Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,410 posts

All posts for October 2023

Permanently damaged vision due to dry eyes?

I've had Limited Scleroderma for about 12 years. A year ago, I noticed that the vision in my left eye had become blurred. 3 opticians and 4 opthalmologists...

I've had Limited Scleroderma for about 12 years. A year ago, I noticed that the...

•6 months ago

iloprost infusions and work

hi all, those on regular iloprost infusions how is this managed by your employer ? ie is it taken as sick, work from home or some sort of special leave...

hi all, those on regular iloprost infusions how is this managed by your employer...

•6 months ago

left side throat ,tongue discomfort

Hi, I was just wondering if anyone could relate to my problem or perhaps if anyone as had the same experience they could enlighten me how to get rid of this...

Hi, I was just wondering if anyone could relate to my problem or perhaps if any...

•6 months ago

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Limited scleroderma and worrying memory issues. Linked?

Hi all, I recently underwent a full assessment for early onset dementia as my GP felt that my working memory is perhaps a little more affected than could be...

Hi all, I recently underwent a full assessment for early onset dementia as my GP...

•6 months ago

Good morning

Hello … I have been following the group for over 2 years now having been diagnosed with scleroderma and simultaneously breast cancer. I had a mastectomy, chemo...

Hello … I have been following the group for over 2 years now having been diagnos...

•6 months ago

Morphea treatment - PUVA or triamcinolone injections?

hello, looking for a bit of advice as I was diagnosed with Morphea a few months ago. I’m under the care of dermatology department. It affects my whole left...

hello, looking for a bit of advice as I was diagnosed with Morphea a few month...

•6 months ago

small lumps on fingers

Hello Everyone I am writing this on behalf of my daughter she is 15 and has been getting red bumps on her fingers for years. She has recently asked to be taken...

Hello Everyone I am writing this on behalf of my daughter she is 15 and has been...

•6 months ago

Thin Leg

My right shin has been giving me pain, particularly at night for last year, now wakes me up. I have also been falling over because my leg gives way. I've had...

My right shin has been giving me pain, particularly at night for last year, now ...

•6 months ago

Microvascular tests

Anyone know if anywhere in Scotland di microvascular studies? Thanks.

Anyone know if anywhere in Scotland di microvascular studies? Thanks.

•6 months ago

Mycophenolate advice

Hi - just messaging for advice on behalf of my mum who's had Scleroderma for about 30 years. Her lung issues have been getting progressively worse over the...

Hi - just messaging for advice on behalf of my mum who's had Scleroderma for abo...

•6 months ago

Hope with MBST

I am 72 years old and was badly affected with linear morphea at the age of 2! Dragged all around Harley Street at the time, no one could diagnose what it was -...

I am 72 years old and was badly affected with linear morphea at the age of 2! Dr...

•6 months ago

Silver thread women's gloves

In the past I have bought several pairs of silver thread gloves from SRUK. Found them very effective for my Raynaud's but unfortunately they have stopped...

In the past I have bought several pairs of silver thread gloves from SRUK. Found...

•7 months ago

Scleroderma and Multiple Sclerosis

Hello, one of our members in our group has been diagnosed with both Scleroderma and Multiple Sclerosis. Is there anyone out there who also has this dire...

Hello, one of our members in our group has been diagnosed with both Scleroderma ...

•7 months ago

Covid and flu vaccine

I had both my covid and flu boosters yesterday and have just had a really uncomfortable night. I was experiencing fever and chills and pain all over my body....

I had both my covid and flu boosters yesterday and have just had a really uncomf...

•7 months ago