Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,827 members • 5,405 posts

All posts for March 2013

Numb white tongue?

Hi I'd like to hear from anyone else suffering with a tongue problem, I have raynauds in my hands but also in my tongue, very painful,very very scary!!! Be...

Hi I'd like to hear from anyone else suffering with a tongue problem, I have ray...

Lupdaloop

•11 years ago

8 Replies

can i claim fuel allowance if I suffer from extremely from raynards syndrome and work full time

susan2013

•11 years ago

6 Replies

Reading lung function test results

Jondor

•11 years ago

4 Replies

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Product Design

Hi , I am designing a prodcut which will aid the affects of Raynauds disease. I would like your opinion on a few different logos i might use for my product....

Hi , I am designing a prodcut which will aid the affects of Raynauds disease. I ...

Devlin1

•11 years ago

18 Replies

GOOGLE!!! good or bad!!!

I've had a reduced appetite for about a month now. I want to eat but feel full after a few mouthfuls!! Today I have been googling things today and came up with...

I've had a reduced appetite for about a month now. I want to eat but feel full a...

Kerry72

•11 years ago

12 Replies

Dry hands

Hi all I have raynauds and I have got really dry sore hands I put different creams on but it won't go away fingers red and slightly swollen and burning help...

Hi all I have raynauds and I have got really dry sore hands I put different crea...

panthersgirl74

•11 years ago

11 Replies

Despite being diagnosed many years ago - i know very little about Raynauds & have never had tests just prescribed Nifedipene!!

i have had an ulcer type patch on my index finger for years is this connected? Does weight effect the condition? is having a low body temperture connected>

i have had an ulcer type patch on my index finger for years is this connected? ...

frostyblack

•11 years ago

8 Replies

Hi all..for those who suffer reflux acid and heartburn..i just want to share this..

I have been suffering heartburn and acid constantly for this past month to the extent that ive not been eating that much, as it seemed that everything i put in...

I have been suffering heartburn and acid constantly for this past month to the e...

fruitpastle

•11 years ago

23 Replies

Rheumatologist had just recommended another session of Iloprost. Does anyone know the minimum time you need to come off nifedipine as it is

so very cold I dread not taking the nifedipine prior to going to hospital. I forgot to ask the Rheumatologist this question. In Oct I had gone blue and it...

so very cold I dread not taking the nifedipine prior to going to hospital. I for...

creditcrunchie

•11 years ago

6 Replies

Adalat retard instead of Nifedipine ?

I have been on Nifedipine three times a day for about two years for Raynaurds and had no side effects as far as I am aware, unless my lack of appitite or...

I have been on Nifedipine three times a day for about two years for Raynaurds an...

Bernadette309

•11 years ago

28 Replies

Does anyone suffering from Raynauds and Scleroderma have headaches caused by the cold weather?

Since the arctic weather conditions that have been sweeping across the country I have been suffering from bad headaches......At first I thought I had a head...

Since the arctic weather conditions that have been sweeping across the country I...

wartsandall

•11 years ago

9 Replies

Has anyone tried 'Slippery Elm ' to help reflux symtoms ?

I recently got diagnosed with Barretts Oesophagus and have horrid reflux ( persistent cough ) I have read Omeprozole has long term side effects so would prefer...

I recently got diagnosed with Barretts Oesophagus and have horrid reflux ( persi...

AliW

•11 years ago

3 Replies

does anyone suffer with severe bloating i look pregnant i have raynauds and scleraderma

biffo

•11 years ago

27 Replies

intense itchy rash

I've got an intensely itchy rash on my hands and forearms. I saw the GP on Tuesday who prescribed an antihistamine (no relief) was sent to have a blood test...

I've got an intensely itchy rash on my hands and forearms. I saw the GP on Tuesd...

Kerry72

•11 years ago

8 Replies

Where are the hospital gowns?

Hi - I was very surprised yesterday that I didnt have to change into a hospital gown for the Gastroscopy! I kept all my ordinary clothes on. When I had a...

Hi - I was very surprised yesterday that I didnt have to change into a hospital ...

Carol-C

•11 years ago

3 Replies

Raynauds in my thumb as well as all the fingers !

This evening I experienced a raynauds attack in my hands but for the first time my thumb went blanche / painful etc I have to say this isthe first time the...

This evening I experienced a raynauds attack in my hands but for the first time ...

AliW

•11 years ago

7 Replies

Hello, is anybody happy to fill in a short questionnaire about their experience with Raynaud's please?

Hello, I am a Graphic Design student currently in the final year of my degree. I have mild Raynaud's and I am working on a project to help raise awareness of...

Hello, I am a Graphic Design student currently in the final year of my degree. I...

Viola25

•11 years ago

29 Replies

I'm back!

Hi everyone - I'm back home now. Think I gipped for England when the camera was down my throat! I had sedation but they sprayed my throat as well, what foul...

Hi everyone - I'm back home now. Think I gipped for England when the camera was ...

