Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,113 members•5,638 posts

All posts for March 2019

Anyone have these Raynaud’s symptoms?

hello all! I was officially diagnosed with raynaud's this year, even though I suspected I had it for many years. My toes turn a nice shade of reddish purple...

hello all! I was officially diagnosed with raynaud's this year, even though I su...

Vc06

•6 years ago

25 Replies

Mycophenolate

Has anyone had mycophenolate infusions. How long does this take and any reactions. Thanks for any help and info

Has anyone had mycophenolate infusions. How long does this take and any reaction...

normanv

•6 years ago

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Pain and things I feel I have to do

I have pain almost all the time. I am 63 and live with my husband and dog. My mother, age 92, has dementia, and just had her 2nd stroke in February when I...

I have pain almost all the time. I am 63 and live with my husband and dog. My mo...

Hidden

•6 years ago

8 Replies

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‘Muscular’ pain

I have a variety of autoimmune related symptoms including Raynauds and tested positive for scleroderma antibodies amoung others. I was just posturing to see if...

I have a variety of autoimmune related symptoms including Raynauds and tested po...

chocaddict26

•6 years ago

8 Replies

Primary Raynauds not CREST

I’m really confused. The gp I spoke with a few weeks ago was great and advised bloods to check for crest. I’ve just seen a different gp for results and...

I’m really confused. The gp I spoke with a few weeks ago was great and advised ...

Frozen18

•6 years ago

13 Replies

Informal chilled out meeting 14.04.19

Hi Folks, Our last meeting had to be postponed so we have decided to do it again on a sunday when no work can obstruct us. we have a date and venue for our...

Hi Folks, Our last meeting had to be postponed so we have decided to do it again...

avtargill31

•6 years ago

6 Replies

redness on all fingers distal joints

have had symmetrical redness across all distal fingers not as much on thumbs. almost looks sunburned and has some light brown border around rash like a...

have had symmetrical redness across all distal fingers not as much on thumbs. al...

pianoplayer0

•6 years ago

3 Replies

Back Pain

Hi, I'm looking for some advice, I have Primary Raynauds and I'm taking Naftidrofuryl 100mg, Fultium D3 32,000 units and Co-codamol 30/500mg. I have recently...

Hi, I'm looking for some advice, I have Primary Raynauds and I'm taking Naftidro...

BertieB_280616

•6 years ago

3 Replies

Working with chronic illness

Hi there I'm just in my first year of this diagnosis of crest syndrom and reynauds . I'm still in the dark since doctors dont really know what to give me and...

Hi there I'm just in my first year of this diagnosis of crest syndrom and reynau...

Emfrenette

•6 years ago

6 Replies

Diets/bone broth

Have questions about diets or illiminating foods from diet . I eat alot of starch I have a very picky family to feed and I'm finding myself eating just like...

Have questions about diets or illiminating foods from diet . I eat alot of starc...

Emfrenette

•6 years ago

3 Replies

Pins and Needles

What causes the pins and needles and very hot flushes through your body , this causes me to stay in my bed . It feels like you can feel the blood actually...

What causes the pins and needles and very hot flushes through your body , this c...

forevermu

•6 years ago

4 Replies

Sunshine helps

I was diagnosed with scleroderma almost 5 years ago. The worst symptom I have is the pain in my feet when walking. I have tried lots of different treatments...

I was diagnosed with scleroderma almost 5 years ago. The worst symptom I have is...

ilovedancing

•6 years ago

6 Replies

Raynaud's - open sore and general confusion!

Hi! MY BACKGROUND: I was diagnosed with Raynaud's in early 2015, after suffering with it for around 2 years previously. My toes are affected much more than my...

Hi! MY BACKGROUND: I was diagnosed with Raynaud's in early 2015, after suffering...

SpinyHog

•6 years ago

8 Replies

Anyone get sore fingers with primary raynauds?

Hi there, I have primary raynauds and have had it since my teens (35 years). It’s got slightly worse in the last few years. I saw a rheumatologist a couple of...

Hi there, I have primary raynauds and have had it since my teens (35 years). It’...

Julesboz

•6 years ago

6 Replies

Raynards

Hi I am new here I have had problems with my feet going blue/purple they never go white or red I had to pay privately to see the Rheumatologist as my doctors...

Hi I am new here I have had problems with my feet going blue/purple they never g...

160376

•6 years ago

1 Reply

Working with an illness

Hi all hope I are well I would like to ask if you work with an illness what kind of job you have or have you had to give up? Or work from home let me know...

Hi all hope I are well I would like to ask if you work with an illness what ki...

Kc_1411

•6 years ago

3 Replies

catching up!

Hello everyone and best wishes. I have been told the scleroderma is much worse which is depressing.Does anyone else feel fatigued all the time and now my legs...

Hello everyone and best wishes. I have been told the scleroderma is much worse w...

Selsey

•6 years ago

1 Reply

Experience with Systemic Sclerosis and acupuncture?

