Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,826 members • 5,405 posts

All posts for July 2012

specialist help with scleroderma

hi there haven't ever written on blogs etc... my mum has been diagnosed as having Scleroderma - the drs are checking the extent of it, but its going to be at...

hi there haven't ever written on blogs etc... my mum has been diagnosed as havi...

dizzyangel

•12 years ago

13 Replies

Hi, does anyone know if I should be feeling a little bit better as i had tear plugs put in 20 days ago as my eyes are still burning badly?

Hi there. Some of you know that a little while ago I had tear plugs put in due to very dry/burning eyes. It's been about 20 days since then but my eyes are...

Hi there. Some of you know that a little while ago I had tear plugs put in due ...

Giny

•12 years ago

1 Reply

Why do my replies to members questions come up on the side as DELETE and not REPORT like everybody elses, what as i doing wrong ?

AnnieMc

•12 years ago

1 Reply

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serederin

hi I recently had illoprost and I do think it has improved things to a degree however I a still have to take my other tablets for many years I have taken a...

hi I recently had illoprost and I do think it has improved things to a degree h...

britty

•12 years ago

2 Replies

I have the limited form of Scleroderma. I have olive colored skin with small white patches on my arms. Anyone else have this problem?

Leann

•12 years ago

13 Replies

Has anyone with scleroderma in the lungs, actually had a straight answer regarding the prognosis.

Consultants seem half afraid to let me know. Obviously I know it's different for everyone,I just want worse or best case scenario's. Can anyone tell me please?

Consultants seem half afraid to let me know. Obviously I know it's different for...

SandraMarie

•12 years ago

33 Replies

I have been on amlodipine for Raynauds, doctor changed to cardizem & aspirin due to heart beat increase.

So does this mean i am getting worse? I have reflux, raynaurds, heart issue...when does it stop..pleasse help any advise :)

So does this mean i am getting worse? I have reflux, raynaurds, heart issue...w...

bella99

•12 years ago

5 Replies

Has anyone out there been mis-diagnoised with Raynaurds to find out later that they actually had Buergers Disease?

I have been diagnoised with Buergers Disease and have currently over the last year lost 8 of my ten fingers by amputation due to circulation problems : ( I,...

I have been diagnoised with Buergers Disease and have currently over the last ye...

Debbie-Ouch

•12 years ago

2 Replies

I have Scleroderma/Lung Fibrosis and have had 6 Cyclophosphmide infusions. I am now on Mycophenolate 500mg.

This dosage has been increased to 500mg twice daily this past week and I have suffered adverse reactions. Do others suffer from adverse reactions to this...

This dosage has been increased to 500mg twice daily this past week and I have su...

Carolanne

•12 years ago

4 Replies

Early signs of scleroderma??

I have some signs of scleroderma and I was wondering how long it takes to develop/whether it is likely to develop further? I am 22 and have had Raynauds for...

I have some signs of scleroderma and I was wondering how long it takes to develo...

Dancingc21

•12 years ago

9 Replies

any ideas how to treat a toe ulcer, tip of toe very painful, i have no sign of diabetics. had the ulcer for over 1year

julieginder

•12 years ago

4 Replies

jsa

i had my interview thursday and a good chat lot of help and advice . i must admit in oxford they are the only gov office with empathy as i have had to use them...

i had my interview thursday and a good chat lot of help and advice . i must admi...

glyn

•12 years ago

8 Replies

Since taking Sivastatin 3 months ago my circulation problem has got considerably worse. Has anybody else similar experience?

Serina

•12 years ago

1 Reply

Raynauds....The begginiing stage of oh so much more to come!

Hi everyone- I have been a member for sometime, but have just hung back and read everyone's post rather than posting on my own. I decided it's time to get...

Hi everyone- I have been a member for sometime, but have just hung back and read...

Toniraquel

•12 years ago

5 Replies

does anyone who suffers from Raynauds suffer from weak painful wrists , i was wondering if it could be connected

i currently take nifedipine 3 times daily

skytiz

•12 years ago

11 Replies

Any tips on pain mangement. Have been told I have scleroderma and now suffering with pain in thumbs, wrists, shoulder, neck very bad.

The neck pain is making me feel sick at times & reduced head movenment. Taking tablets to help as last resort as don't want to unset my gastro problems but...

The neck pain is making me feel sick at times & reduced head movenment. Taking t...

newton

•12 years ago

6 Replies

esa

got refused today back to jsa but i have 2 months of a sick note left so thats going to be fun down the job centre, when i phoned for a appointment he said...

got refused today back to jsa but i have 2 months of a sick note left so thats ...

glyn

•12 years ago

11 Replies

Does anyone else have problems with calcified ligaments/tendons? I have a very painful knee at the moment and have been told that there no

treatment, but it is just getting worse and worse. Has anyone had any treatment that has helped?

treatment, but it is just getting worse and worse. Has anyone had any treatment...

Yorky

•12 years ago

10 Replies

Evening All :) Has anyone had the Tear duct plugs put in? Only my 2nd time here, please bare with me.

Hi there, Finally I am getting somewhere with my suspicions of Sjorgens disease. (I have numerous additional sypmtoms) Anyway after 2 years of burning,...

Hi there, Finally I am getting somewhere with my suspicions of Sjorgens disea...

