Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,028 members•5,552 posts

All posts for February 2018

Zakvrate oximeter

I bought a zakvrate oximeter which doesn't work for me. It is fine on my daughter. It has only given a reading twice today, one 65 with a 33 pulse and one...

I bought a zakvrate oximeter which doesn't work for me. It is fine on my daughte...

Inamoment

•7 years ago

4 Replies

Isle of Wight challenge

Hey guys! Is anyone doing the Isle of White challenge on May the 5th for SRUK ?

Hey guys! Is anyone doing the Isle of White challenge on May the 5th for SRUK ...

JazPont

•7 years ago

3 Replies

Shin pain

Does anyone else with ssc have pains in their shin bone ? I have also recently developed restless leg in the same leg as the pain is ?

Does anyone else with ssc have pains in their shin bone ? I have also recently d...

Sylviaherring

•7 years ago

2 Replies

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Hello I'm elprof7557

Have had Ltd scleroderma for 7 yrs.Have Raynaud's above all when passing from warm environment to cold one and if outside temp. dips below 10°C. Have 4 or 5...

Have had Ltd scleroderma for 7 yrs.Have Raynaud's above all when passing from ...

elprof7557

•7 years ago

8 Replies

Burning RED feet?

I posted this on the lupus community as I have lupus and fibromyalgia thinking someone could point me in the right direction...well they did! I didn’t even...

I posted this on the lupus community as I have lupus and fibromyalgia thinking s...

Macsimum_de

•7 years ago

3 Replies

Red dots... is anyone on medication for them?

Hey all I know I have previously spoke about the red dots (t) can’t spell it sorry Has anyone been offered any medication for them??? Thanks all

Hey all I know I have previously spoke about the red dots (t) can’t spell it sor...

Kc_1411

•7 years ago

36 Replies

Pain in finger tips

Hi I have LTD scleroderma with lung involvemet and seconday raynauld’s. Had this for about 2 years. Over the last few days i have been experiencing a lot of...

Hi I have LTD scleroderma with lung involvemet and seconday raynauld’s. Had this...

NSV69

•7 years ago

11 Replies

Digital ulcer ?

Hello lovely people :) I have only had Raynauds since September last year, but my Raynauds come on at the same time as my skin thickening. I do have bad...

Hello lovely people :) I have only had Raynauds since September last year, but...

JazPont

•7 years ago

32 Replies

Ssc and secondary raynauds

I was recently diagnosed with systemic sclerosis and secondary raynauds. I have had raynauds for around 3 years. The first year just hands, last year hands and...

I was recently diagnosed with systemic sclerosis and secondary raynauds. I have ...

Sylviaherring

•7 years ago

10 Replies

Trying to interpret blood results? Can any of you wonderful people help.

Hello to anyone reading. I’ve requested my most recent blood test results which gave me a Limited Systemic Sclerosis diagnosis. One thing that strikes me is...

Hello to anyone reading. I’ve requested my most recent blood test results which ...

-missymoo

•7 years ago

4 Replies

Hot hands on occasion

I had this for the past 10 years, it doesn't happen all the time. My wife said it was the gift Jesus gave me when someone needed healing, because her issue...

I had this for the past 10 years, it doesn't happen all the time. My wife said i...

FlyJesus58

•7 years ago

3 Replies

Finger pain

So I’ve had raynauds all my life it’s gotten worse the older I get how ever last 3 days I’ve had excruciating pain in my index finger about 6 times during the...

So I’ve had raynauds all my life it’s gotten worse the older I get how ever last...

Gillw1978

•7 years ago

10 Replies

Limited Sclerosis and Hemp oil

Has anyone used Hemp oil/ Cbd oil to manage inflammation and pain from limited systemic sclerosis? I am so tired of filling my body with synthetic drugs that...

Has anyone used Hemp oil/ Cbd oil to manage inflammation and pain from limited s...

Boisecgm13

•7 years ago

5 Replies

Blood Tests

Hello, my blood results came back today it was positive Ana 1:40 homogenous. 8 months ago it was 1:80 homogenous. Which one is worse

Hello, my blood results came back today it was positive Ana 1:40 homogenous. 8 m...

agnbg0826

•7 years ago

4 Replies

Rheumy doesn’t think Plaquenil works.

I am diagnosed with UCTD suspected to be Crest and Sjögrens, I am at a combined chest clinic in April as I have lung involvement consistent with minor lung...

I am diagnosed with UCTD suspected to be Crest and Sjögrens, I am at a combined ...

Bee1011

•7 years ago

14 Replies

Autoimmune documentary series

If anyone is interested this is a documentary series about the route causes of autoimmune disease. It’s free to sign up. The first episode went live at about...

If anyone is interested this is a documentary series about the route causes of a...

Hidden

•7 years ago

5 Replies

visit to foot care assistant!

Hello everybody, it was that time again, to sit in a chair and have someone with metal instruments pick at my toenails, oh what joy ha ha. As I sat there it...