Hi all. I have systemic slerosis with all the usual CREST symptoms, with the most problems occuring in my hands. My fingers are puffy and swollen, stiff,...

Hi all. I have systemic slerosis with all the usual CREST symptoms, with the mos...

hunkyd0ry

•6 years ago

5 Replies

calcinosis

I have an area over my knee cap that has been troubling me for 5 months. Underneath the skin it feels like a hard layer approx. size of a 2 pence piece....

I have an area over my knee cap that has been troubling me for 5 months. Underne...

newton

•6 years ago

5 Replies

My dad's just been diagnosed

Hi there, So my dad's just been diagnosed with Raynaud's and I wanted some advice on how to best support him as I'm the oldest child out of the three of us I...

Hi there, So my dad's just been diagnosed with Raynaud's and I wanted some advic...

Funnymango

•6 years ago

6 Replies

A delicate area.

My podiatrist says I have Raynauds, as yet not confirmed by Rheumatology. Numbness, tingling, pain in soles of my feet etc. As well as these areas I have...

My podiatrist says I have Raynauds, as yet not confirmed by Rheumatology. Numbne...

Oddjobman

•6 years ago

5 Replies

Daughter diagnosed with systematic sclerosis

Hi my daughter was recently diagnosed with systematic sclerosis. Is there anything at home I can do to make her life a bit more comfy?

Hi my daughter was recently diagnosed with systematic sclerosis. Is there anythi...

Haneefa123

•6 years ago

12 Replies

Raynaud's, Looking for advice.

Went to see another specialist, I had been diagnosed with primary Rays about 3 years ago. The 1st specialist started to doubt his diagnosis after lack of...

Went to see another specialist, I had been diagnosed with primary Rays about 3 y...

BertieB_280616

•6 years ago

14 Replies

Is this typical?

I’m currently under investigation for CREST etc this is my hands after they’ve been blue. Is this the normal changes? They burn like hell as soon as they...

I’m currently under investigation for CREST etc this is my hands after they’ve b...

Frozen18

•6 years ago

8 Replies

Information

Does anyone know if you can take nefopam with immune suppressing drugs, I take mycophenalate and hydroxycloriquine and for pain relief iv got gabapentin and...

Does anyone know if you can take nefopam with immune suppressing drugs, I take m...

Hidden

•6 years ago

7 Replies

Morphea Scars

Hi, my 9 year old daughter currently has dark morphea scars/patches on her stomach, left side of body and middle of back. To see this is an upsetting...

Hi, my 9 year old daughter currently has dark morphea scars/patches on her stoma...

Barry_G

•6 years ago

2 Replies

Hi I'm a 57 year old male with CREST Raynauds overlapping other interconnective tissue disease's I have recently having a lot of problems

Hi I'm a 57 year old male with CREST Raynauds overlapping other interconnective tissue disease's I have recently having a lot of problems with stairs ....

Hi I'm a 57 year old male with CREST Raynauds overlapping other interconnective ...

Psg83

•6 years ago

8 Replies

Could this be something else other than raynaud's?

Hi everyone. I have had raynaud's for about 3-4 years now. Only ever had a problem with cold hands but in thr last 3-4 months it's significantly worse despite...

Hi everyone. I have had raynaud's for about 3-4 years now. Only ever had a probl...

Hidden

•6 years ago

11 Replies

Nifedipine and Gastroparosis

I started on Nephedipine 30mg. It did not work. My dosage was increased to 60mg. This amount worked a little. I was then increased to 90mg. and this worked...

I started on Nephedipine 30mg. It did not work. My dosage was increased to 60mg....

Berniz

•6 years ago

4 Replies

Burning fingers

Hi does anyone get burning fingers , I’ve had Raynauds for 30 years IN my hands and feet they go all colours never a nice pink colour , last three years I’ve...

Hi does anyone get burning fingers , I’ve had Raynauds for 30 years IN my hands ...

whatsit

•6 years ago

2 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for March 2019

Anyone have these Raynaud’s symptoms?

Mycophenolate

Pain and things I feel I have to do

‘Muscular’ pain

Primary Raynauds not CREST

Informal chilled out meeting 14.04.19

redness on all fingers distal joints

Back Pain

Working with chronic illness

Diets/bone broth

Pins and Needles

Sunshine helps

Raynaud's - open sore and general confusion!

Anyone get sore fingers with primary raynauds?

Raynards

Working with an illness

catching up!

Experience with Systemic Sclerosis and acupuncture?

calcinosis

My dad's just been diagnosed

A delicate area.

Daughter diagnosed with systematic sclerosis

Raynaud's, Looking for advice.

Is this typical?

Information

Morphea Scars

Hi I'm a 57 year old male with CREST Raynauds overlapping other interconnective tissue disease's I have recently having a lot of problems

Could this be something else other than raynaud's?

Nifedipine and Gastroparosis

Burning fingers

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