Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,823 members • 5,405 posts

All posts for March 2018

Advice

Hi Just wanted to know will I make my raynauds worse if I am working regularly in cold conditions that are causing my hands to have painful attacks.

Hi Just wanted to know will I make my raynauds worse if I am working regularly i...

happysandy360

•6 years ago

12 Replies

A VERY BIG THANK YOU

Hello everybody, thanks for all your smiles and waves xxxx. You will all be happy to know that your support has helped me, and that this inconvenience that...

Hello everybody, thanks for all your smiles and waves xxxx. You will all be hap...

fairy56

•6 years ago

5 Replies

constant runny nose

Hiya, I'm new to this site. I have Raynauds, i have suffered from 'dead' fingers for quite a few years but for the last couple of winters i have acquired a...

Hiya, I'm new to this site. I have Raynauds, i have suffered from 'dead' fingers...

ramona63

•6 years ago

1 Reply

Want to take advantage of all our features? Just log in!

Bit of a hiccup!

Hi everybody, had a hospital appointment yesterday, didn" t go as well as expected, so calling everybody out there, I would really appreciate you all sending...

Hi everybody, had a hospital appointment yesterday, didn" t go as well as expect...

fairy56

•6 years ago

19 Replies

All new to me! Help!

Hi! I’m just looking for some advice and support really. This is all so new to me! I was referred to a specialist in September 2017 after experiencing some...

Hi! I’m just looking for some advice and support really. This is all so new to m...

Dani_7

•6 years ago

14 Replies

Good awareness raising article.

In today's Daily Mail http://www.dailymail.co.uk/tvshowbiz/article-5561715/Jenni-Falconer-reveals-battle-Raynauds-disease.html

In today's Daily Mail http://www.dailymail.co.uk/tvshowbiz/article-5561715/Jenni...

amd21

•6 years ago

1 Reply

Food getting stuck, is this the start?

Hi all I’ve limited cutaneous systemic sclerosis, I have severe secondary Raynauds, Telangiectasia, acid reflux, slight tightening of the skin mostly my hands,...

Hi all I’ve limited cutaneous systemic sclerosis, I have severe secondary Raynau...

-missymoo

•6 years ago

9 Replies

Freaking out

Hi everyone. I woke up this morning and my hands were swollen as usual but now my feet are severely swollen and so are my lips. I always thought my feet were...

Hi everyone. I woke up this morning and my hands were swollen as usual but now m...

Mecca4lif

•6 years ago

6 Replies

Blood pressure and Sildenafil

I have been on Sildenafil for 2weeks now. On 1 morning, 1 evening and supposedly building up to 3 a day. I have been on medication for many years for blood...

I have been on Sildenafil for 2weeks now. On 1 morning, 1 evening and supposedly...

Fuchia

•6 years ago

14 Replies

Catch up news

Hello everybody, I hope you are enjoying the slightly warmer weather and the lighter nights. Anyway, I had a hospital appointment last week, came away having...

Hello everybody, I hope you are enjoying the slightly warmer weather and the lig...

fairy56

•6 years ago

3 Replies

Raynauds attacks

Hi everyone. I have secondary raynauds due to systemic sclerosis and was wondering what constitutes an attack? I used to get complete and very obvious colour...

Hi everyone. I have secondary raynauds due to systemic sclerosis and was wonderi...

Sylviaherring

•6 years ago

4 Replies

CBD oil

Hey guys!! Has anyone tried taking cannabis oil forbtheyre symptoms.. i am a big weirdo when it comes to man made medicines, i think theu cause too much...

Hey guys!! Has anyone tried taking cannabis oil forbtheyre symptoms.. i am a big...

Rebecca1993Foster

•6 years ago

1 Reply

Hydroxychloroquine

Hello, has anyone been on Hydroxychloroquine and suffered with an even drier mouth than usual, which has made my mouth unbearably sore that I could hardly eat....

Hello, has anyone been on Hydroxychloroquine and suffered with an even drier mou...

Duttie

•6 years ago

3 Replies

TREATMENTS

Hi, I joined the group today, I have CREST syndrome. Can any one recommend a topical cream or treatment for my hands. I have sores that doesn't heal - or heals...

Hi, I joined the group today, I have CREST syndrome. Can any one recommend a top...

bermin1081

•6 years ago

5 Replies

Coming back?!

Hey guys, I'm so seeing if anyone has managed to keep there scleroderma at bay for a while? I've just had a doctor' app and I have to be referred again as...

Hey guys, I'm so seeing if anyone has managed to keep there scleroderma at bay f...

Rebecca1993Foster

•6 years ago

13 Replies

Confirmation of meeting in Birmingham is 01/08/18 approx. 12 midday

Hi Folks, I'm not going to book the venue as I don't think it'll be that busy but think Wednesday 1st August is best. The time will be about 12.00pm midday...

Hi Folks, I'm not going to book the venue as I don't think it'll be that busy b...

avtargill31

•6 years ago

11 Replies

Hot hands at night

Hi all - I have Raynaud's and recently started having hot hands at night. The heat is so intense it keeps me up. I run cold water on them and that seems to...

