Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,844 members • 5,412 posts

All posts for January 2019

Recurring choking on saliva anyone?

Hello everyone I have limited cutaneous systemic sclerosis, servere Raynauds and GI issues. Thankfully no lung or heart involvement so far 🤞 I suffer reflux...

Hello everyone I have limited cutaneous systemic sclerosis, servere Raynauds an...

-missymoo

•5 years ago

10 Replies

Nipple Raynaud's?

Hi everyone. I'm new here and I've joined because I'm writing a paper on Raynaud's and breastfeeding and wanted to see if anyone out there has also been...

Hi everyone. I'm new here and I've joined because I'm writing a paper on Raynaud...

cagol

•5 years ago

2 Replies

Can anyone help me ?

I have these on my legs and arms no amount of lotions and potions from the doctor , a very light purse too ? These have been on my legs since before Christmas...

I have these on my legs and arms no amount of lotions and potions from the docto...

forevermu

•5 years ago

15 Replies

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Just wondering ?

Hello Everyone, I am at my year anniversary of my diagnosis of Crest... At first I was in panic mode, but as the year has gone on I have calmed down and am...

Hello Everyone, I am at my year anniversary of my diagnosis of Crest... At firs...

catkar

•5 years ago

2 Replies

Raynaud's Please Help

My primary Raynaud's is getting worse. The pain I get is unbearable, my hands and feet are in agony. My hands freeze in position and my feet curl inwards and I...

My primary Raynaud's is getting worse. The pain I get is unbearable, my hands an...

BertieB_280616

•5 years ago

20 Replies

Reynaud’s Syndrome / Disease in Hands and Feet (Triggered by cold) – Self Help Measures - Discussion Please

Hello Everybody, I'm new to SRUK but not to HU, nor Reynaud's and wanted to share the following thoughts on Reynaud's self help measures (no drugs). I've had...

Hello Everybody, I'm new to SRUK but not to HU, nor Reynaud's and wanted to shar...

Ernest2

•5 years ago

32 Replies

“Bruised” finger

Me too - so so sore and just arrives suddenly.

Hendersons

•5 years ago

5 Replies

Ginkgo Biloba & Raynaud

If you haven’t done already, read the benefits of Gingko Biloba https://www.ncbi.nlm.nih.gov/m/pubmed/12710841/...

If you haven’t done already, read the benefits of Gingko Biloba https://www.ncb...

Fabi81

•5 years ago

1 Reply

Coffee with Raynaud

Hi everyone! I read all your questions everyday and I thought I might share how I deal with my Raynaud, hoping you find it helpful. I don’t have ulcere at all...

Hi everyone! I read all your questions everyday and I thought I might share how...

Fabi81

•5 years ago

14 Replies

Encouragement

Hi Everyone, I have not been here lately, and wanted to let you know that I have not forgotten you. I know you are struggling and of you are in pain and...

Hi Everyone, I have not been here lately, and wanted to let you know that I have...

beaglab

•5 years ago

1 Reply

Epsom salts

Hi, has anyone tried Epsom salts baths or foot soaks. Read online that they are good for Raynauds and almost everything else!

Hi, has anyone tried Epsom salts baths or foot soaks. Read online that they are...

marie5454

•5 years ago

11 Replies

Itch so bad it feels like wasp stings.

HI, Please can anyone help me with the constant itching day and night. My scleroderma is pretty bad at the moment but it is the itching I cannot stand. Thank...

HI, Please can anyone help me with the constant itching day and night. My sclero...

Debbiedoughnut

•5 years ago

25 Replies

Is it possible my wife has Raynaud's disease?

My wife has had asthma since 12 and had her Thyroid removed because of cancer. She also has diabetes. She displays symptoms of Raynaud's disease limited to...

My wife has had asthma since 12 and had her Thyroid removed because of cancer. S...

perle333

•5 years ago

3 Replies

Transport help

Hey all so my oh is in a bad way has hurt his foot bed bound but has an app next week. We have no car, and public transport is not an option ( not the way he...

Hey all so my oh is in a bad way has hurt his foot bed bound but has an app next...

Kc_1411

•5 years ago

3 Replies

First Rhuem Appointment

Hi Everyone, This is my first post, and I'm writing from Canada. I'm wondering if anyone has any advice or information that could help me. At the beginning...

Hi Everyone, This is my first post, and I'm writing from Canada. I'm wondering ...

Calgarygirl

•5 years ago

6 Replies

Raynauds flare nonstop

Always flare.. Raynauds.. have Raynauds 15 years..it would flare up for 1 to 4 days... recently hospitalized... went into flare that still with me 9 months...

Always flare.. Raynauds.. have Raynauds 15 years..it would flare up for 1 to 4 d...

BCTK

•5 years ago

3 Replies

Burning Feet & Raynauds

HI all, I'm relatively new to this forum and from the US. I'm a 51 year old female with IGA nephropathy ( a type of kidney disease) diagnosed in 2016, as well...