Giny

•12 years ago

18 Replies

Bood Test for Sjorgrens? I also have Raynauds and Ostioarthritis.

Hello, this is the first time I have posted a question. I have spinal problems and have had a lot of surgery in the past but suffer with chronic pain. I also...

Hello, this is the first time I have posted a question. I have spinal problems a...

Jessie122

•12 years ago

6 Replies

I can't find much information on a connection between Scleroderma and fatty liver deposits - anyone else had this as a health issue?

creditcrunchie

•12 years ago

Be the first to reply

Anyone suffer with fibromyalgia ? I have CREST do these have a link ?

I am struggling with what I suspect is fybromyalgia - is there a cure - treatment ? is there an auto immune link ? Many thanks

I am struggling with what I suspect is fybromyalgia - is there a cure - treatmen...

AliW

•12 years ago

6 Replies

Frozen feet: "put your feet up".

Hiya all, like most of you trying to put a brave face on, can only do it because i am indoors in July in UK, nice day but had to close all windows in my small...

Hiya all, like most of you trying to put a brave face on, can only do it because...

tezza1007z

•12 years ago

14 Replies

Pulmonary pressure no symptons excellent exercise capacity?

I was diagnosed with scleroderma about 6 years ago and apart from one eposide of systemic inflamation approx 5 years ago I have been well. I have the limited...

I was diagnosed with scleroderma about 6 years ago and apart from one eposide of...

Hidden

•12 years ago

6 Replies

trouble swallowing/keeping food down

I often experience not being able to swallow food and even fluids can take time to go down sometimes! i get awful pain in my chest when food is stuck and...

I often experience not being able to swallow food and even fluids can take time ...

Whatever

•12 years ago

8 Replies

waking almost choking/vomiting on acid reflux!!!

sorry for hogging the questions panel with all my things but this happens once a night, about 5 times over the last few weeks. I jolt myself awake practically...

sorry for hogging the questions panel with all my things but this happens once a...

Kerry72

•12 years ago

20 Replies

Does anyone suffer from Sjogren's and have problems with taste?

The worst time is first thing in the morning, when I can't taste anything. It gradually improves during the day but is still not that good. I really regret not...

The worst time is first thing in the morning, when I can't taste anything. It gr...

MInerva

•12 years ago

4 Replies

Does anyone have Iron deficiency anaemia and had to have iron infusions ?

Hi, I have had iron deficiency anaemia for sometime. I have taken iron supplements in the past but, I haven't been able to tolerate them very well. I have been...

Hi, I have had iron deficiency anaemia for sometime. I have taken iron supplemen...

wartsandall

•12 years ago

6 Replies

Tight wrists and hands

I saw the rheumatologist for the first time last Monday...went to the doctors today...I've got really tight wrists and hands, I mentioned this to the dr and he...

I saw the rheumatologist for the first time last Monday...went to the doctors to...

Kerry72

•12 years ago

7 Replies

Joint pain

Everytime a get a cold or flu I get agonising pain in all my joints all over my body, other members of the family just get the cold :( Is the joint pain...

Everytime a get a cold or flu I get agonising pain in all my joints all over my ...

sandraj

•12 years ago

3 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for July 2012

specialist help with scleroderma

Hi, does anyone know if I should be feeling a little bit better as i had tear plugs put in 20 days ago as my eyes are still burning badly?

Why do my replies to members questions come up on the side as DELETE and not REPORT like everybody elses, what as i doing wrong ?

serederin

I have the limited form of Scleroderma. I have olive colored skin with small white patches on my arms. Anyone else have this problem?

Has anyone with scleroderma in the lungs, actually had a straight answer regarding the prognosis.

I have been on amlodipine for Raynauds, doctor changed to cardizem & aspirin due to heart beat increase.

Has anyone out there been mis-diagnoised with Raynaurds to find out later that they actually had Buergers Disease?

I have Scleroderma/Lung Fibrosis and have had 6 Cyclophosphmide infusions. I am now on Mycophenolate 500mg.

Early signs of scleroderma??

any ideas how to treat a toe ulcer, tip of toe very painful, i have no sign of diabetics. had the ulcer for over 1year

jsa

Since taking Sivastatin 3 months ago my circulation problem has got considerably worse. Has anybody else similar experience?

Raynauds....The begginiing stage of oh so much more to come!

does anyone who suffers from Raynauds suffer from weak painful wrists , i was wondering if it could be connected

Any tips on pain mangement. Have been told I have scleroderma and now suffering with pain in thumbs, wrists, shoulder, neck very bad.

esa

Does anyone else have problems with calcified ligaments/tendons? I have a very painful knee at the moment and have been told that there no

Evening All :) Has anyone had the Tear duct plugs put in? Only my 2nd time here, please bare with me.

Bood Test for Sjorgrens? I also have Raynauds and Ostioarthritis.

I can't find much information on a connection between Scleroderma and fatty liver deposits - anyone else had this as a health issue?

Anyone suffer with fibromyalgia ? I have CREST do these have a link ?

Frozen feet: "put your feet up".

Pulmonary pressure no symptons excellent exercise capacity?

trouble swallowing/keeping food down

waking almost choking/vomiting on acid reflux!!!

Does anyone suffer from Sjogren's and have problems with taste?

Does anyone have Iron deficiency anaemia and had to have iron infusions ?

Tight wrists and hands

Joint pain

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