Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,833 members • 5,407 posts

All posts for August 2020

Tongue telangiectasia?

Hello everyone, I hope you are all well. I was just wondering whether anyone has any experience with telangiectasia on the underside of their tongue? My...

Hello everyone, I hope you are all well. I was just wondering whether anyone has...

•4 years ago

definitely not!

I seem to have lost the ability to drink from a cup,glass or bottle without it pouring down my chin. Anyone else have this problem?

I seem to have lost the ability to drink from a cup,glass or bottle without it p...

•4 years ago

Free - 3 pairs of (used) silver socks

I'm having a clear out and have 3 pairs of silver socks that I bought from the Association some years ago. Each pair has only been worn a couple of times so if...

I'm having a clear out and have 3 pairs of silver socks that I bought from the A...

•4 years ago

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Red and White Blotchy Hands?

Hello, I’ve been having trouble with red blotchy hands when they hang to my sides. They feel slightly pressured and it gets worse with the heat. Does anybody...

Hello, I’ve been having trouble with red blotchy hands when they hang to my side...

•4 years ago

Iloprost infusions

Hi everyone Was just wondering if anyone has had their iloprost infusion go ahead as scheduled? As all my other appointments at the Royal Free have been...

Hi everyone Was just wondering if anyone has had their iloprost infusion go ahe...

•4 years ago

Just joined

hi all! I have been told I have Morphea by my Hemotolagist reading my results out. I know I have Raynaurd symptoms but not been tested. I have a phone videk...

hi all! I have been told I have Morphea by my Hemotolagist reading my results ou...

•4 years ago

Do you know of any good books on Scleroderma?

I feel like now is a good time to properly understand my diagnosis. (I watched House, and there were a few concerning (and some, interesting) claims about the...

I feel like now is a good time to properly understand my diagnosis. (I watched H...

thepictrofdoryingrey

•4 years ago

What gastro problems occur with Scleroderma?

I have been referred back to gastro after another increase in painful stomach activity. In the past it's been put down to IBS and stress. I've just rolled with...

I have been referred back to gastro after another increase in painful stomach ac...

thepictrofdoryingrey

•4 years ago

Kninkles

Does anyone have the so called knikles? I

Does anyone have the so called knikles? I

•4 years ago

Immunologist recommendation - help?

Can anyone recommend a private immunologist in the U.K.? Happy to travel if necessary. Any help would be great xx

Can anyone recommend a private immunologist in the U.K.? Happy to travel if nece...

•4 years ago

Glad to be back

Dear friends. I have been absent for about 4 or 5 months, right since the covid shutdown was enforced in Italy, because of various problems with my computer. I...

Dear friends. I have been absent for about 4 or 5 months, right since the covid ...

•4 years ago

Doctor suspects Scleroderma

Hi all, My GP referred me to a rheumatologist at the beginning of March as he suspects I may have Scleroderma. I was supposed to be seen within two weeks, but...

Hi all, My GP referred me to a rheumatologist at the beginning of March as he su...

•4 years ago

Digestive problems.

Is anybody troubled by digestive problems that could be linked to their Scleroderma. I've been suffering with the digestive problems, heartburn and difficulty...

Is anybody troubled by digestive problems that could be linked to their Sclerode...

•4 years ago