Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,825 members • 5,405 posts

All posts for November 2018

A HELPING HAND

Hi everybody, I hope you are as well as you can be. Anyway went to Sainsburys to do my weekly shop, usual fast trip down the chilled area, got to the till to...

Hi everybody, I hope you are as well as you can be. Anyway went to Sainsburys to...

fairy56

•5 years ago

11 Replies

Meloxicam

I’ve been prescribed MELOXICAM and just read the leaflet, there’s quite a lot of side effects. I would love to hear from you if your on this and hear how you...

I’ve been prescribed MELOXICAM and just read the leaflet, there’s quite a lot of...

Fee66

•5 years ago

3 Replies

Electrical impulses

I'm laying here in bed with the electrical impulses throughout my body . Only get the impulses when I lay down . I do have nerve damage in my left arm . But...

I'm laying here in bed with the electrical impulses throughout my body . Only ge...

TinaScott1968

•5 years ago

3 Replies

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Torture treatment on the NHS!!

I have had Raynauds for the past 7 yrs but more severely the past 3 . This autumn the fouth toe of my left foot got owrse than usual and after 5 weeks of...

I have had Raynauds for the past 7 yrs but more severely the past 3 . This autum...

Motherm

•5 years ago

25 Replies

Left side body muscle pain

I have pain and burning sensation just below left rib cage and having cracking sound. Burning sensation keep moving in left area of body from hands to left...

I have pain and burning sensation just below left rib cage and having cracking s...

BinodMahat

•5 years ago

1 Reply

Amlodipine

I have SSc and take nifedipine for rays with good effect but have had a lot of oedema, flushing and night sweat so consultant advised trying amlodipine....

I have SSc and take nifedipine for rays with good effect but have had a lot of o...

amd21

•5 years ago

5 Replies

Feeling completely frozen

Does anybody have the issue when it's cold or vaguely chilly your whole body kind of tenses as if you just stepped into -100 degrees or something. It really...

Does anybody have the issue when it's cold or vaguely chilly your whole body kin...

Rp321

•5 years ago

5 Replies

Toes concern

Hi, has anyone ever had chilblains but only on one foot and a few toes? I've googled and the symptoms do match, on my big toe and the two near it, I'm having...

Hi, has anyone ever had chilblains but only on one foot and a few toes? I've goo...

Turquoise1993

•5 years ago

1 Reply

Colon

Colon problems. I have systemic scleroderma and found myself needing surgery for a prolapsed colon. They did the surgery, pulled it back up only to have my...

Colon problems. I have systemic scleroderma and found myself needing surgery for...

SherrySanford65

•5 years ago

2 Replies

Fatigue?

Hi everyone good to read posts.I have had. Two days of IVIG for the scleroderma but do not feel so well ache all over and keep going to. Sleep.!Does anyone...

Hi everyone good to read posts.I have had. Two days of IVIG for the scleroderma ...

Selsey

•5 years ago

1 Reply

Anyone here with negative ANA results?

Hi, I've recently seen a consultant at the Royal Infirmary in Glasgow, who tells me that he is highly confident that I don't in fact have scleroderma, mainly...

Hi, I've recently seen a consultant at the Royal Infirmary in Glasgow, who tell...

puggyboy

•5 years ago

10 Replies

Derma fillers

Hi all, I was just wondering if anybody has had any derma fillers especially Sculptra with this connective tissue disease? I am so depressed that I can't even...

Hi all, I was just wondering if anybody has had any derma fillers especially Scu...

k9lover58

•5 years ago

17 Replies

Sjogren's - Puntal plugs or Ciclosporin drops?

Does anyone have experience of both of these treatment options for very dry eyes and, if so, which would you recommend? Thanks.

Does anyone have experience of both of these treatment options for very dry eyes...

lupieibbie

•5 years ago

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Folic acid effect?

Much to my surprise i got out of bed like a normal person rather than staggering up full of aches and pains and been feeling like a gazelle since, even my...

Much to my surprise i got out of bed like a normal person rather than staggering...

Inamoment

•5 years ago

3 Replies

Losing Eye Sight, any similar experience?

Hi people, I am sorry I always come up with terrible situations. Recently I had a close call renal crisis, where my potassium and Kreatinin levels were as high...

Hi people, I am sorry I always come up with terrible situations. Recently I had ...

QofL

•5 years ago

4 Replies

Help me Please

Hi, I have undiagnosed Rynauds. I got a very bad ulcer on my right middle finger it is so painful that I can't sleep. if lucky I will manage to sleep few...

Hi, I have undiagnosed Rynauds. I got a very bad ulcer on my right middle finger...

A_C_Thomas

•5 years ago

14 Replies

Fatigue and what I can only describe as back stiffness

Hello everyone, I have Limited Cutaneous Systemic Sclerosis and secondary Raynauds. My diagnosis came in January 2017, I’m still getting to grips with all the...

