Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,288 members•5,729 posts

All posts for March 2020

Won my pip

hi everyone had a fone call today won my pip back after 12 month stress all back dated such gud news hope everyone doing OK love Sarah xxx

hi everyone had a fone call today won my pip back after 12 month stress all back...

•5 years ago

HERBAL REMEDIES FOR CALCINOSIS? CHANCA PIEDRA TEA OR ESSAIC TEA?

Hi everyone, Let me 1st start off by saying I absolutely love this group! I just got a whole wad of calcinosis cutis removed from my elbow, and I'm discovering...

Hi everyone, Let me 1st start off by saying I absolutely love this group! I just...

•5 years ago

Rheumatology 2nd appointment

I had my first rheumatology appointment earlier this month and had several blood tests, saliva test and schirmer's test done.I havent had results yet but I've...

I had my first rheumatology appointment earlier this month and had several blood...

•5 years ago

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IS COLLAGEN SUPPLEMENT SAFE?

Hi all - Does anybody know anything about marine collagen/hyalauronic acid supplement? I’ve been taking this for years (Promotes good skin/hair). When I was...

Hi all - Does anybody know anything about marine collagen/hyalauronic acid suppl...

•5 years ago

Please help

I have limited systemic scleroderma/raynauds/calcinotis cutis and I’m a 36 year old woman.Being in isolation all I’m doing is reading about scleroderma and...

I have limited systemic scleroderma/raynauds/calcinotis cutis and I’m a 36 year ...

•5 years ago

Nitro cream use for Raynaud's?

Hi everyone, has anyone ever tried nitro cream for Raynaud's on hands? My Dr just prescribed it for dilating blood vessels to the finger that get ulcers...

Hi everyone, has anyone ever tried nitro cream for Raynaud's on hands? My Dr jus...

•5 years ago

Conference call

Just a gentle reminder about the conference call tomorrow (Sunday)Any problems, let me know x

Just a gentle reminder about the conference call tomorrow (Sunday)Any problems, ...

•5 years ago

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I feel electric flow throughout my body

I am a Buddist I started meditation about 2 years back. While doing meditation I feel some electrical effect throughout my body. Some wawes are very strong....

I am a Buddist I started meditation about 2 years back. While doing meditation I...

•5 years ago

New Raynaud’s Diagnosis

Hi All I was diagnosed last week with Raynaud’s having had numbness and pain in my left foot for about 4 weeks. My toes did the colour change thing in front of...

Hi All I was diagnosed last week with Raynaud’s having had numbness and pain in ...

•5 years ago

wales

Hi all,does anybody know if the warning letters apply to Wales. I have systemic sclerosis and ild but no letter yet

Hi all,does anybody know if the warning letters apply to Wales. I have systemi...

•5 years ago

No letter?

I was expecting to recieve a letter about being in the high risk category for coronavirus but so far nothing. Does anyone know if they have all been sent out...

I was expecting to recieve a letter about being in the high risk category for co...

•5 years ago

Who is on this Govt list then?

I cannot find out if I am on this so-called ‘vulnerable’ list however on the RA website they list All CTD sufferers, Scleroderma and Sjogren’s (yes, three...

I cannot find out if I am on this so-called ‘vulnerable’ list however on the RA ...

•5 years ago

Doubts about lupus

Hello all, My name´s Fiorella and I was diagnosed with primary Raynauds 5 years ago. Until now I never had other symptoms except for the typical change of...

Hello all, My name´s Fiorella and I was diagnosed with primary Raynauds 5 years ...

•5 years ago

meeting replacement with weekly conference calls to alleviate worry's around covid 19 around the West Midlands area.

Hi folks, I have been asked if we can have weekly conference calls with all the worry around covid 19. With this in mind, we will be holding a conference calls...

Hi folks, I have been asked if we can have weekly conference calls with all the ...

•5 years ago

Limited cutaneous systemic sclerosis, secondary Raynauds and IEM versus COVID-19

Hello Reading confusing reports about this, should we who have this be self isolating? I have no lung involvement and don’t take immune-suppressant drugs....

Hello Reading confusing reports about this, should we who have this be self isol...

•5 years ago

High risk

Hi does anyone know if we with raynaurds are high risk?

Hi does anyone know if we with raynaurds are high risk?

•5 years ago

Birmingham meeting postponed

Hi folks, it’s with deepest regret that I’ve been asked to postpone our May meeting due to the covid 19 virus. The instruction was given by SRUK, due to...

Hi folks, it’s with deepest regret that I’ve been asked to postpone our May meet...

•5 years ago

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Novel Coronavirus (COVID-19) advice for our community

Hello Everyone, We have published the latest information on Novel Coronavirus (COVID-19) on the Scleroderma & Raynaud's UK website -...

Hello Everyone, We have published the latest information on Novel Coronavirus (...

•5 years ago

Any advice?

Hey everybody! I got diagnosed Raynaud’s disease a while back now... I’ve dealt with multiple winters and times where I just end up being cold for no reason. I...

Hey everybody! I got diagnosed Raynaud’s disease a while back now... I’ve dealt ...

•5 years ago

Raynauds and Scleroderma - Stinging, inflammed and sore finger tips!

Got 3 stinging fingers on my right hand.The middle one being the most troublesome! It has scab from.an old ulcer, this finger tip seems to collect fluid like a...

Got 3 stinging fingers on my right hand.The middle one being the most troublesom...

•5 years ago

Need advice!

In February my right hand (specifically just fingers) suddenly swelled up two times randomly. There wasn’t any sharp pain, just discomfort from decreased range...

In February my right hand (specifically just fingers) suddenly swelled up two ti...

•5 years ago

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Coronavirus

Hi I have interstitial lung disease as per scleroderma. Naturally worried about the rapid spread of Coronavirus with most deaths being caused by other...

Hi I have interstitial lung disease as per scleroderma. Naturally worried abou...

•5 years ago

Does this look like raynauds?

My hands, nose and feet are always cold.I have my first rheumatology appointment next week for suspected sjogren's and psoriatic arthritis.

My hands, nose and feet are always cold.I have my first rheumatology appointment...

•5 years ago

I get like an electric shock feeling that runs through my body, has anyone else experienced this?

Everytime I'm with my partner, we're making love, everything is going fine untill the climax comes, exactly at the time i ejaculate i feel shivers in my body...

Everytime I'm with my partner, we're making love, everything is going fine until...

•5 years ago

Any one else having leg problems.

Hiya I have had always had a problem with cold hands and feet . Just over a year ago I stopped been able to stand still on the spot at all as after just a...

Hiya I have had always had a problem with cold hands and feet . Just over a year...

•5 years ago