Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,844 members • 5,412 posts

All posts for July 2019

Constant strong taste of salt

Hi Is anyone experiencing a really bad, constant salty taste in their mouth? My googling is suggesting Sjögrens might be a possibility but I don’t really have...

Hi Is anyone experiencing a really bad, constant salty taste in their mouth? My ...

Gingerbeets

•5 years ago

11 Replies

Disability act

Can anyone tell me if we’re covered under the disability act, looking to reduce my hours at work and being told I need to work later. I physically can’t do it...

Can anyone tell me if we’re covered under the disability act, looking to reduce ...

Ncoff

•5 years ago

9 Replies

Painful legs when walking

Does anybody suffer with painful, heavy legs when walking. I have recently developed this and it is worrying me. The pain goes away when I stop walking but...

Does anybody suffer with painful, heavy legs when walking. I have recently devel...

190366

•5 years ago

16 Replies

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Wierd finger bruise

i, I'm new here, came upon this site while searching for answers for my wierd finger pain and bruising. At the end of the day at work yesterday (nothing...

i, I'm new here, came upon this site while searching for answers for my wierd fi...

howdah

•5 years ago

2 Replies

Informal chilled out meeting 06.10.19

we have a date and venue for our next meeting in Birmingham. It's on Sunday 6th October 2019 at 11.30am. It'll be in the restaurant of John Lewis, 2 Station...

we have a date and venue for our next meeting in Birmingham. It's on Sunday 6th ...

avtargill31

•5 years ago

1 Reply

Steroid injections for tarsal tunnel

I know this is a rare condition but hoping someone can ease my mind going for steroid injection tomorrow as I have tarsal tunnel after going for nerve...

I know this is a rare condition but hoping someone can ease my mind going for st...

Kc_1411

•5 years ago

2 Replies

Radiotherapy to pelvic region with crest.

Hello I am desperately looking for answers to my health problems. I have CREST syndrome and have had for 15 years, I am a 53 year old white English female. I...

Hello I am desperately looking for answers to my health problems. I have CREST ...

190366

•5 years ago

15 Replies

Really itchy ‘bites’ maybe

So a few days ago I had what appeared to be a bite on my heel. Then over a couple of days a series of ‘bites’ have appeared. No idea what these are and on both...

So a few days ago I had what appeared to be a bite on my heel. Then over a coupl...

james87

•5 years ago

6 Replies

Frankincense and Colloidal Silver

Hi Everyone, I went to the vitamin shoppe today to purchase some items I use regularly, vitamin e oil and Niacin. I asked the sales lady if she could...

Hi Everyone, I went to the vitamin shoppe today to purchase some items I use re...

beaglab

•5 years ago

13 Replies

Stem Cell Patches

Hello everyone. I’ve been hearing about individuals using stem cell patches & hadn’t had any Raynaud’s symptoms for 25 weeks after using patch. Has anyone...

Hello everyone. I’ve been hearing about individuals using stem cell patches & ha...

lennyplus4

•5 years ago

1 Reply

Chemotherapy for scleroderma

I'm on a facebook scleroderma forum, mostly american. Quite a few talk about having chemotherapy for scleroderma. I've not seen it mentioned here.

I'm on a facebook scleroderma forum, mostly american. Quite a few talk about ha...

Inamoment

•5 years ago

7 Replies

ANA nucleolar pattern 1:320, ENA negative and dsDNA negative - scared about nucleolar pattern

Hi there. I hope you don’t mind me asking a question but I’m very frightened and confused right now. After months of weird random symptoms which the GP and...

Hi there. I hope you don’t mind me asking a question but I’m very frightened and...

Greenapple1

•5 years ago

3 Replies

Lack of understanding

Went to the GP today as just not doing so good, was very honest and told her that I get straight to the point and that I feel exhausted. GP said that...

Went to the GP today as just not doing so good, was very honest and told her tha...

Denny57

•5 years ago

6 Replies

Numb sausage fingers!

