Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,410 posts

All posts for January 2024

Public loos

Has anyone used the refurbished loos at Euston station? Are they free, or is it coin/card payment and how much please.

Has anyone used the refurbished loos at Euston station? Are they free, or is it...

•3 months ago

Systemic Sclerosis and Itchy Scalp

Hi, I was diagnosed with SSC last year - typical symptoms. Recently my scaclp has been driving me mad with an ever increasing itchy patch. Can anyone recommend...

Hi, I was diagnosed with SSC last year - typical symptoms. Recently my scaclp ha...

•3 months ago

Inability to shake off a cold

Really just need sympathy.it seems I am doomed to spend the winter months suffering with colds that I cannot shake off.Saw GP today and he was really caring...

Really just need sympathy.it seems I am doomed to spend the winter months suffer...

•3 months ago

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blue fingers when in hot bath??

Has anyone else had this? It happen to my toes when I was in the shower the other day too. I don’t know if it’s Raynauds or my low ferritin/anemia or what....

Has anyone else had this? It happen to my toes when I was in the shower the othe...

•3 months ago

wrist pain and stiffness

I was just wondering if anyone can relate to wrist pain on pinkie side , redness and swelling ? No numbness or pins and needles . More painful at night and in...

I was just wondering if anyone can relate to wrist pain on pinkie side , redness...

•3 months ago

Chillblains

Hi, I have just been diagnosed with primary raynauds after years of suffering with winter chillblains. In November my chillblains got really bad on my toes and...

Hi, I have just been diagnosed with primary raynauds after years of suffering wi...

•3 months ago

Pain in ear cartilage

I’ve been getting very sharp stabbing pain in the cartilage of one ear. Always in the same place. Has anyone else experienced this? It really makes me yelp!

I’ve been getting very sharp stabbing pain in the cartilage of one ear. Always i...

•3 months ago

Iloprost infusions

Hello, community. I live in the UK and I have lupus, Raynaud's and Erythromelalgia. The EM causes me great pain and distress, particularly at night, when the...

Hello, community. I live in the UK and I have lupus, Raynaud's and Erythromelal...

•3 months ago

Raynauds

Dr diagnosed me in 1994 with Raynauds said it’s usually a prelude to later disease like, arthritis or scleroderma I have both now. Along with numerous other...

Dr diagnosed me in 1994 with Raynauds said it’s usually a prelude to later disea...

•3 months ago

Royal Free transport

Hello, can anyone help out? The last time I went to the Royal Free from Euston Station, I caught the 168 bus from Esholt Street. I understand that bus...

Hello, can anyone help out? The last time I went to the Royal Free from Euston...

•3 months ago

Newly diagnosed with limited systemic sclerosis

I was diagnosed in September 2023. I’m currently on prednisolone and hydroxycholoquine. I’ve struggled with fatigue for close to 2 years now and it has been...

I was diagnosed in September 2023. I’m currently on prednisolone and hydroxychol...

•3 months ago

Worcester support

Is there anyone in the Worcester UK area? Wanted to link up to find out what local consultants are like and if anyone goes further afield for more specialised...

Is there anyone in the Worcester UK area? Wanted to link up to find out what loc...

•3 months ago

Cold, tight leg muscles

Hi, I have had Reynaud's in my fingers for many years. It's mild and I manage it without any treatment. For the last 18 months I've had an issue with my legs...

Hi, I have had Reynaud's in my fingers for many years. It's mild and I manage it...

•3 months ago

Fluoxetine

I’ve been prescribed Fluoxetine for my raynauds 10mg per day, feel so unsure about taking it, has anyone else tried it? Side effects? Effectiveness?

I’ve been prescribed Fluoxetine for my raynauds 10mg per day, feel so unsure abo...

•3 months ago

Nailfold infection

I have my second nailfold infection in 2 months - it is proving difficult to resolve and a few days ago a telangectasia bled profusely for no reason. Is this...

I have my second nailfold infection in 2 months - it is proving difficult to res...

•4 months ago

Implications of positive if ‘weak ANA test’?

I have dry-eye confirmed by Moorfield’s. I also have dry mouth and my dentist said she suspected I had Sjorgren’s. When tested I proved to have a ‘weak...

I have dry-eye confirmed by Moorfield’s. I also have dry mouth and my dentist sa...

•4 months ago

Covid positive - anyone with antiviral experience

hello lovely people of this wonderful forum - seeking any insight or guidance I was diagnosed (11 months ago) with scleroderma & myositis with lung...

hello lovely people of this wonderful forum - seeking any insight or guidance ...

•4 months ago

hand warming creams

hello So I’m a long term suffer from raynauds (secondary) keeping hands warm is a challenge. I’ve got various gloves and hand warms but there are times when I...

hello So I’m a long term suffer from raynauds (secondary) keeping hands warm is...

•4 months ago

Varicose veins with scleroderma

Are there any other LSSc people out there also suffering from varicose veins? At my last check up with Royal Free I pointed out lots of new burst veins/...

Are there any other LSSc people out there also suffering from varicose veins? A...

•4 months ago

Recommendation for gloves and socks?

Hi Guys, Further to my Post on the Lupus forum (link below) can I ask for recommendations for suitable super warm gloves and socks please? I spent a fortune...

Hi Guys, Further to my Post on the Lupus forum (link below) can I ask for reco...

•4 months ago

uknown symptoms

sorry. It’s typo error, - calcium chanel blocker is what I meant not “Clacium”

sorry. It’s typo error, - calcium chanel blocker is what I meant not “Clacium”

•4 months ago

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Help with Symptoms

Hi everyone. I’m not quite sure about my symptoms however, I have always been suffering everyday now. GP thinks I got Raynaud’s because my fingers and toes...

Hi everyone. I’m not quite sure about my symptoms however, I have always been su...

•4 months ago

Connective Tissue

Hi everyone, Perhaps somebody can help me find a solution to the issue of the muscles in my thighs tightening, why it is happening and what I can do to help...

Hi everyone, Perhaps somebody can help me find a solution to the issue of the ...

•4 months ago