Hi all - I have Raynaud's and recently started having hot hands at night. The h...

Wendy60616

•6 years ago

6 Replies

Low oxygen levels

Hi all I have secondary Raynauds and at a visit to a GP because I was struggling with my breathing, my sats were tested but the oxygen levels in both of my...

Hi all I have secondary Raynauds and at a visit to a GP because I was struggling...

Clm1978

•6 years ago

7 Replies

Myeloprolifertive disordep & raynauds?

Hi, new to site. I was diagnosed with above rare bone marrow disorder around 10yrs ago.suspected raynauds for last couple of yrs.got to have...

Hi, new to site. I was diagnosed with above rare bone marrow disorder arou...

Tico

•6 years ago

2 Replies

Crest SSC ..can anyone advise ?

Hi all, Was wondering if anyone else on here has developed neuropathy in the arms and legs due to there Crest... Also My Liver gamma GT level is 556 ... a...

Hi all, Was wondering if anyone else on here has developed neuropathy in the arm...

catkar

•6 years ago

10 Replies

Bristol

Anyone on here from Bristol? I want to meet up with people that have the same condition as me.. scloroderma morphea! To talk about coping with medicines and...

Anyone on here from Bristol? I want to meet up with people that have the same co...

Rebecca1993Foster

•6 years ago

Be the first to reply

Hi, this is my first time ever...

Hi, this is my first time ever posting like This! I normally keep myself to my self but latley I've been feeling really down about my scloroderma like it's...

Hi, this is my first time ever posting like This! I normally keep myself to my s...

Rebecca1993Foster

•6 years ago

4 Replies

Hello everyone!

I am so glad to be here. I have an antibody marker for scleroderma but have only been diagnosed with undifferentiated connective tissue disease and like...

I am so glad to be here. I have an antibody marker for scleroderma but have only...

Harrell0323

•6 years ago

13 Replies

Noone answers me

I have a few posts on here. Noone has answered me. I'm in Florida. Guess I need to find another support group. Thanks anyways

I have a few posts on here. Noone has answered me. I'm in Florida. Guess I need ...

Susanissufferingtoo

•6 years ago

25 Replies

Conflicting Blood test results

Hi everyone, I was diagnosed with scleroderma sine scleroderma last July with only lung involvement. My question to you all is has anyone else had numerous...

Hi everyone, I was diagnosed with scleroderma sine scleroderma last July with o...

Hidden

•6 years ago

7 Replies

Meh

I’m a very positive, optimistic person! I have a lot of patience and understanding. I never moan, I never complain, and I take everything in my stride, but I’m...

I’m a very positive, optimistic person! I have a lot of patience and understandi...

JazPont

•6 years ago

13 Replies

Sore elbows

Hey all, Has anyone got ulcers on there elbows? My husband is really suffering with very painful elbows I think that they are ulcers on the end similar to the...

Hey all, Has anyone got ulcers on there elbows? My husband is really suffering ...

Kc_1411

•6 years ago

4 Replies

Handwarmers for treating Raynaud's

Hi there, I suffer with Raynaud's since I had my first daughter 9 years ago, it started with only one or two fingers at the time but now it is getting more...

Hi there, I suffer with Raynaud's since I had my first daughter 9 years ago, it...

warmheartz

•6 years ago

8 Replies

FINGER CUTS

Hello everyone,I just became a member as I was reading the posts from those like me who suffer from finger cut and ulcers.I use to think mine was caused by me...

Hello everyone,I just became a member as I was reading the posts from those like...

Southgas

•6 years ago

1 Reply

Systemic sclerosis and memory/confusion..?

Hi there, My dad has systemic sclerosis/scleroderma. He’s in quite a bad way with his elbows and hands at the moment. Sleeps badly coz of pain, has to change...

Hi there, My dad has systemic sclerosis/scleroderma. He’s in quite a bad way wit...

Fudgel

•6 years ago

6 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for March 2018

Advice

A VERY BIG THANK YOU

constant runny nose

Bit of a hiccup!

All new to me! Help!

Good awareness raising article.

Food getting stuck, is this the start?

Freaking out

Blood pressure and Sildenafil

Catch up news

Raynauds attacks

CBD oil

Hydroxychloroquine

TREATMENTS

Coming back?!

Confirmation of meeting in Birmingham is 01/08/18 approx. 12 midday

Hot hands at night

Low oxygen levels

Myeloprolifertive disordep & raynauds?

Crest SSC ..can anyone advise ?

Bristol

Hi, this is my first time ever...

Hello everyone!

Noone answers me

Conflicting Blood test results

Meh

Sore elbows

Handwarmers for treating Raynaud's

FINGER CUTS

Systemic sclerosis and memory/confusion..?

Search posts

Pinned Posts

Latest poll

How do you pronounce Raynaud's? Listen to English Cambridge Dictionary: http://bit.ly/2DmGhmz Vote now. If other then reply below.

Topics

Archive