Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,844 members • 5,412 posts

All posts for June 2021

Digital ulcer treatment?

What do you do to help heal digital ulcers?. Talking to rheumy nurse tomorrow, but after anything to try!! Have used - heavy moisturizing lotion/creams,...

What do you do to help heal digital ulcers?. Talking to rheumy nurse tomorrow, b...

•3 years ago

Hello

I'm new, apparently, they like me to say that. I was researching the constant mucus problem I have and ended up here. As for the issue at hand, there was no...

I'm new, apparently, they like me to say that. I was researching the constant m...

•3 years ago

Baricitinib

Hi has anyone tried Baricitinib, sold under the brand name Olumiant

Hi has anyone tried Baricitinib, sold under the brand name Olumiant

•3 years ago

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PULMONARY HYPERTENSION?

Hi, I’ve just received results of my echocardiogram. I have interstitial lung disease so knew I was at risk of pulmonary hypertension. The results show my...

Hi, I’ve just received results of my echocardiogram. I have interstitial lung di...

•3 years ago

Heated glove suppliers?

Has anyone found a UK-based maker of heated gloves - especially thin/ liner gloves? I used to get them from Thermosoles/Designed4Inspiration in Austria, a...

Has anyone found a UK-based maker of heated gloves - especially thin/ liner glov...

•3 years ago

Hi there, has anybody tried Baricitinib? What if any side effects were there please?

•3 years ago

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Is this Raynaud's?

Hello! I've been having some issues with swelling of my fingers, it started in april last year with one finger and gradually moved to others, my ring and...

Hello! I've been having some issues with swelling of my fingers, it started in ...

•3 years ago

Scollosis in Systemic sclerosis.

Hello everyone I hope you all are fine. I have a some questions about something related with this disease. Actually I have scollosis and my curvature is...

Hello everyone I hope you all are fine. I have a some questions about something ...

•3 years ago

Covid 19 vaccine and systemic sclerosis

I have been diagnosed with limited cutaneous of systemic sclerosis and I took immunisuppresive drugs called injection cyclophosphamide and injection...

I have been diagnosed with limited cutaneous of systemic sclerosis and I took im...

•3 years ago

New Raynaud's after Covid Vaccine...anyone else?

Hi! I'm wondering if anyone got diagnosed with Raynaud's (or a worsening of their symptoms) after their covid vaccine? I have extreme/sharp pain in my fingers...

Hi! I'm wondering if anyone got diagnosed with Raynaud's (or a worsening of thei...

•3 years ago

Scleroderma & Raynaud's Publications

Good morning, I hope you are all as well as you can be. This is a link to all the information leaflets SRUK have on the website. I find them extremely helpful....

Good morning, I hope you are all as well as you can be. This is a link to all th...

Volunteer•3 years ago

Troublesome Cough!

Talking about troublesome coughs! I have these bouts of cough at all time, when it starts, it could go for about 5 minutes and then suddenly stop..this occurs...

Talking about troublesome coughs! I have these bouts of cough at all time, when ...

•3 years ago

Anyone with scoliosis? I just got diagnosed to top everything else

Anyone with scoliosis ?

Anyone with scoliosis ?

•3 years ago

Night-time cough

Sorry, me again. Every so often I wake up at night because of a big coughing fit. Doesn't last long and I go back to sleep. How do I tell if it's acid reflux...

Sorry, me again. Every so often I wake up at night because of a big coughing fit...

•3 years ago

Zolendronic acid

I have been advised to have annual infusions of this drug to counteract my severe osteoporosis and I'm rather nervous about side effects – has anyone here had...

I have been advised to have annual infusions of this drug to counteract my sever...

•3 years ago

UK Welfare Benefits

UK Welfare Benefits Have you ever applied for any UK welfare benefits? Are you currently claiming benefits or are you in the process of making a claim?...

UK Welfare Benefits Have you ever applied for any UK welfare benefits? Are you...

Volunteer•3 years ago

Total hip replacement and limited systemic scleroderma

I am due to have a total hip replacement in less than 2 weeks time. I have limited systemic scleroderma and am on Rituximab every 6 months. If so, was your...

I am due to have a total hip replacement in less than 2 weeks time. I have limit...

•3 years ago

Webinar-SRUK presents

Scleroderma Awareness Month is fast approaching, and we have TWO webinars planned for you!...

Scleroderma Awareness Month is fast approaching, and we have TWO webinars planne...

Volunteer•3 years ago

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YouTube link for the Welfare Benefits with Richard Conway Webinar is live

The 'Welfare Benefits with Richard Conway' Webinar is now up on our YouTube channel -https://bit.ly/3iaG8tZ You can now watch the whole webinar again or...

The 'Welfare Benefits with Richard Conway' Webinar is now up on our YouTube chan...

Volunteer•3 years ago

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