my puke is dark...

I've got less than a year to live I've been puking for days in the hospital stil...

Dorothy1221

•6 years ago

20 Replies

LINX reflux management, does it work

Has anyone with systemic sclerosis tried the LINX reflux management system. I take PPI's and avoid acidic and fatty foods but it's still a nightmare.

Has anyone with systemic sclerosis tried the LINX reflux management system. I ta...

maur60

•6 years ago

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Intestinal bacterial overgrowth

Hi Everyone, Can anyone advise me please..... Is it Endoscopy or Gastroscoy tha you need to have overgrowth diagnosed? Thanks everyone. Fuchia

Hi Everyone, Can anyone advise me please..... Is it Endoscopy or Gastroscoy tha ...

Fuchia

•6 years ago

10 Replies

Blood splinters

Hey guys! I hope your all okay, just a quick one... does anyone get blood splinters under the finger nails ..? I’ve had them ever since I developed...

Hey guys! I hope your all okay, just a quick one... does anyone get blood splin...

JazPont

•6 years ago

4 Replies

General prognosis years after diagnosis.

Hello to anyone reading 👋 Bit of background, Raynauds sufferer for 11 years which got progressively worse the last 3-4 years. Doctors always thought it might...

Hello to anyone reading 👋 Bit of background, Raynauds sufferer for 11 years wh...

-missymoo

•6 years ago

14 Replies

Ulcers on fingertips

Hi my name is Ramina and I have been diagnosed with Lupus, MCTD and Raynaud’s. I have been suffering with 3 ulcers on my index fingers. I have undergone...

Hi my name is Ramina and I have been diagnosed with Lupus, MCTD and Raynaud’s. I...

Ramina

•6 years ago

9 Replies

Plants for Pain Control

Hello to all. I am in US. In chronic pain. Being treated by a great pain clinic. But the opioid crisis has changed people’s lives now. Does anyone use Kratom...

Hello to all. I am in US. In chronic pain. Being treated by a great pain clinic....

Hidden

•6 years ago

2 Replies

Newly diagnosed

Hello, I am learning about Scleroderma, ideas what to expect, different types of treatments, how to explain to family members. I have started taking CellCept...

Hello, I am learning about Scleroderma, ideas what to expect, different types of...

lennyplus5

•6 years ago

9 Replies

Mucositis

I have Systemic Sclerosis (no skin involvement- all internal), I also have Sjogrens. After almost 3 years of a permanently sore mouth I have a diagnosis of...

I have Systemic Sclerosis (no skin involvement- all internal), I also have Sjogr...

janetfmauk

•6 years ago

8 Replies

Raynauds

Hi I have had Raynauds for the last 18yrs secondary to SSc and last week my Rheumatologist diagnosed that I now have it in my tongue, it either goes white or...

Hi I have had Raynauds for the last 18yrs secondary to SSc and last week my Rheu...

Joan59

•6 years ago

3 Replies

Electricity Bill help? 130GBP?

Has anyone had luck with their energy supplier giving the 130 GBP grant for your elec bill? How do you go about it please? There are some old posts over 5...

Has anyone had luck with their energy supplier giving the 130 GBP grant for your...

Shaunap999

•6 years ago

2 Replies

triamcinolone acetonide for raynauds ulcers

Has anyone used triamcinolone acetonide for fingertips to avoid ulcers?

psob

•6 years ago

4 Replies

Autoimmune disease?

Hi everyone, is Arthritis an Autoimmune disease?

Queencara78

•6 years ago

2 Replies

Ugg type boots

Thank you to everyone who replied to my previous post about Ugg boots. I decided to buy a pair of Kiwi boots: the ultimate tall boot. These have a very thick...

Thank you to everyone who replied to my previous post about Ugg boots. I decided...

lynntregaron

•6 years ago

7 Replies

Living with scleroderma and pulmonary hypertension and inactive non-Hodgkins lymphoma.

I was diagnosed with CREST when I was 35 years old. I was diagnosed with pulmonary hypertension in 2013. ( twelve percent of scleroderma patients will get...

I was diagnosed with CREST when I was 35 years old. I was diagnosed with pulmona...

SherrySanford65

•6 years ago

4 Replies

Mycophenolate

Hi All! I was diagnosed with Systemic Scleroderma with Raynaud’s eight months ago. I have a strongly positive ANA raised ESR and anaemia,GAVE (watermelon...

Hi All! I was diagnosed with Systemic Scleroderma with Raynaud’s eight months ag...

Misty2552017

•6 years ago

21 Replies

Yay Rheumy time at last :)

Is it normal to be excited to see your rheumy ? Haha. So today I have all my results back, and hoping for a solid diagnosis and a treatment plan :) I just...

Is it normal to be excited to see your rheumy ? Haha. So today I have all my res...

JazPont

•6 years ago

2 Replies

Scleroderma - hand surgery

Hey all hope u r well.... has anyone had hand surgery to stop the claw affect or which treatment has worked for u???

Hey all hope u r well.... has anyone had hand surgery to stop the claw affect o...

Kc_1411

•6 years ago

13 Replies

Glomerular Filtration Result

Hello all, I been on mycophenolate 1gr/day for 15weeks now. My recent blood test results show that my glomerular filtration is 88 ml/min/1.73m2, while the...

Hello all, I been on mycophenolate 1gr/day for 15weeks now. My recent blood tes...

Maharlika

•6 years ago

9 Replies

Ok guys another dilemma ..Reflux and heartburn doing my head in.I have read that omeprazole and Diltiazem could be the cause

Feel like I'm going round in circles trying to take something to fix something else.I have GERD and my breath is foul.I have young children who turn away from...

Feel like I'm going round in circles trying to take something to fix something e...

fruitpastle

•6 years ago

4 Replies

What can I get for balanitis

I'm using canasteen but it's not working have had it from October

cinnamondt

•6 years ago

1 Reply

Alcohol and Raynauds

Hi, I've been suffering from secondary raynauds for about 13 yrs, I've changed my lifestyle habits drastically a number of times since then as I've had some...

Hi, I've been suffering from secondary raynauds for about 13 yrs, I've changed m...

Greengardens

•6 years ago

1 Reply

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for January 2018

Iron pills

Diffused scleroderma and eye problems

Electric toothbrushes

High CRP and ESR for the first time ever in bloods since 2015.

Very dry skin on hands

Prominent veins on fingers

Raynauds

Hi I am Seaside88

Too young to die

LINX reflux management, does it work

Intestinal bacterial overgrowth

Blood splinters

General prognosis years after diagnosis.

Ulcers on fingertips

Plants for Pain Control

Newly diagnosed

Mucositis

Raynauds

Electricity Bill help? 130GBP?

triamcinolone acetonide for raynauds ulcers

Autoimmune disease?

Ugg type boots

Living with scleroderma and pulmonary hypertension and inactive non-Hodgkins lymphoma.

Mycophenolate

Yay Rheumy time at last :)

Scleroderma - hand surgery

Glomerular Filtration Result

Ok guys another dilemma ..Reflux and heartburn doing my head in.I have read that omeprazole and Diltiazem could be the cause

What can I get for balanitis

Alcohol and Raynauds

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