Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,824 members • 5,405 posts

All posts for December 2013

Hi all. is there a crest syndrome group, that meets in west yorkshire (england)

I would like to meet others .

Ceylon

•10 years ago

15 Replies

Hi, new here - is this Raynaud's?

Hi, I'm new to this community but I've been getting these issues which I was told was due to Raynaud's: Fingers and toes going white, stiff and numb Pain in...

Hi, I'm new to this community but I've been getting these issues which I was tol...

Hidden

•10 years ago

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Dysarthria & Raynaud's

I missed my Lupus clinic appointment (phoned beforehand) because I'd had a rather nasty attack and couldnt actually make it there and they sent me a follow up...

I missed my Lupus clinic appointment (phoned beforehand) because I'd had a rathe...

medsoph

•10 years ago

3 Replies

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Chilblains

Ahhh I suffer badly with raynoids n now I've got Chilblains on my toes, so painful!!! Anyone no anything that actually works :-(

Ahhh I suffer badly with raynoids n now I've got Chilblains on my toes, so painf...

Emma020884

•10 years ago

10 Replies

Raynoids

Anybody have any good advice for cream or anything to help with the pain I've got a blister starting to form n it's so sore on top of big toe :-(:-(

Anybody have any good advice for cream or anything to help with the pain I've go...

Emma020884

•10 years ago

10 Replies

Nail Fold Capillaries.

Should you be able to see capillaries in your nail folds if you just have raynauds. I've read yes and no. Haven't been able to get rheumy to call back.

Should you be able to see capillaries in your nail folds if you just have raynau...

Tiny1966

•10 years ago

4 Replies

salt and scleroderma

Is there any connection between salt and scleroderma? I have noticed that when I eat food that has salt in it ( cheese, sausages) the itchiness will drive me...

Is there any connection between salt and scleroderma? I have noticed that when I...

papardeles

•10 years ago

3 Replies

Another newbie and worried my problems are so much less than others on here!

Diagnosed with limited scleroderma a few months ago having had Raynaud's for a while and developing an agonising sore finger. Had heart and lungs checked and...

Diagnosed with limited scleroderma a few months ago having had Raynaud's for a w...

GillB46

•10 years ago

21 Replies

New to Raynauds, any mums out there? Any financial help eg Disability Living Allowance for children?

Hi my daughter who is 12 nearly 13 has been diagnosed with Raynauds Disease and has also had coeliac disease since she was 6. I noticed in June even on a hot...

Hi my daughter who is 12 nearly 13 has been diagnosed with Raynauds Disease and ...

Hidden

•10 years ago

2 Replies

Work wear

Hi I work in a pharmacy n our shop has no heating n suffer really bad with raynoids I wear protective boots to work to keep my feet warm and we have fleece...

Hi I work in a pharmacy n our shop has no heating n suffer really bad with rayno...

Emma020884

•10 years ago

15 Replies

Does Morphea start out as a white circle?

Wondering if morphea starts out as a white circle. Just a circle with regular colored skin in middle. Not itchy dry or sore. I do have mast cell activation...

Wondering if morphea starts out as a white circle. Just a circle with regular co...

Tiny1966

•10 years ago

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research for scleroderma

Is anyones know if any research is going around about scleroderma? Does he know if there are positive?Is there any hope?

Is anyones know if any research is going around about scleroderma? Does he know ...

papardeles

•10 years ago

4 Replies

l'arginine - has anyone used this as a possible supplement to help with circulation? If so,to what effect? thank you!

niky257

•10 years ago

4 Replies

stiff fingers when i wake in mornings,pain in trying to clench fist & some fingers lock i have to open them up pain continues through day

more pain in mornings,its been like this for over 10 months andgetting worse also on one hand my pads are swollen and on the other i was diagnosed many years...

more pain in mornings,its been like this for over 10 months andgetting worse als...

Cjomar

•10 years ago

7 Replies

Taking PPI for your acid reflux or stomach ulcers? Saw this on BBC News today! Should we be asking our Doctors about this?

http://www.bbc.co.uk/news/health-25314643

AliW

•10 years ago

1 Reply

Does anyone have first hand experience concerning non-hodgkinson's lymphoma?

I have been diagnosed with Scleroderma and have an appointment with my Rheumatologist next week. As a prelude, I have been reading over the last report he sent...

I have been diagnosed with Scleroderma and have an appointment with my Rheumatol...

titanicus

•10 years ago

6 Replies

Winter Fuel Allowance Petition

If you feel that the Winter Fuel Allowance should be provided to those with illnesses that are aggravated by the weather, such as Raynaud's, you can sign a...

If you feel that the Winter Fuel Allowance should be provided to those with illn...

