Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,113 members•5,638 posts

All posts for May 2016

Digital ulcer update

Not been here for a while as no real progress. Ulcer developed on right index finger a year ago, since then have had Illoprost 3 times, been on Sildenafil 50mg...

Not been here for a while as no real progress. Ulcer developed on right index fi...

•9 years ago

Struggling with sildenafil

Hi - I've been prescribed sildenafil to take alongside nifedipine for secondary Raynaud's (I have scleroderma - LSSc - and Sjogren's syndrome - all fairly...

Hi - I've been prescribed sildenafil to take alongside nifedipine for secondary ...

•9 years ago

Having short brathnlas with chest day cuff and sticky glueys saliva-

Hi im having short off brathnlas I can't take out biggest brath and my chest always have dry cuffs and sticky and gluey saliva- and asopagos also very dry and...

Hi im having short off brathnlas I can't take out biggest brath and my chest alw...

•9 years ago

Want to take advantage of all our features? Just log in!

or

VERY SCARED

I have today received a copy of a letter sent by Thoracic consultant to my Rheumatologist and Prof Denton, in which she says she suspects I may have something...

I have today received a copy of a letter sent by Thoracic consultant to my Rheum...

•9 years ago

Is there an end to this?ndition?

I've had scleroderma with lung fibrosis and raynaulds for 14 years now. I've managed to get on with life and my condition has been monitored and stabilised...

I've had scleroderma with lung fibrosis and raynaulds for 14 years now. I've ma...

•9 years ago

help ever growing rashes

hi everyone need a bit of advice please . ive got very hot,sore lumps from elbow to wrist it looks as awful as it feels . have seen two nurses and a docter and...

hi everyone need a bit of advice please . ive got very hot,sore lumps from elbow...

•9 years ago

looking for help

haven't been diagnosed yet but have all the symptoms of scleraderma and raynauds also my grandmother had scleraderma

haven't been diagnosed yet but have all the symptoms of scleraderma and raynauds...

•9 years ago

newly diagnosed with crest syndrome help

hi i am new to this .it is may now and i can honestly say my hands and feet think im in the artic ! the pain can be unbearale . the trouble is when it is hot...

hi i am new to this .it is may now and i can honestly say my hands and feet thin...

•9 years ago

Face

I have spots on my face and was informed by my rheumatologist that it was Scleroderma I was offered lazer treatment but refused has I only had about 3. I now...

I have spots on my face and was informed by my rheumatologist that it was Sclero...

•9 years ago

figlin

i have been given adalat 5 mg nifedipine for raynauds any comments from suffers and what are the side effects

i have been given adalat 5 mg nifedipine for raynauds any comments from suffers ...

•9 years ago

Referral

Been referred to Prof Denton at Royal Free, so hoping for some more answers. I'm the mean time, does anyone out there have insufferable itching, my arms & legs...

Been referred to Prof Denton at Royal Free, so hoping for some more answers. I'm...

•9 years ago

Undifferentiated Connective Tissue Disease, and I think The have Lupus!

Hi everyone, I am new on here, I am 50 years young, and was diagnosed with Undifferentiated Connective Tissue Disease 2 years ago. I was like most people...

Hi everyone, I am new on here, I am 50 years young, and was diagnosed with Undif...

•9 years ago

figlin fingerse

hi figlin here what to do raynauds has caused my hands to be so sore and sensitive its hard to touch anything despite warmer weather i have tried many things...

hi figlin here what to do raynauds has caused my hands to be so sore and sensi...

•9 years ago

IV Pamidronate infusion

I was just wondering if anyone in the community has had an IV Pamidronate infusion for scleroderma. I am supposed to,be having one at the end of May and I am...

I was just wondering if anyone in the community has had an IV Pamidronate infusi...

•9 years ago

Oral problems

I have been diagnosed for about two years with scleroderma and secondary Raynaulds . I have had a full set of dentures for over 20 years but recently I been...

I have been diagnosed for about two years with scleroderma and secondary Raynaul...

•9 years ago

Pulmonary rehab programme

To anyone who has scleroderma with lung problems, I would strongly recommend this course. I did it in Jan/Feb and have since continued doing the exercises at...

To anyone who has scleroderma with lung problems, I would strongly recommend thi...

•9 years ago

Questions about Raynauds

I was diagnosed with Raynauds last year (but had it since I was about 2) and have some questions that Google can't answer. Does the heat affect Raynauds? Will...

I was diagnosed with Raynauds last year (but had it since I was about 2) and ha...

•9 years ago

Help???

Can someone help with my legs??? Does this look like a typical raynauds attack on my legs??? I don't normally suffer with it on my legs only feet, but I've...

Can someone help with my legs??? Does this look like a typical raynauds attack o...

•9 years ago