Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,410 posts

All posts for March 2023

Limited Scleroderma, Autoimmune issues, thymoma, metal implants in joints

I'm wondering if anyone has limited scleroderma and autoimmune issues, AND have had to have metal implants in any joint due to failed fractures? In May 2022 I...

I'm wondering if anyone has limited scleroderma and autoimmune issues, AND have ...

•1 year ago

Interesting Podcast series: Scleroderma Education Podcast - FREE

Hi all, I stumbled upon this series and thought I'd share. A Podcast series discussing scleroderma(!) between medics and patients. Each episode focuses on a...

Hi all, I stumbled upon this series and thought I'd share. A Podcast series dis...

•1 year ago

Just diagnosed scleroderma/myositis - any help or guidance appreciated

Hello all, First time posting…. I have noticed just how incredibly helpful and supportive this community is so figured I would be vulnerable and ask for......

Hello all, First time posting…. I have noticed just how incredibly helpful and ...

•1 year ago

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Urinary issues worried about hypertension

Good morning, I am waiting for my next Rheumatologist appointment and have recently been suffering with issues , I have been on antibiotics 3 times in the...

Good morning, I am waiting for my next Rheumatologist appointment and have rece...

•1 year ago

calcinosis at tip of finger

hello. I have a large calcinosis on my right hand, pointer finger. It is very sore and hurts badly. It looks like it may be infected. Has anyone else dealt...

hello. I have a large calcinosis on my right hand, pointer finger. It is very so...

•1 year ago

Scleroderma

Does any one know if high blood pressure is something that goes with scleroderma am on blood pressure meds losartan and nifedipine and for long time this has...

Does any one know if high blood pressure is something that goes with scleroderma...

•1 year ago

Scleroderma and Bowel Issues.

Hi there. I havent been formerly diagnosed with Scleroderma as all tests have drawn negative results. I have medication for long term Raynauds,I have...

Hi there. I havent been formerly diagnosed with Scleroderma as all tests have d...

•1 year ago

Hip replacement

On 22nd January,I had a partial hip replacement following a fall.I have made a good recovery and my hip has healed well. But I am still very tired and I have...

On 22nd January,I had a partial hip replacement following a fall.I have made a g...

•1 year ago

Beetroot juice for Raynaud's

I saw this valid study online, I would like to know if anyone has tried drinking beetroot juice daily for Raynaud's. If so, what were your results?...

I saw this valid study online, I would like to know if anyone has tried drinking...

•1 year ago

Mouth and swallowing problems

I have had a dry mouth for months now, my tongue is cracked and I have lumps at the back of my throat, I've had tests for lack of vitamin b12 and ana as well...

I have had a dry mouth for months now, my tongue is cracked and I have lumps at ...

•1 year ago

Diffuse Scleroderma

Symptoms started Sept 2022. Diagnosed Scleroderma Dec 22. I have now being diagnosed with diffuse Scleroderma and I have been taking Hydroxychloriquine...

Symptoms started Sept 2022. Diagnosed Scleroderma Dec 22. I have now being d...

•1 year ago

Severe Raynaud's

Hi I have severe primary Raynaud's and have iloprost infusions every month at the minute the problem I have is like cold running water from my knees down to...

Hi I have severe primary Raynaud's and have iloprost infusions every month at th...

•1 year ago

Email from NHS: anyone else?

Hi all, I have received an email from the NHS who are sending me free lateral flow tests, and say l may get anti virals should I get Covid. Over on the Lupus...

Hi all, I have received an email from the NHS who are sending me free lateral fl...

•1 year ago

Collagen

Hello all. I've been puzzled by one question for a while already... When looking to buy face cream for example I keep stumbling across wrinkle-reducing skin...

Hello all. I've been puzzled by one question for a while already... When lookin...

•1 year ago

New Poster: Wrinkled finger woes and Raynauds questions for the “old hands” here

Hi all! I’m new to this forum. Been suffering from relatively mild Raynauds for as long as I can remember, but as I’m getting older and more unwell with...

Hi all! I’m new to this forum. Been suffering from relatively mild Raynauds for ...

•1 year ago

Mycophenolate trial?

Hi, I've been invited to take part in a drug trial of mycophenolate in early stage Limited Systemic Scleroderma. It's being overseen by Prof Denton and Royal...

Hi, I've been invited to take part in a drug trial of mycophenolate in early sta...

•1 year ago

❄️Raynaud's in Children Article❄️

Parents! You know how hard it can be to watch your child be in pain. Our article with Twinkl sheds light on some common symptoms of Raynaud's to look out...

Parents! You know how hard it can be to watch your child be in pain. Our artic...

Partner•1 year ago

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Stabbing pain in ribs & negative ANA

I have not been diagnosed yet and have recently been given an urgent referral to The Royal Free. I have been having flare ups for the past 10 years but they...

I have not been diagnosed yet and have recently been given an urgent referral to...

•1 year ago

Big thank you

Hi to all those that gave me advice prior to my week of infusion I survived it - just! It was hard going with side effects and many cannula issues. Not...

Hi to all those that gave me advice prior to my week of infusion I survived it -...

•1 year ago

Raynauds suggested by Pharmacist

Recently a pharmacist suggested that I could have raynauds. As they saw a couple of my fingers were white, as I was making a purchase. I was wondering, if I...

Recently a pharmacist suggested that I could have raynauds. As they saw a couple...

•1 year ago

worse my hands have been this winter

I’m taking many raynauls attacks a day I can’t even put my washing out without work gloves they get too sore and I’m getting small blisters at tips of my...

I’m taking many raynauls attacks a day I can’t even put my washing out without w...

•1 year ago

🚨New Webinars Alert!🚨

Hi All, SRUK have hosted a few webinars recently! 🔎Our last one, on Monday, was all about Calcinosis with Dr. Ariane Herrick. You can watch it...

Hi All, SRUK have hosted a few webinars recently! 🔎Our last one, on Monday,...

Partner•1 year ago