Hello everybody, it was that time again, to sit in a chair and have someone with...

fairy56

•7 years ago

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Life insurance

Can anyone recommend a company that accepts scleroderma and covers life insurance xxx

Can anyone recommend a company that accepts scleroderma and covers life insuranc...

Kc_1411

•7 years ago

7 Replies

Living with scleroderma

Hello, I have been diagnosed with raynauds since I was about 26 years old and around 30 I also have scleroderma. Since I was about sixteen I new something was...

Hello, I have been diagnosed with raynauds since I was about 26 years old and ar...

Tollie

•7 years ago

8 Replies

Crackling sensation under the left lower ribcage area

Hey guys, I’m wondering if anyone is or has experienced the following - Maybe about 3 times a day I get what I can only describe as a crackling sensation...

Hey guys, I’m wondering if anyone is or has experienced the following - Maybe ...

JazPont

•7 years ago

8 Replies

Anyone near Birmingham?

How folks, just wandering if anyone is near Birmingham that I can have a coffee and a chat with regarding Raynaud's and other stuff? Perhaps there's a support...

How folks, just wandering if anyone is near Birmingham that I can have a coffee ...

avtargill31

•7 years ago

27 Replies

Back with a smile and a wave

Hello everybody, first of all thank you to all of you that sent me your encouraging thoughts, thank you. Anyway here goes, got up this morning, washed my hair!...

Hello everybody, first of all thank you to all of you that sent me your encourag...

fairy56

•7 years ago

4 Replies

Hi People taking fluoxetine for Raynauds, I have scleroderma too, what time of day do you take it?

Ive tried iloprost and sindifal

trunchalobesity

•7 years ago

3 Replies

Pain in feet and hands/ Raynauds and tarsal tunnel

Needing suggestions- I recently was diagnosed with Raynauds as well as tarsal tunnel. I’ve been prescribed gabepentin which hasn’t done much at all except...

Needing suggestions- I recently was diagnosed with Raynauds as well as tarsal tu...

Skaygood

•7 years ago

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feeling low

Hi everybody, I am afraid that my get up and go, as well and truly gone. I have spent most of the day sat in chair watching tv. Normally I can dig myself out...

Hi everybody, I am afraid that my get up and go, as well and truly gone. I have ...

fairy56

•7 years ago

18 Replies

Reynauds toes

Hello..i was diagnosed with primary reynauds two years ago. It seemed to kick off when my marriage very much suddenly ended in 2013? My feet are the worst...

Hello..i was diagnosed with primary reynauds two years ago. It seemed to kick of...

Rosieandsid

•7 years ago

5 Replies

How do I cancel out of a forum I accidentally slgned up for by mistake

Can anybody tell me in simple step by step terms how to withdraw from the "SCLERODERMA & REYNAUD'S UK (SRUK) forum. While looking up something I thought was...

Can anybody tell me in simple step by step terms how to withdraw from the "SCLER...

Hidden

•7 years ago

5 Replies

Schleroderma, maybe

Hello my name is Bobbiann and I am so scared right now. I have been trying to get a diagnosis of what's wrong for 2 years now. My skin started looking pinker...

Hello my name is Bobbiann and I am so scared right now. I have been trying to ge...

agnbg0826

•7 years ago

1 Reply

Accidental joining

I just noticed that this(Scleroderma) is now one of my communities. I pulled up a post related to Losarten but I didn't mean to join this community as I don't...

I just noticed that this(Scleroderma) is now one of my communities. I pulled up ...

Hidden

•7 years ago

5 Replies

Salty dry mouth

This is so unpleasant! I have dry mouth and gerd( silent reflux). Any tips? Thanks. Does omezaprole help this? It's ,only temporarily relived while eating,...

This is so unpleasant! I have dry mouth and gerd( silent reflux). Any tips? Than...

LilaJoe

•7 years ago

6 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for February 2018

Zakvrate oximeter

Isle of Wight challenge

Shin pain

Hello I'm elprof7557

Burning RED feet?

Red dots... is anyone on medication for them?

Pain in finger tips

Digital ulcer ?

Ssc and secondary raynauds

Trying to interpret blood results? Can any of you wonderful people help.

Hot hands on occasion

Finger pain

Limited Sclerosis and Hemp oil

Blood Tests

Rheumy doesn’t think Plaquenil works.

Autoimmune documentary series

visit to foot care assistant!

Life insurance

Living with scleroderma

Crackling sensation under the left lower ribcage area

Anyone near Birmingham?

Back with a smile and a wave

Hi People taking fluoxetine for Raynauds, I have scleroderma too, what time of day do you take it?

Pain in feet and hands/ Raynauds and tarsal tunnel

feeling low

Reynauds toes

How do I cancel out of a forum I accidentally slgned up for by mistake

Schleroderma, maybe

Accidental joining

Salty dry mouth

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