Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,408 posts

All posts for June 2018

Is anyone else receiving cyclophosphamide treatment

My husband has just started treatment and I want to know if anyone is

Skeltoncd

•6 years ago

4 Replies

Moving to franxe

Hallo I'm moving to Paris from Poland and I don't know how the health care works there. Do I pay for the doctor and medicien. I have mixed connective tissue...

Hallo I'm moving to Paris from Poland and I don't know how the health care works...

Ela1

•6 years ago

1 Reply

#Know Scleroderma

Morning all, just thought you might like to see the little campaign video for SRUK. A brief video about Scleroderma with a plea to raise funds....

Morning all, just thought you might like to see the little campaign video for S...

LucyJean

•6 years ago

2 Replies

Want to take advantage of all our features? Just log in!

Systemic Sclerosis Scleroderma ...AM I like the only one with this Night mare.. and no cure. Help I feel tormented by Everyone ...

THIS is my first post .... I have Systemic Sclerosis Scleroderma... My vocal cords are on fire .... My Esophagual spasms R Worse... I can't eat ... On the (...

THIS is my first post .... I have Systemic Sclerosis Scleroderma... My vocal cor...

8whitetoes

•6 years ago

7 Replies

Painful feet

I have very painful feet because Scleroderma seems to have removed the fat pads from the soles of my feet.I’m often kept awake by foot pain Does anyone have...

I have very painful feet because Scleroderma seems to have removed the fat pads ...

gussy3

•6 years ago

11 Replies

Birmingham Meeting 01.08.18

Hi Folks, Just checking to see all is well and reminding myself as well as other s about the fast approaching informal meeting in Birmingham on 1st August at...

Hi Folks, Just checking to see all is well and reminding myself as well as other...

avtargill31

•6 years ago

14 Replies

tagged before diagnosis!

To Admin.. why is my post listed as coup sabre even though l didn't type that as my diagnosis?! l haven't even had it considered yet by a doctor!!

To Admin.. why is my post listed as coup sabre even though l didn't type that as...

Shellybrown

•6 years ago

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Vitamin B and Folate levels.

My GP. Noticed three weeks ago that my vitamin B and folate levels were low. Haveing been diagnosed with scleroderma for ten years plus now I should have...

My GP. Noticed three weeks ago that my vitamin B and folate levels were low. Hav...

MFC911

•6 years ago

1 Reply

Hydroxychloroqine Sulfate Quinoric

I put a post on this really helpful forum about my struggle with Hydroxychloroquine sulfate which made me vomit and have a really bad stomach to the point...

I put a post on this really helpful forum about my struggle with Hydroxychloroqu...

AJOC4

•6 years ago

2 Replies

Joint soreness and stiffness

I have an ache and stiffness in both my hips, left knee and really sore ankles. I abandoned my 10 mile run yesterday after only 4 miles. Is this the normal...

I have an ache and stiffness in both my hips, left knee and really sore ankles....

Sylviaherring

•6 years ago

8 Replies

Type of scleroderma?

Doctors not much help.. Hi All :) Fab to find a group who know what they are talking about! :) l need your opinions and your guidence :) I went to 5 different...

Doctors not much help.. Hi All :) Fab to find a group who know what they are ta...

Shellybrown

•6 years ago

12 Replies

Shingles jab

Hi All, I’ve been on Mycophenolate for almost 6 months and have been offered the shingles jab by my GP. I checked with my Rheumatologist and he said to go...

Hi All, I’ve been on Mycophenolate for almost 6 months and have been offered the...

Misty2552017

•6 years ago

6 Replies

Constant sunburn pain in skin of back-any advice?

Hi everyone. I have SSC, Raynauds and Sjogrens, diagnosed 3 years ago. I have had problems with the skin on my back for a while, it flares at night across the...

Hi everyone. I have SSC, Raynauds and Sjogrens, diagnosed 3 years ago. I have ha...

redfairy118

•6 years ago

5 Replies

The positive thread :)

With all the gloom of diagnosis and symptoms, I though it would be great to try and find some positive aspects in our new companions if at all possible! We all...

With all the gloom of diagnosis and symptoms, I though it would be great to try ...

hunkyd0ry

•6 years ago

9 Replies

Itching

I am struggling with severe itching on legs and feet. I have taken two benadryl, 1 mg xanax, used benadryl lotion..... to no avail My nerves are in bad shape...

I am struggling with severe itching on legs and feet. I have taken two benadryl...

Christinus18

•6 years ago

3 Replies

Upset :(

I work in the wonderful world of dentistry and went for a job interview today as I'm interested in going into the Orthodontic field (braces). I went for an...

I work in the wonderful world of dentistry and went for a job interview today as...

SarahJane926

•6 years ago

5 Replies

Enlarged veins on chest xray

Hi does anyone have enlarged veins on their chest xray? My daughter is having trouble breathing on exertion. Recently had an enlarged spleen as well. They have...