SRUKadmin

Partner•10 years ago

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raynoids is it primary or secondary? ?

have been told I now have an under active thyroid is this classed as primary or secondary raynoids

have been told I now have an under active thyroid is this classed as primary or ...

Emma020884

•10 years ago

6 Replies

raynoids and low active thyroid

I was diagnosed with raynoids a few years back n had my Ana tested cos was having new symptoms this year I've been told my blood test come back abnormal n I...

I was diagnosed with raynoids a few years back n had my Ana tested cos was havin...

Emma020884

•10 years ago

1 Reply

primary raynoids with new symptoms

hi I have been to see a rheumatoligist doctor a few years back and was diagnosed with primary raynoids just in my feet he put me on nifedipine 5mg twice daily...

hi I have been to see a rheumatoligist doctor a few years back and was diagnosed...

Emma020884

•10 years ago

2 Replies

I was diagnosed with Raynaud's 3yrs ago and last yr finally put on Amlodipine for it. So can I still donate blood?

Oxnard_duffy

•10 years ago

3 Replies

Arthitis sufferers, this may be of interest to you.

Has anyone else seem or tried this? I'm a bit wary since my understanding is the Systemic Sclerosis is an over-production of collagen and it seems odd to be...

Has anyone else seem or tried this? I'm a bit wary since my understanding is th...

Madge51

•10 years ago

6 Replies

Does anyone know of or had severe neck pain, from mild to debilitating? Not often just springs up out of nowhere.

I ask because this goes back long before I was diagnosed. I asked about it, was tested with something, nothing to detect. I can go up to 2 to 3 years before it...

I ask because this goes back long before I was diagnosed. I asked about it, was ...

livinginpain

•10 years ago

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does anyone no anything about the ana blood test

hi ive had the ana blood test done n was told by the hospital is was a positive result when ive gone to see my gp she said no its a negative result because its...

hi ive had the ana blood test done n was told by the hospital is was a positive ...

Emma020884

•10 years ago

6 Replies

Freezing nose

I have a secondary reynauds dx. My hands get icy and I keep getting the same ulcer in the same place on my right thumb. My doc says that my ice cold bright...

I have a secondary reynauds dx. My hands get icy and I keep getting the same ulc...

SheriFrost

•10 years ago

5 Replies

Ana blood test

hi I'm really confused I was diagnosed with raynoids a few years bk n was told it was primary raynoids I had a blood test done to check my ana levels the...

hi I'm really confused I was diagnosed with raynoids a few years bk n was told i...

Emma020884

•10 years ago

5 Replies

Here I go again

It's only just started to get cold here but I am already having problems with my hands and feet , I have uploaded a photo of my fingers ...my toes are even...

It's only just started to get cold here but I am already having problems with my...

TJme

•10 years ago

12 Replies

Winter Fuel Allowance petition.

Hi thanks for getting the momentum going to everybody who has signed the petition below. Please encourage others to sign. It is helping raise awareness of...

Hi thanks for getting the momentum going to everybody who has signed the petitio...

bluesgirl

•10 years ago

12 Replies

My Third ACTT Training Session

ACTT Training is aimed to find ways around medical conditions so that members can do whatever they want to do, without feeling limited. Our third session is...

ACTT Training is aimed to find ways around medical conditions so that members ca...

SmallButMighty

•10 years ago

Be the first to reply

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for December 2013

Hi all. is there a crest syndrome group, that meets in west yorkshire (england)

Hi, new here - is this Raynaud's?

Dysarthria & Raynaud's

Chilblains

Raynoids

Nail Fold Capillaries.

salt and scleroderma

Another newbie and worried my problems are so much less than others on here!

New to Raynauds, any mums out there? Any financial help eg Disability Living Allowance for children?

Work wear

Does Morphea start out as a white circle?

research for scleroderma

l'arginine - has anyone used this as a possible supplement to help with circulation? If so,to what effect? thank you!

stiff fingers when i wake in mornings,pain in trying to clench fist & some fingers lock i have to open them up pain continues through day

Taking PPI for your acid reflux or stomach ulcers? Saw this on BBC News today! Should we be asking our Doctors about this?

Does anyone have first hand experience concerning non-hodgkinson's lymphoma?

Winter Fuel Allowance Petition

raynoids is it primary or secondary? ?

raynoids and low active thyroid

primary raynoids with new symptoms

I was diagnosed with Raynaud's 3yrs ago and last yr finally put on Amlodipine for it. So can I still donate blood?

Arthitis sufferers, this may be of interest to you.

Does anyone know of or had severe neck pain, from mild to debilitating? Not often just springs up out of nowhere.

does anyone no anything about the ana blood test

Freezing nose

Ana blood test

Here I go again

Winter Fuel Allowance petition.

My Third ACTT Training Session

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