Carol-C

•11 years ago

5 Replies

Today's the day.......

Hi everyone - today's the day! Had a sleepless night worrying about the Gastroscopy. Thank you for all your good wishes and support and answers to my...

Hi everyone - today's the day! Had a sleepless night worrying about the Gastrosc...

Carol-C

•11 years ago

1 Reply

Diltiazem...hello all..is there any1 taking this med..ive been on nifedipine my doc wants me to change to diltiazem is it okay to take??

fruitpastle

•11 years ago

3 Replies

have pain in my fingers what I can describe as an electrical pulse in my feet fingers go blue is this raynauds

mrs-badger

•11 years ago

4 Replies

I have just been told I have Raynauds but I only have problems with one hand and it doesnt go red or blue. Does this sound right?

bandofox

•11 years ago

12 Replies

Help, what should I do when taking the purple pill, I have a problem with constipation and rectum pressure

when I take the purple pill? Actually, I am taking Omeprazole (which I think is the generic form of the purple pill) and I get these symptoms than I try to...

when I take the purple pill? Actually, I am taking Omeprazole (which I think is ...

danacetz

•11 years ago

5 Replies

A very brisk stroll along the Thames.....

Hi all, As a Raynauds sufferer, I find running quite a challenge at the best of times, not just as an effort, but making sure I am warm as well. I have...

Hi all, As a Raynauds sufferer, I find running quite a challenge at the best ...

JayEmJee

•11 years ago

6 Replies

Does stress affect your fingers more?

Hi - I'm getting really anxious now about the Gastroscopy on Thurs, I'm not sleeping. Does anyone else notice that their white fingers are worse in times of...

Hi - I'm getting really anxious now about the Gastroscopy on Thurs, I'm not slee...

Carol-C

•11 years ago

7 Replies

Products to help

I am a product designer who suffers from raynaud's in both my hands and feet. I am currently looking into designing a device that will reduce the pain and...

I am a product designer who suffers from raynaud's in both my hands and feet. I ...

Devlin1

•11 years ago

11 Replies

Bad cracks in my toenails - any ideas please.?

I've had Raynaud's in my hands and feet for last 5 years and I now have bad cracks in my toenails,, I also have cracks in my fingernails but as I always wear...

I've had Raynaud's in my hands and feet for last 5 years and I now have bad crac...

MikefromsouthNZ

•11 years ago

7 Replies

Does anyone get this? It's like my body is trying to make an ulcer at my fingertip

but it just forms little calloused hard spots right at my finger tip and sides. Then the fingertip one sluffs off and reforms. My fingertip does get more...

but it just forms little calloused hard spots right at my finger tip and sides. ...

danacetz

•11 years ago

4 Replies

Getting Anxious

I'm getting very anxious now as got the leaflet with my Gastroscopy appt and it says there is a 1 in a 1,000 chance of perforation of the gullet. I had a...

I'm getting very anxious now as got the leaflet with my Gastroscopy appt and it ...

Carol-C

•11 years ago

4 Replies

good day today

well really happy today as my hands are not as swollen so i was able to get me nans wedding ring off my finger..(she past away in 2005 age 103 and i have worn...

well really happy today as my hands are not as swollen so i was able to get me n...

sandycharlie

•11 years ago

7 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for March 2013

Numb white tongue?

can i claim fuel allowance if I suffer from extremely from raynards syndrome and work full time

Reading lung function test results

Product Design

GOOGLE!!! good or bad!!!

Dry hands

Despite being diagnosed many years ago - i know very little about Raynauds & have never had tests just prescribed Nifedipene!!

Hi all..for those who suffer reflux acid and heartburn..i just want to share this..

Rheumatologist had just recommended another session of Iloprost. Does anyone know the minimum time you need to come off nifedipine as it is

Adalat retard instead of Nifedipine ?

Does anyone suffering from Raynauds and Scleroderma have headaches caused by the cold weather?

Has anyone tried 'Slippery Elm ' to help reflux symtoms ?

does anyone suffer with severe bloating i look pregnant i have raynauds and scleraderma

intense itchy rash

Where are the hospital gowns?

Raynauds in my thumb as well as all the fingers !

Hello, is anybody happy to fill in a short questionnaire about their experience with Raynaud's please?

I'm back!

Today's the day.......

Diltiazem...hello all..is there any1 taking this med..ive been on nifedipine my doc wants me to change to diltiazem is it okay to take??

have pain in my fingers what I can describe as an electrical pulse in my feet fingers go blue is this raynauds

I have just been told I have Raynauds but I only have problems with one hand and it doesnt go red or blue. Does this sound right?

Help, what should I do when taking the purple pill, I have a problem with constipation and rectum pressure

A very brisk stroll along the Thames.....

Does stress affect your fingers more?

Products to help

Bad cracks in my toenails - any ideas please.?

Does anyone get this? It's like my body is trying to make an ulcer at my fingertip

Getting Anxious

good day today

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