Hi does anyone have enlarged veins on their chest xray? My daughter is having tr...

shaunalouise26

•6 years ago

6 Replies

Scleroderma and pregnancy

Anyone gas got experience taking medicine while bring pregnsnt, or his scleroderma affects pregnancy?

Anyone gas got experience taking medicine while bring pregnsnt, or his scleroder...

Ela1

•6 years ago

3 Replies

SIBO in Scleroderma (Small Intestine Bacterial overgrowth)

Hi does anyone suffer with SILBO in scleroderma and all it involves? If so how have they managed it and who have they seen for help?

Hi does anyone suffer with SILBO in scleroderma and all it involves? If so how ...

trunchalobesity

•6 years ago

2 Replies

Hospital docs reading notes after I've left!!!

Went for routine rheumatology appointment a few weeks ago. The doc dropped something on the floor as I walked in. She went down on hands and knees to pick it...

Went for routine rheumatology appointment a few weeks ago. The doc dropped somet...

avtargill31

•6 years ago

2 Replies

Hydroxychloriquine

Hi I’m constantly putting off taking any meds due to all the side effects and keep plodding on with pain etc.. but I’m constantly being pushed to take the...

Hi I’m constantly putting off taking any meds due to all the side effects and ...

Ncoff

•6 years ago

14 Replies

Scleraderma / HHT

Good evening all. Has anybody been diagnosed with systemic sclerosis,scleraderma and HHT, hereditary hemorrhagic telangiectasia? The reason I'm asking is its...

Good evening all. Has anybody been diagnosed with systemic sclerosis,scleraderma...

Joanne_Evans030365

•6 years ago

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mycophenalate

I have systemic sclerederma and due to go on mycophenalate in the next two months.What experience does anybody have of this drug and is it worth the risks...

I have systemic sclerederma and due to go on mycophenalate in the next two month...

haulotte

•6 years ago

11 Replies

Sharing is caring- Hyperbaric Oxygen Therapy Continued...

Second photo, refer to original post for first half of article

SarahJane926

•6 years ago

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Sharing is caring- Hyperbaric Oxygen Therapy

Hi all! Info on some therapy we could use for those of us with Scleroderma and/or Raynauds... HBO or Hyperbaric Oxygen Therapy. There have been case studies...

Hi all! Info on some therapy we could use for those of us with Scleroderma and/o...

SarahJane926

•6 years ago

2 Replies

Systemic Sclerosis - Pain in arms and groin

Hello everyone! This is my first post - I'm just wondering if anyone else gets pain in their shoulders or groin area at all with their condition? I find the...

Hello everyone! This is my first post - I'm just wondering if anyone else gets ...

SarahJane926

•6 years ago

17 Replies

Do not have reynoids!

Why did they put me down as having reynoids. I do not have that

Savannahcolors

•6 years ago

7 Replies

Painful arm

I have a very painful arm at the moment it started about 3 months ago, I have more mobility now. I finally went to my doctor and saw a female doctor, how lucky...

I have a very painful arm at the moment it started about 3 months ago, I have mo...

Denny57

•6 years ago

4 Replies

Swallen stomach

Hallo For last few days I have a feeling of swallen and bloated stonach. Does anyone have simmular experience. The reflux is also much stronger.

Hallo For last few days I have a feeling of swallen and bloated stonach. Does an...

Ela1

•6 years ago

1 Reply

Swallen stomach

Hallo For last few days I have a feeling of swallen and bloated stonach. Does anyone have simmular experience. The reflux is also much stronger.

Hallo For last few days I have a feeling of swallen and bloated stonach. Does an...

Ela1

•6 years ago

1 Reply

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for June 2018

Is anyone else receiving cyclophosphamide treatment

Moving to franxe

#Know Scleroderma

Systemic Sclerosis Scleroderma ...AM I like the only one with this Night mare.. and no cure. Help I feel tormented by Everyone ...

Painful feet

Birmingham Meeting 01.08.18

tagged before diagnosis!

Vitamin B and Folate levels.

Hydroxychloroqine Sulfate Quinoric

Joint soreness and stiffness

Type of scleroderma?

Shingles jab

Constant sunburn pain in skin of back-any advice?

The positive thread :)

Itching

Upset :(

Enlarged veins on chest xray

Scleroderma and pregnancy

SIBO in Scleroderma (Small Intestine Bacterial overgrowth)

Hospital docs reading notes after I've left!!!

Hydroxychloriquine

Scleraderma / HHT

mycophenalate

Sharing is caring- Hyperbaric Oxygen Therapy Continued...

Sharing is caring- Hyperbaric Oxygen Therapy

Systemic Sclerosis - Pain in arms and groin

Do not have reynoids!

Painful arm

Swallen stomach

Swallen stomach

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