Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,833 members • 5,407 posts

All posts for August 2017

Raynauds

I have had CREST for 30 years and Raynauds from the beginning.Lately,my fingers and toes are colder and my big toenails are all deformed. I wear socks with...

I have had CREST for 30 years and Raynauds from the beginning.Lately,my fingers ...

birdballet

•7 years ago

6 Replies

Toe nails

Hi all, I have scleroderma and raynauds and I am losing my toe nails. This has only just starting to happen. At this present time i am listing 3 Has anyone...

Hi all, I have scleroderma and raynauds and I am losing my toe nails. This has ...

77lindy

•7 years ago

18 Replies

limb pain

Hey everyone Last week I caught a virus and I had normal virus symptoms but also SSc just ramped up from pretty calm to: fatigue (strong bout I managed to...

Hey everyone Last week I caught a virus and I had normal virus symptoms but also...

Hidden

•7 years ago

3 Replies

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Silver ring splints

My rheumatologist is sending me off to see a 'hand therapist' in September. I think in may be an OT, or physio trained person, but this is the title that is on...

My rheumatologist is sending me off to see a 'hand therapist' in September. I th...

cpns

•7 years ago

16 Replies

Am I having anxiety? Strange symptoms.

I used to have constant anxiety and panic attacks, I had it well controlled and have been off medication for 2 years. 10 days ago I woke up in the middle of...

I used to have constant anxiety and panic attacks, I had it well controlled and ...

SomethingIsWrong

•7 years ago

2 Replies

Lumps and bumps

Hi, I got diagnosed with systemic sclerosis nearly three years ago (including Reynaud's) . Recently found a lump/swelling on left side clavicle and have read...

Hi, I got diagnosed with systemic sclerosis nearly three years ago (including Re...

TW35

•7 years ago

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Advice please

I have had Raynauds my whole life (I am 48) and was diagnosed with linear scleroderma when I was about 13. Over the past couple of years, I have started to...

I have had Raynauds my whole life (I am 48) and was diagnosed with linear sclero...

Saranna29

•7 years ago

2 Replies

Calcium channel blockers?

I'm off to see my GP on Wednesday about my mild hypertension. I suspect he will want me to take some sort of drug. I was hoping I'd be given something that...

I'm off to see my GP on Wednesday about my mild hypertension. I suspect he will ...

fbirder

•7 years ago

3 Replies

KB

I have had scleroderma and rhematoid arthritis since 2004 The last few days my pain has been insane I live in the United States is there treatments that would...

I have had scleroderma and rhematoid arthritis since 2004 The last few days my p...

Kathyborkovec

•7 years ago

2 Replies

Therapist

Hi everyone I've to go and see Occupational therapist has anyone else been to see one?

Hi everyone I've to go and see Occupational therapist has anyone else been to se...

Sandie12

•7 years ago

7 Replies

Fired from work because of Raynaud's

Well folks, I had an prostacyclin infusion last November and was signed of sick for many months. I went back to work in June and because my one finger is...

Well folks, I had an prostacyclin infusion last November and was signed of sick ...

avtargill31

•7 years ago

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Raynauds 😒

I have been taking Adalat Retard for my Raynauds for about 2years with no side effects. Last week I went to my rheumatologist I told her I was having a lot of...

I have been taking Adalat Retard for my Raynauds for about 2years with no side e...

Banker123

•7 years ago

2 Replies

Finding someone like me

I am living with systemic sclerosis it has been a while now was wondering if anyone on here with the same thing is from London? Would appreciate if you could...

I am living with systemic sclerosis it has been a while now was wondering if any...

KayD_

•7 years ago

8 Replies

Loneliness of the illness

As I'm usually upbeat lately it's been tougher cause of not being able to have a real job, focusing a lot of time on what I can eat- what I can't, what i can...

As I'm usually upbeat lately it's been tougher cause of not being able to have a...

Littleleni

•7 years ago

7 Replies

Iloprost infusion as an inpatient

I am due to go into a major London Hospital for five days of Iloprost infusion, eight hours a day. I have refused this treatment for some years, but my...

I am due to go into a major London Hospital for five days of Iloprost infusion, ...

linda-l

•7 years ago

17 Replies

Winter hibernation preparation - best thermal clothing suggestions

Hi everyone, I'm planning ahead for the cold weather (I'm sure most of you like myself are starting to feel it already)! My reynauds has gotten increasingly...

Hi everyone, I'm planning ahead for the cold weather (I'm sure most of you like...

Croft1987

•7 years ago

19 Replies

Cyclophosphamide

Hi, I've been recently diagnosed with Scleroderma sine scleroderma, mainly affecting my lungs, and treatment is an in infusion of cyclophosphamide every 2...

