Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,409 posts

All posts for February 2016

Fibromyalgia - new findings

I don't know whether there is any overlap between fibromyalgia and myopathy in Scleroderma, but there is some interesting new research here -...

I don't know whether there is any overlap between fibromyalgia and myopathy in S...

•8 years ago

Digital ulcer update

Had fingernail removed 3 weeks ago after 8 months with digital ulcer under nail which would not heal. Procedure done under general anaesthetic, pain afterwards...

Had fingernail removed 3 weeks ago after 8 months with digital ulcer under nail ...

•8 years ago

Calcinosis

After the piece of calcinosis has come out, what's the most effective course of action? Had a few conflicting pieces of advice. This is my first experience...

After the piece of calcinosis has come out, what's the most effective course of ...

•8 years ago

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Digital ulcers....sssss

I'm glad to see that research advocates taking a proactive, preventive approach to treating digital ulcers. Also, I note that calcium channel blockers and ACE...

I'm glad to see that research advocates taking a proactive, preventive approach ...

•8 years ago

I Hate the cold

My hands and feet are conspiring against me and the Lorsatan isn't working think I need to see the doc again

My hands and feet are conspiring against me and the Lorsatan isn't working think...

•8 years ago

alone

I don't know who to turn to with what's going on with my Raynaud's I suffer on average 3 or 4 times a week maybe more with white fingers and toes. I work...

I don't know who to turn to with what's going on with my Raynaud's I suffer on ...

•8 years ago

?Possible genetic connection between scleroderma, coeliac disease and ulcerative colitis

Does anyone know if there could be a connection between these auto immune diseases. I have scleroderma and secondary Raynaulds and I have one grandaughter...

Does anyone know if there could be a connection between these auto immune diseas...

•8 years ago

Pain in elbows and knees

Hi been diagnosed with scleroderma for last 5 years have iloprost every 4 weeks and usually manage reasonably well I work full time too but these last few...

Hi been diagnosed with scleroderma for last 5 years have iloprost every 4 weeks ...

•8 years ago

Iloprost

Well, not sure how long it takes to work, but got to say, absolutely no difference after one week, hands still rubbish & toes not much better. Sad times.

Well, not sure how long it takes to work, but got to say, absolutely no differen...

•8 years ago

Good news :)

It occurred to me that we don't often get good news on here so I thought I'd share: I had my annual check up with my rheumatologist yesterday and he said I am...

It occurred to me that we don't often get good news on here so I thought I'd sha...

•8 years ago

Crest Syndrome

Does anyone else have dizzy spells 😒 I was in St James's last week - dizzy spells and vomiting Dr said it could be a virus . TIA

Does anyone else have dizzy spells 😒 I was in St James's last week - dizzy spel...

•8 years ago

Mrs

Got systemic scleroderma plus raynauds awell some days feel so poorly

Got systemic scleroderma plus raynauds awell some days feel so poorly

•8 years ago

Iloprost

Had my infusion for 6 hours a day for 5 days, finished on Friday, has anyone else suffered from really painful joints afterwards, not sure, as this was my...

Had my infusion for 6 hours a day for 5 days, finished on Friday, has anyone els...

•8 years ago

Raynaud syndrome on 2 digits - (1) infected - (1 inflamed.

I have posted my problem last year, received wonderful responses, antidotes, continued promise of healing. At this stage, now, amputation was spoken on,...

I have posted my problem last year, received wonderful responses, antidotes, con...

•8 years ago