Hello everyone, I have Limited Cutaneous Systemic Sclerosis and secondary Raynau...

-missymoo

•5 years ago

2 Replies

Do you ever get itchy burning skin?

I have had bouts of this but am unsure how to treat in the moment as my skin literally feels on fire?

I have had bouts of this but am unsure how to treat in the moment as my skin lit...

flowflow

•5 years ago

5 Replies

One Solution to Painful slits on fingers.

I get those painful slits on my fingers every winter because of cold and washing my hands often (in order to prevent getting a virus from students) and from...

I get those painful slits on my fingers every winter because of cold and washing...

Superglue

•5 years ago

5 Replies

PLEASE CLARIFY ME

My symptoms, I feel cold,numb and pain in my fingers without color change to white or blue ?Do I have Raynaud's?Is this normal? I had a sudden swelling on my...

My symptoms, I feel cold,numb and pain in my fingers without color change to whi...

Gouthami1

•5 years ago

5 Replies

Ice cold feet-Advice about socks please

Hi, Community. I have Lupus, raynaud's and erythromelalgia. From about October, my feet are either feezing cold from the Raynaud's (which causes pinful...

Hi, Community. I have Lupus, raynaud's and erythromelalgia. From about October, ...

skylark15

•5 years ago

36 Replies

I'm new here

Hello everyone, new on here and good to be in the company of folk with the same conditions, I’ve already read some very interesting stuff. I'm a 55 year old...

Hello everyone, new on here and good to be in the company of folk with the same ...

Scooterboy63

•5 years ago

6 Replies

Ulcer on back of heel

Been about 5 weeks since I'd just scraped the top layer of skin off a tiny bit of my heel. Infected even with ointments, etc, this is what it's doing now,...

Been about 5 weeks since I'd just scraped the top layer of skin off a tiny bit o...

bengali

•5 years ago

7 Replies

Can you have scleroderma with negative antibody tests?

Hi all, I posted about a week ago due to having a bruise suddenly appear on my face. I have only ever been diagnosed with primary raynauds. Due to my other...

Hi all, I posted about a week ago due to having a bruise suddenly appear on my f...

Julesboz

•5 years ago

8 Replies

Benefits

I have had Raynauds since childhood, I suppose I just got on with it in the past but now know that I will have to go 'on the sick' as I am unable to work....

I have had Raynauds since childhood, I suppose I just got on with it in the past...

Doogal

•5 years ago

3 Replies

Sceroderma skin involvement on elbows?

Skins' going so weird on one elbow!! So itchy, but lumpy a bit, too, thicker than the skin around it, off colour a bit, feels a bit tight, feel it pull a...

Skins' going so weird on one elbow!! So itchy, but lumpy a bit, too, thicker th...

bengali

•5 years ago

6 Replies

Dating with Scleroderma

Hi guys, So I have pretty severe diffuse cutaneous scleroderma. I have had 2 episodes of renal crisis (I'm now on haemodialysis), my lungs cant expand fully...

Hi guys, So I have pretty severe diffuse cutaneous scleroderma. I have had 2 ep...

Redoralive

•5 years ago

2 Replies

A DAY AT THE COAST

Hi everybody, I hope you are all keeping as well as you can. My granddaughter and I have spent a wonderful day at the coast (Whitby). Making sure I was going...

Hi everybody, I hope you are all keeping as well as you can. My granddaughter a...

fairy56

•5 years ago

5 Replies

Bladder spasms

Anyone with Fibromyalgia also have ***BLADDER SPASMS FROM HELLO!!!!*** with the weather changes..... I'm ready for surgery too have it removed..., If that's...

Anyone with Fibromyalgia also have ***BLADDER SPASMS FROM HELLO!!!!*** with the ...

8whitetoes

•5 years ago

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After effects of general anaesthetic

I had surgery a couple days ago and oh my I've never had so much severe pain. I can't even walk. How do others find their bodies are afterwards?

I had surgery a couple days ago and oh my I've never had so much severe pain. I ...

flowflow

•5 years ago

1 Reply

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for November 2018

A HELPING HAND

Meloxicam

Electrical impulses

Torture treatment on the NHS!!

Left side body muscle pain

Amlodipine

Feeling completely frozen

Toes concern

Colon

Fatigue?

Anyone here with negative ANA results?

Derma fillers

Sjogren's - Puntal plugs or Ciclosporin drops?

Folic acid effect?

Losing Eye Sight, any similar experience?

Help me Please

Fatigue and what I can only describe as back stiffness

Do you ever get itchy burning skin?

One Solution to Painful slits on fingers.

PLEASE CLARIFY ME

Ice cold feet-Advice about socks please

I'm new here

Ulcer on back of heel

Can you have scleroderma with negative antibody tests?

Benefits

Sceroderma skin involvement on elbows?

Dating with Scleroderma

A DAY AT THE COAST

Bladder spasms

After effects of general anaesthetic

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