Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,410 posts

All posts for November 2023

Raynaud's without colour changes

Hello, my hands are very sensitive to cold weather and temperatures. This has been going on for years and I do take Nifedipine, except during summer, to ease...

Hello, my hands are very sensitive to cold weather and temperatures. This has b...

•5 months ago

Gut and hands!

I would say these are my two major symptoms. I started suffering from acute indigestion in late summer 2018 and the GP prescribed Omeprazole. Only a few...

I would say these are my two major symptoms. I started suffering from acute ind...

•5 months ago

Rare raynauds?

I have had raynauds for a number of years but this past couple of winters has been unbearable and I just found out that my doctor never referred me to...

I have had raynauds for a number of years but this past couple of winters has be...

•5 months ago

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limited Scleroderma

hi, I have limited Scleroderma and am thinking of looking for a second opinion on my condition, is there any consultants anybody would recommend , i presume...

hi, I have limited Scleroderma and am thinking of looking for a second opinion...

•5 months ago

constant abnormal blood results on Methotrexate

bloods have been abnormal pretty much every month for over a year now. Been on methotrexate 20mg since 2019 to treat mixed connective tissue disease. Symptoms...

bloods have been abnormal pretty much every month for over a year now. Been on m...

•5 months ago

Pain and loss of nail

I have pain under my fingernail again. The dr is trying to get my medication figured out. Ulcer keeps taking away my fingernail. My blood pressure is too low....

I have pain under my fingernail again. The dr is trying to get my medication fig...

•5 months ago

waiting for lung function test

hi all I am wondering if anyone else has had trouble waiting for their annual tests. I have been on a waiting list for the lung function test since June and I...

hi all I am wondering if anyone else has had trouble waiting for their annual t...

•5 months ago

Non-TB mycobacterial infection

I have just been told I probably have this "NTB" and it could be the cause of my bronchiectasis. They are going to do a bronchoscopy to find out just what's...

I have just been told I probably have this "NTB" and it could be the cause of my...

•6 months ago

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new normal blood tests

Hi - this is just a curiosity question: I get monitored fir Mycophenolate 3 monthly. A long time ago I was misdiagnosed with Rheumatoid and this was due to...

Hi - this is just a curiosity question: I get monitored fir Mycophenolate 3 mont...

•6 months ago

Sibo & Diet

Hi Everyone, Has anyone given up on low fodmap diet & restriction & gone back to normal diet?. I have been doing low fodmap & gluten free for a year now & to...

Hi Everyone, Has anyone given up on low fodmap diet & restriction & gone back t...

•6 months ago

Fingers lock

Does anyone suffer fingers locking mostly my wee fingers

Does anyone suffer fingers locking mostly my wee fingers

•6 months ago

hardened finger blood vessels??

Hi, I have had Raynaud's since childhood and am now in 50s. Recently had some form of vasculitis (negative ANCA antibodies) and now my Raynaud's is very...

Hi, I have had Raynaud's since childhood and am now in 50s. Recently had some fo...

•6 months ago

Manometry studies

Hello, I am just wondering if anyone as had these studies and what I should expect,I think he said he is requesting the 24 hr test as well.I have looked on...

Hello, I am just wondering if anyone as had these studies and what I should exp...

•6 months ago

Sorry for myself

I have had a lousy cold for over a week,endless runny nose, sneezing and coughing( it's not COVID) My dry eyes are getting worse the hospital want to put...

I have had a lousy cold for over a week,endless runny nose, sneezing and coughin...

•6 months ago

Nifedipine mr

Hi I'm taking nifedipine for reynauds/ scleroderma again after not being successful with it in the past ... also just been given siledipine 25mg 3 times daily...

Hi I'm taking nifedipine for reynauds/ scleroderma again after not being success...

•6 months ago

Continuous cough: post nasal drip?

Hi all, hopefully you can provide some guidance. I've had a continuous cough for 4 months now, had a chest xray recently on the nhs (assuming all OK as heard...

Hi all, hopefully you can provide some guidance. I've had a continuous cough for...

•6 months ago

Newly diagnosed!

Hi ..I have had reynauds for the last 9 years but this has nasty become bad with ulcers on fingers ,spider veins on face and weak and achy muscles .. am now...

Hi ..I have had reynauds for the last 9 years but this has nasty become bad with...

•6 months ago