Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,844 members • 5,412 posts

All posts for September 2019

Unclear diagnosis

Hi, I was diagnosed with MCTD in May 2018 after a couple of years of experiencing fatigue, worsening Raynauds and joint pain. I was taken off Hydroxycloroquine...

Hi, I was diagnosed with MCTD in May 2018 after a couple of years of experiencin...

Scottishstudent92

•5 years ago

Morphoea any info?

Hi I've just been diagnosed with morphoea which is an extremely rare side effect of radiotherapy. I'm not sure if there is any other people here with this as I...

Hi I've just been diagnosed with morphoea which is an extremely rare side effect...

•5 years ago

Death

How long have I got?

How long have I got?

juliealicegreer

•5 years ago

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Asking for help with blood test results

I have recently have had blood work done and are not understanding the results I would like to see if I can get some help with these results ex: one of the...

I have recently have had blood work done and are not understanding the results I...

•5 years ago

Fearful of upcoming routine appointments?

I have had CREST and Systemic Scleroderma 12 years with just cold from Raynauds. Now progressing internally faster. In my GI "Constant Contactability." Its...

I have had CREST and Systemic Scleroderma 12 years with just cold from Raynauds....

•5 years ago

Losing Vision!

Unable to read, decrease in vision, told scarring under eyelidsand is scleroderma of eyes, started on serum tears, prednisone and diflucan. So scared and how...

Unable to read, decrease in vision, told scarring under eyelidsand is scleroderm...

•5 years ago

Pain, melatonin, and Raynaud's

My husband and I took a low dose melatonin last night, 3 mgs. It helped me sleep and stay pain free all day long. Taking antihistamine has only worsened...

My husband and I took a low dose melatonin last night, 3 mgs. It helped me sleep...

•5 years ago

Oesophageal Dilatation Questions

Hi all I have Limited cutaneous Systemic Sclerosis and have been experiencing swallowing difficulties, certain foods get stuck in my chest and will only go...

Hi all I have Limited cutaneous Systemic Sclerosis and have been experiencing sw...

•5 years ago

Raynaud’s in toes?

Hello...I was diagnosed with Raynaud’s about 10 years ago. I always experienced it in my fingers, but now it is happening in my feet, specifically my toes. I...

Hello...I was diagnosed with Raynaud’s about 10 years ago. I always experienced ...

•5 years ago

Medication for Raynards

Hi Everyone. I have Raynaud’s alongside Lupus and Rheumatoid Arthritis. My Raynaud’s is becoming more severe. My doctor was going to prescribe some medication...

Hi Everyone. I have Raynaud’s alongside Lupus and Rheumatoid Arthritis. My Rayna...

•5 years ago

Finger ulcers - more common with male or female?

Silly question but curious. Wish I could do a poll. In this thread for those that have had finger ulcers with Raynauds how many of you are male? Female?...

Silly question but curious. Wish I could do a poll. In this thread for those t...

•5 years ago

Is ulcer prevention possible

Im assuming there is no way to prevent these? Even if you don’t smoke and live healthy lifestyle?

Im assuming there is no way to prevent these? Even if you don’t smoke and live...

•5 years ago

Finger not correcting for hours

Something new is happening. Two fingers stay blue. For 3-4 hrs. Does anyone have an answer for this obvious turn for the worse? This is happening in the...

Something new is happening. Two fingers stay blue. For 3-4 hrs. Does anyone...

•5 years ago

Painful skin

Hi I have had pain full to touch and itchy skin on my forehead no where els I do put face cream on I have been using for years I was just wondering if it is a...

Hi I have had pain full to touch and itchy skin on my forehead no where els I do...

•5 years ago

Be the first to reply

Read this before you get your next finger ulcer.

It's either a complete fluke or its the best treatment I have come across so far. Do a search and you will see there have been some trials conducted. I am...

It's either a complete fluke or its the best treatment I have come across so far...

overnighthearingloss

•5 years ago

First time post, swollen lower legs prescribed nifedipine

Hello, this is my first post and I’m wondering if anyone else has the same symptoms as me. I was diagnosed several years ago with raynauds and have been self...

Hello, this is my first post and I’m wondering if anyone else has the same sympt...

•5 years ago

Morphea

Hi everyone! Apologies if I’m posting this in completely the wrong place... I’ve just been diagnosed with morphea, which no doctor seems to know anything...

Hi everyone! Apologies if I’m posting this in completely the wrong place... I’v...

•5 years ago

Is there any connection between torn ligaments and scleroderma ?

I have had two torn ligaments in two months (both legs have had a turn with one ankle and one knee). First one resulted in having to cancel a trip to France...

I have had two torn ligaments in two months (both legs have had a turn with one ...

•5 years ago

Pain

I’m starting to get severe stiffness and pain in my knees and feet more so in the morning and night. If I wake up in the night I can hardly walk. My legs and...

I’m starting to get severe stiffness and pain in my knees and feet more so in th...

•5 years ago

Methotrexate injections

Hi has any one been on the methotrexate injections because my Rheumatologist says my Scleroderma symptoms have come on quite quickly she wants me to try this...

Hi has any one been on the methotrexate injections because my Rheumatologist say...

•5 years ago

So cold!

Hi, have Sys. Sclerosis ...I am not having a good time just now....or for quite a while.... I am feeling cold all the time. It is strange because it seems to...

Hi, have Sys. Sclerosis ...I am not having a good time just now....or for quite ...

•5 years ago

Amlodipine and Raynauds, fluid retention etc

I was prescribed Amlodipine for Raynauds even though I always have low blood pressure. They don't seem to do anything . I also suffer fluid retention in my...

I was prescribed Amlodipine for Raynauds even though I always have low blood pre...

•5 years ago

Limited ssc

Hi guys. I have limited scleroderma and interested to find out which type of exercise is the most suitable for this condition. I was thinking either hatha yoga...

Hi guys. I have limited scleroderma and interested to find out which type of exe...

•5 years ago

About pip

Can any help me do u get pip with scleroderma x

Can any help me do u get pip with scleroderma x

•5 years ago

Pip

Hiiiiiii alllll

Hiiiiiii alllll

•5 years ago

Be the first to reply

Diffuse Scleroderma

Hi, I have been diagnosed with this awful condition since June, can anyone tell me if the itching and burning sensations subside over time or have I got to...

Hi, I have been diagnosed with this awful condition since June, can anyone tell ...

•5 years ago