Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,822 members • 5,405 posts

All posts for July 2021

Scleroderma and prolapse uterus

Hello everyone I have actually got UCTD but worsening features of Limited Systemic Sclerosis in my gut. A couple of years ago I developed the features of SIBO...

Hello everyone I have actually got UCTD but worsening features of Limited System...

•3 years ago

Have been told autoimmune.. After being treated for Giant cell arteritis..they think SLE

I have developed tiny white spots on 2 of my knuckles and are painful if knocked does this happen with all autoimmune or specific ones ..Been trying to learn...

I have developed tiny white spots on 2 of my knuckles and are painful if knocked...

•3 years ago

Get them checked!! Little black spots on fingers or toes

>> If you ever have black numb or painful spots show up on your fingers or toes while you have Reynaud's acting up a fair bit - get it checked out. Even if it...

>> If you ever have black numb or painful spots show up on your fingers or toes ...

•3 years ago

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Raynauds and Eczema

Does anyone else out there have Raynauds and Eczema? I've had Raynauds for literally as long as I can remember, but the eczema started about 15 years ago and...

Does anyone else out there have Raynauds and Eczema? I've had Raynauds for lite...

•3 years ago

Scleroderma info from John Hopkins Scleroderma Centre

Just came across this useful resource https://www.hopkinsscleroderma.org/patients/living-scleroderma/

Just came across this useful resource https://www.hopkinsscleroderma.org/patient...

•3 years ago

Confusion over information relating to pro biotics!

Now I feel the Gabapentin is helping me be more comfortable with my leg ulcer problem I thought I would have a go to sort my inflamed bowel problem. I went...

Now I feel the Gabapentin is helping me be more comfortable with my leg ulcer pr...

•3 years ago

Sleeping with raynauds

Hi, My names Matt and I’ve been suffering with raynauds for around 8 years now. Just wondering how are people sleeping with raynauds during the summer?? I wake...

Hi, My names Matt and I’ve been suffering with raynauds for around 8 years now. ...

•3 years ago

Keep face masks petition

The followingis a petition to keep face masks. Please share on other social sites too if you can. https://petition.parliament.uk/petitions/590616

The followingis a petition to keep face masks. Please share on other social s...

•3 years ago

pain from leg ulcer

Hi / I am 78 years of age and about 5 months ago I developed phlebitis in right leg / having had a previous bout on left leg I nursed myself but at end of the...

Hi / I am 78 years of age and about 5 months ago I developed phlebitis in right ...

•3 years ago

Interesting article here on gaslighting by medical professionals

https://themighty.com/2021/06/subtle-medical-gaslighting-chronic-illness-disability/

https://themighty.com/2021/06/subtle-medical-gaslighting-chronic-illness-disabil...

•3 years ago

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Colostomy

I have been recommended for colostomy for Scleroderma bowel. Been using Qufora cone toilet system for over 2 years and having PTNS treatment. Now this isn’t...

I have been recommended for colostomy for Scleroderma bowel. Been using Qufor...

•3 years ago

Numb side of throat

Half of my throat has felt numb for the past 8 or 9 years. When I cough or clear my throat I don't feel anything on one side of my throat. I always seem to...

Half of my throat has felt numb for the past 8 or 9 years. When I cough or clear...

•3 years ago

Lung transplant

Hi all I’m just starting the process to see if I am suitable for a lung transplant. I have scleroderma, Raynaud’s phenomenon & interstitial lung disease. Has...

Hi all I’m just starting the process to see if I am suitable for a lung transpla...

•3 years ago

Treatments for Erythromelalgia

Hello, Community. I have Lupus, severe Raynaud's and a long history of secondary erythromelalgia of my feet. It has got steadily worse over the last few years...

Hello, Community. I have Lupus, severe Raynaud's and a long history of secondary...

•3 years ago

Disease flare post vaccinations

Anyone else just felt sicker generally a few weeks after the second jab (AZ)? I had loads of weird symptoms about 4 weeks after (numb tongue, periods all over...

Anyone else just felt sicker generally a few weeks after the second jab (AZ)? I ...

•3 years ago

Face changes

Hi all, the whole left hand side of my face has started to feel quite uncomfortable, a bit numb and tingly like I’ve been to the dentists. Is this what happens...

Hi all, the whole left hand side of my face has started to feel quite uncomforta...

•3 years ago

Methotrexate

Hi Ruby Robs, I have circumferential Morphea with fasciitis. My elbows, wrists, fingers, knees and ankles are affected - bent and locked, my skin between the...

Hi Ruby Robs, I have circumferential Morphea with fasciitis. My elbows, wrists,...

•3 years ago

Covid vaccinations

Hi My mum is too nervous to have the vaccine due to the lack of information on this at the moment for people with scleroderma. She has limited cutaneous...

Hi My mum is too nervous to have the vaccine due to the lack of information on ...

•3 years ago

Covid vaccinations

Has anyone with lung fibrosis contracted covid since receiving the vaccinations? How did it affect you and did you still end up in hospital? What symptoms did...

Has anyone with lung fibrosis contracted covid since receiving the vaccinations?...

•3 years ago

Methotrexate

Thanks for the responses to my previous post. I have now had two doses of Methotrexate. I take it early evening on a Sunday, and in terms of side effects have...

Thanks for the responses to my previous post. I have now had two doses of Metho...

•3 years ago

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