HI all, I'm relatively new to this forum and from the US. I'm a 51 year old fema...

Zazzel

•5 years ago

11 Replies

Scleroderma and swelling

My uncle is newly diagnosed with scleroderma and we are waiting for a referral to a rheumatologist. He just started having swelling I read it is common. It is...

My uncle is newly diagnosed with scleroderma and we are waiting for a referral t...

Cookierey31

•5 years ago

10 Replies

Update on Erythromelalgia Getting Worse

I'd like to update you all and to say thank you for your help in prepping for my appointment on 19th December in Prof. Denton's clinic at the Royal Free. My...

I'd like to update you all and to say thank you for your help in prepping for my...

skylark15

•5 years ago

12 Replies

Energy levels

How do you best deal with low energy ?

Emfrenette

•5 years ago

4 Replies

Methotrexate for linear scleroderma

Hi all, my first post here/anywhere about my illness. I’m feeling very anxious. I’ve read through the forums and know that I am very fortunate to be as healthy...

Hi all, my first post here/anywhere about my illness. I’m feeling very anxious. ...

feverdreams

•5 years ago

3 Replies

WBC not in normal range on last 2 tests

I have systemic scleroderma, Sjögrens and MS and I’ve been on Avonex for my MS for 9 years now. The last two lab tests my WBC has been low and the last one...

I have systemic scleroderma, Sjögrens and MS and I’ve been on Avonex for my MS ...

Hjr4

•5 years ago

2 Replies

Raynauds disturbing my sleep

Hi there, My names Matt and im new here. Im 28 and been diagnosed with raynauds for about 1-2 years, although i suspect ive had it for longer and less severe....

Hi there, My names Matt and im new here. Im 28 and been diagnosed with raynauds ...

Matty662

•5 years ago

43 Replies

Scalp pain with Scleroderma & Raynaud

I just wanted to start off by saying this is my first post/response to any of my issues/illness since they have ever started. For me they started in 2009-2010...

I just wanted to start off by saying this is my first post/response to any of my...

Italiangirl38

•5 years ago

Be the first to reply

Send Us Your Raynaud's Story for Raynaud's Awareness Month in February

We need people to share their Raynaud's story in press and media for Raynaud's Awareness Month in February. You’ll be helping others with the condition and...

We need people to share their Raynaud's story in press and media for Raynaud's A...

SRUKadmin

Partner•5 years ago

2 Replies

Arthritis Pain

What is the best pain killer to combat arthritis, its a long term condition because of my age (72) Thanks.

What is the best pain killer to combat arthritis, its a long term condition beca...

Alanjones

•5 years ago

11 Replies

Sharp pricking sensation on fingertips

Hi everyone, I hope you’re all keeping well. My scleroderma seems to be gearing up - thickening skin on my hands, skin drying out (& had a deep split at the...

Hi everyone, I hope you’re all keeping well. My scleroderma seems to be gearing...

Hidden

•5 years ago

4 Replies

Mycophenolic medicine for scleroderma

Hi everyone I’m new on here, trying to get as much information about anyone that has had scleroderma long term. Helping a family member understand what it is...

Hi everyone I’m new on here, trying to get as much information about anyone that...

Cookierey31

•5 years ago

6 Replies

swollen joints

A couple of the joints on my left hand have become quite swollen and painful, but how do I know whether it's boring old arthritis or an effect of the limited...

A couple of the joints on my left hand have become quite swollen and painful, bu...

volvox45

•5 years ago

4 Replies

Rituximab

Hi everyone - I'm new on here. I was diagnosed with Limited Sys Sclerosis last year and have been taking Methotrexate and Hydroxychloroquine. Unfortunately...

Hi everyone - I'm new on here. I was diagnosed with Limited Sys Sclerosis last y...

MGT56

•5 years ago

14 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for January 2019

Recurring choking on saliva anyone?

Nipple Raynaud's?

Can anyone help me ?

Just wondering ?

Raynaud's Please Help

Reynaud’s Syndrome / Disease in Hands and Feet (Triggered by cold) – Self Help Measures - Discussion Please

“Bruised” finger

Ginkgo Biloba & Raynaud

Coffee with Raynaud

Encouragement

Epsom salts

Itch so bad it feels like wasp stings.

Is it possible my wife has Raynaud's disease?

Transport help

First Rhuem Appointment

Raynauds flare nonstop

Burning Feet & Raynauds

Scleroderma and swelling

Update on Erythromelalgia Getting Worse

Energy levels

Methotrexate for linear scleroderma

WBC not in normal range on last 2 tests

Raynauds disturbing my sleep

Scalp pain with Scleroderma & Raynaud

Send Us Your Raynaud's Story for Raynaud's Awareness Month in February

Arthritis Pain

Sharp pricking sensation on fingertips

Mycophenolic medicine for scleroderma

swollen joints

Rituximab

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