Hi, I've been recently diagnosed with Scleroderma sine scleroderma, mainly affec...

Hidden

•7 years ago

6 Replies

Anyone cured Raynaud's with Thyroid meds? see links in message....

I have relative who was presribed Thyroid meds in Uk and then moved to Australia and stopped taking them. Now developed Raynaud's with digital finger tip...

I have relative who was presribed Thyroid meds in Uk and then moved to Australia...

juliat

•7 years ago

5 Replies

Of possible interest..

https://academic.oup.com/rheumatology/article-lookup/doi/10.1093/rheumatology/kex163

https://academic.oup.com/rheumatology/article-lookup/doi/10.1093/rheumatology/ke...

Hidden

•7 years ago

3 Replies

Aching hands an pain

Hi what's the best pain killer to stop all the aches and pains in my hands it's doing my head in ...........tried oramorph......gabopentin.........amytripoline...

Hi what's the best pain killer to stop all the aches and pains in my hands it's ...

eggbox1970

•7 years ago

2 Replies

Morphea duffuse

I wrote a post sometime ago as i have morphea my NHS apt was cancelled again, forcing me to seek a private consultation in Leeds, glad I did, as we know it...

I wrote a post sometime ago as i have morphea my NHS apt was cancelled again, fo...

Hidden

•7 years ago

6 Replies

Improve care and support for people living with Scleroderma and Raynaud's

As part of RAIRDA, we want to know your experiences of care and support for people living with different rheumatic conditions like Scleroderma and Raynaud's,...

As part of RAIRDA, we want to know your experiences of care and support for peop...

SRUKadmin

Partner•7 years ago

2 Replies

Scleroderma hot sweats

Hi lol I have been having lots of hot sweats is this normal ? and is there anything I can take for it.

Hi lol I have been having lots of hot sweats is this normal ? and is there anyth...

Sandie12

•7 years ago

19 Replies

Any link?

Hi I am wondering if there maybe any link between UCTD and Friedrichs Ataxia which my niece has. Does anyone with scleroderma or similar have a relative with...

Hi I am wondering if there maybe any link between UCTD and Friedrichs Ataxia wh...

Immunewolf21

•7 years ago

5 Replies

Tightness in Knees and wrist

Hi everyone, Just wondering is it just me or do Scleroderma patients have difficulty bending down to pick up items or even squating. My knees seem really tight...

Hi everyone, Just wondering is it just me or do Scleroderma patients have diffic...

naila_007

•7 years ago

3 Replies

Healthy Gut Diet

I've recently read an article about this in a supplement in the Mail and googled it for more information. I've recently started drinking Actimel first thing in...

I've recently read an article about this in a supplement in the Mail and googled...

Dawzelle

•7 years ago

12 Replies

Scleroderma

I have raynauds, scleroderma my lungs are real bad on oxygen all the time. I'm on lots of medicine about 3 weeks ago they put me on 3000 mg of cellcept a day...

I have raynauds, scleroderma my lungs are real bad on oxygen all the time. I'm ...

Jaflynt

•7 years ago

2 Replies

Alternative advice..

Hey Everyone Just a quickie I was in hospital about 7 weeks ago with a suspected Heart Attack due to the Systemic Sclerosis and a reaction to 1 MMF tablet.. I...

Hey Everyone Just a quickie I was in hospital about 7 weeks ago with a suspected...

kel87

•7 years ago

1 Reply

Runny eyes

Hi everyone I have scleroderma and recently have been constantly affected with runny eyes, runny nose and dribbling mouth. Does anyone else have this

Hi everyone I have scleroderma and recently have been constantly affected with r...

Pennypetra

•7 years ago

7 Replies

raynauds of the Nose

hi! i am joining this community because my raynauds has effected my nose which is getting worse every year. now it shuts down and turns purple during the...

hi! i am joining this community because my raynauds has effected my nose which...

jacquelinajane

•7 years ago

13 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for August 2017

Raynauds

Toe nails

limb pain

Silver ring splints

Am I having anxiety? Strange symptoms.

Lumps and bumps

Advice please

Calcium channel blockers?

KB

Therapist

Fired from work because of Raynaud's

Raynauds 😒

Finding someone like me

Loneliness of the illness

Iloprost infusion as an inpatient

Winter hibernation preparation - best thermal clothing suggestions

Cyclophosphamide

Anyone cured Raynaud's with Thyroid meds? see links in message....

Of possible interest..

Aching hands an pain

Morphea duffuse

Improve care and support for people living with Scleroderma and Raynaud's

Scleroderma hot sweats

Any link?

Tightness in Knees and wrist

Healthy Gut Diet

Scleroderma

Alternative advice..

Runny eyes

raynauds of the Nose

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