Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,844 members • 5,412 posts

All posts for July 2015

Raynaud's Question

When first diagnosed with Raynaud's, my hands turned colors. This ceased a long time ago but now my fingertips are numb. I think this is from smoking. I...

When first diagnosed with Raynaud's, my hands turned colors. This ceased a long...

•9 years ago

Digital ulcer update

Saw rheumatologist this am , sent me for xray of fingers to be followed up by mri scan. To have urgent Iloprost infusions and has started me on Sildenafil. Is...

Saw rheumatologist this am , sent me for xray of fingers to be followed up by mr...

•9 years ago

Personal Independence Payments

Hi i have recently had my assessment to change over to pip, i had enhanced on both on the Dla, now i have been turned down for pip and again at the...

Hi i have recently had my assessment to change over to pip, i had enhanced on bo...

•9 years ago

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OP

I have to have an operation its to remove some stitches that were put in my stomach some 4 years ago the stitches are causing pain and the surgeon hopes once...

I have to have an operation its to remove some stitches that were put in my stom...

•9 years ago

Plaquenil and Quinoric

Ive been on Plaquenil for about a year with no side effects that i know of. Today the pharmacy gave me Quinoric instead. Does anyone know if there is much...

Ive been on Plaquenil for about a year with no side effects that i know of. Toda...

•9 years ago

Digital ulcers

I had an ulcer on my right index finger starting 5 weeks ago it has now caused an infection underneath the nail which is extremely painful. I have had 2...

I had an ulcer on my right index finger starting 5 weeks ago it has now caused a...

•9 years ago

Sexual Health

Jointly with The Scleroderma Society, we are updating our publication on sexual health and scleroderma. Some men and women with scleroderma struggle to have...

Jointly with The Scleroderma Society, we are updating our publication on sexual ...

Partner•9 years ago

Painfull arm wrist and fingers

I Does anyone suffer with pain in arms from elbow to wrist and to fingers ? This started about 10 days ago my right arm is giving me so much pain I can...

I Does anyone suffer with pain in arms from elbow to wrist and to fingers ? Th...

•9 years ago

Help- Itchy skin/dermatitis?

Hello everyone, I would like some advice or whether people are suffering similar. I have had some itchy patches come up on my palms, the top side of my arm...

Hello everyone, I would like some advice or whether people are suffering similar...

•9 years ago

What DO you look like?

In my case, a tall, thin skeleton with lots of layers of clothes, wrist warmers and often gloves or mittens (even in summer). I notice that many posts of...

In my case, a tall, thin skeleton with lots of layers of clothes, wrist warmers ...

•9 years ago

NP

has any one used Bioptron light treatment for nodular purigo?

has any one used Bioptron light treatment for nodular purigo?

•9 years ago

Be the first to reply

Has anyone ever tried camping outdoors in our lovely uk weather..I hav secondry raynaurds..

I would love to be able to take my kids camping over the holidays iv been looking at buying a tent! my boys r 8 and 10..this raynaurds thing does my head in...

I would love to be able to take my kids camping over the holidays iv been lookin...

•9 years ago

Lupus, Lyme Encephalopathy,

I have terrible restless leg syndrome, but throughout my body, and also get this electric surges I call them...but now even when I type I find my finger jumps...

I have terrible restless leg syndrome, but throughout my body, and also get thi...

•9 years ago

Does anyone else have Raynaud's and photosensitivity too?

Hi ya, Last year I was diagnosed with secondary Raynaud's phenomenon which I had never heard of, it took me a while to get used to coping with it and just...

Hi ya, Last year I was diagnosed with secondary Raynaud's phenomenon which I had...

•9 years ago

Tight skin

Hi all, I hope you are not suffering too much in this extreme weather. I am wondering if anyone else is experiencing the same symptoms, I have uncomfortable...

Hi all, I hope you are not suffering too much in this extreme weather. I am wond...

•9 years ago