Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,410 posts

All posts for March 2022

Metroclopramide for SIBO related Scleroderma

Hello there, I an struggling with gut related problems which have worsened in recent two years. I’m taking antibiotics often with only couple of weeks gap but...

Hello there, I an struggling with gut related problems which have worsened in re...

•2 years ago

Calcinosis

Hi all Hope you are all keeping well. I have pretty bad Calcinosis in my left knee, had it for a number of years. It is incredibly painful but I cope with it....

Hi all Hope you are all keeping well. I have pretty bad Calcinosis in my left kn...

•2 years ago

Dental advice

Hi I have CREST and diffuse cutaneous scleroderma. Recently having problems with molar which dentist thinks may be abscess and prescribed antibiotics and...

Hi I have CREST and diffuse cutaneous scleroderma. Recently having problems with...

•2 years ago

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Potential diffuse sytematic scleroderma

Hi everyone. About a month ago I got a positive test come back specifically for the anti-RNA polyermase III anti-body which is strongly associated with diffuse...

Hi everyone. About a month ago I got a positive test come back specifically for ...

•2 years ago

Scleroderma - mouth issues

Hi 👋 Over the last 6 months or so I’ve been suffering with mouth issues. Very dry mouth/tongue and ulcers. The inside of my mouth/cheeks are so sore, I...

Hi 👋 Over the last 6 months or so I’ve been suffering with mouth issues. Very d...

•2 years ago

Electric wheelchair

I am a patient of systemic sclerosis. My disease has made me disabled; it is mainly affecting my leg and feet; I am struggling with walking, so I am thinking...

I am a patient of systemic sclerosis. My disease has made me disabled; it is mai...

•2 years ago

Crest and Sjorgrens.... I have such a dry mouth it is affecting my whole life ... Any advise would be appreciated .

Hi All I'm not sure why i'm asking or what i'm asking , but more recently My dry mouth is on a permanent flare up . Its takes ages to eat food as there is not...

Hi All I'm not sure why i'm asking or what i'm asking , but more recently My dry...

•2 years ago

Lumps of Hard Skin on fingers

I have suffered with Raynaulds for years since I was a young girl, and sometimes now too, just the other months I realised I am getting hard skin on my fingers...

I have suffered with Raynaulds for years since I was a young girl, and sometimes...

letdownbyasystem

•2 years ago

Blood results and Centromere

My doctor said I have CREST based on blood results and I am awaiting a Rheumatology appointment. U1RNP ab is 6.8 u/ml and normal is under 5 u/ml. The...

My doctor said I have CREST based on blood results and I am awaiting a Rheumatol...

purpleknitter99

•2 years ago

Acupuncture

I am a 76 year old woman in good health with Raynaud's and recently have redness and tingling in my toes Has anyone tried acupuncture

I am a 76 year old woman in good health with Raynaud's and recently have redness...

•2 years ago

Steroid for Raynaud's

Can anyone help was with my reumatology yest have exhausted all forms of treatment for Raynaud's and done iloprost infusion with no help, hands are now really...

Can anyone help was with my reumatology yest have exhausted all forms of treatme...

•2 years ago

Scleromytosis Rituximab

Hi all I had my appointment at royal free in London and they actually listened!! They have a high suspicion of myositis as well as scleroderma, they have...

Hi all I had my appointment at royal free in London and they actually listened!!...

•2 years ago

No. Go Endoscopy

No go Endoscopy! Hi BKart, Very good to hear from you before I went for the endoscopy yesterday. After several hours in the hospital ( they insisted on a...

No go Endoscopy! Hi BKart, Very good to hear from you before I went for the end...

•2 years ago

Hoping everyone has a good weekend

Stay warm and rest.

Stay warm and rest.

•2 years ago

Fingerless gloves

Hi. Does anyone have any advice on fingerless gloves? Looking for something that will help maintain circulation in my fingers but that I can still work at my...

Hi. Does anyone have any advice on fingerless gloves? Looking for something that...

•2 years ago

Pregabalin or gabapentin with ILD?

Does anyone have experience of taking pregabalin or gabapentin for fibromyalgia if they have SSc with interstitial lung disease? My doctor has just mentioned...

Does anyone have experience of taking pregabalin or gabapentin for fibromyalgia ...

•2 years ago

Deep paper like cuts on my fingers

I get these paper like cuts on my hands now for years and they hurt really bad. I now have 8 of my 10 fingers with bandaids because they bleed all the time....

I get these paper like cuts on my hands now for years and they hurt really bad. ...

•2 years ago