Sausage fingers mainly index, middle and ring on both hands. Constant feeling of tingling numbness much worse at night. I think it’s carpal tunnel??? Shoulders...

Sausage fingers mainly index, middle and ring on both hands. Constant feeling of...

Melarky

•5 years ago

19 Replies

Informal chilled out meeting 28.07.19 (reminder)

Hi folks just a gentle reminder that our meeting is next Sunday. If you need any info, please feel free to ask. I have copied and pasted message for ease. we...

Hi folks just a gentle reminder that our meeting is next Sunday. If you need any...

avtargill31

•5 years ago

4 Replies

Nifedipine/ Coracten

Hi, I've been on Nifedipine 20mg (Adalat Retard) twice daily for about 5 years to help control painful spasms in my forearms related to Raynauds/Scleroderma....

Hi, I've been on Nifedipine 20mg (Adalat Retard) twice daily for about 5 years t...

Gxmouse

•5 years ago

2 Replies

Pip/ esa

I understand this ridiculous pip process.i have severe muscle weakness and really nasty sore stiff muscles.after you lose your appeal which most people...

I understand this ridiculous pip process.i have severe muscle weakness and reall...

Mylomydog

•5 years ago

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Muscle pain

Muscle pain. Hi I haven't posted here for a long while but I would like to ask if anyone gets chronic muscle pain when walking ? I have pain so bad in my calf...

Muscle pain. Hi I haven't posted here for a long while but I would like to ask i...

77lindy

•5 years ago

4 Replies

Strange Nose!

Hi Folks haven't posted for a while.... 2 years since my Crest diagnosis, and it has been a journey living with the ever changing symptoms.. However the...

Hi Folks haven't posted for a while.... 2 years since my Crest diagnosis, and i...

catkar

•5 years ago

17 Replies

Why

I have scleroderma and am I am getting blisters on my feet and gaining weight is this normal

I have scleroderma and am I am getting blisters on my feet and gaining weight is...

destinycook03131980

•5 years ago

1 Reply

Stem cell treatment

I know I’ve asked before but looking for information on stem cell treatment ? Any clinics looking for recommendations please Any help would be much...

I know I’ve asked before but looking for information on stem cell treatment ? An...

Kc_1411

•5 years ago

5 Replies

Scheloderma/Thyroid

Hi i carry the autoimmune cell for scheloderma i get checked and asked questions once a year. I have had a mechanical heart valve for 3 yrs now, but i have...

Hi i carry the autoimmune cell for scheloderma i get checked and asked questions...

Pammy1966

•5 years ago

2 Replies

Nifedipine

Hi has anyone been given nifedipine 30mg for blood pressure and white finger

Hamishmac

•5 years ago

2 Replies

Bowel Problems

Hi everyone I have scleroderma and my bowels seem to have taken over. When I feel the urge to go i must go immediately otherwise there is an accident. I have...

Hi everyone I have scleroderma and my bowels seem to have taken over. When I f...

Pennypetra

•5 years ago

12 Replies

Eyes not able to focus

Does any one have problems not being able to focus their eyes I cannot get my eyes tested because last time my eyes were not working properly and they made my...

Does any one have problems not being able to focus their eyes I cannot get my ey...

160376

•5 years ago

6 Replies

Help

Hi, I've just been reading your posts and I also have similar symptoms. Also, some of you have referred to CREST which is a term I first heard on this site...

Hi, I've just been reading your posts and I also have similar symptoms. Also, so...

Kimi9

•5 years ago

23 Replies

Foot problem HElp!!!

Hi guys so I have a crazy issue I can not lay down on the bed to go to sleep my foot starts burning from the bottom with pain going up to my leg. I have had to...

Hi guys so I have a crazy issue I can not lay down on the bed to go to sleep my ...

Kc_1411

•5 years ago

6 Replies

Just Wondering.

I have Sys. Sclerosis which has caused internal damage to my lungs ...joints are also affected by it. So, I have most of the usual symptoms of swollen fingers...

I have Sys. Sclerosis which has caused internal damage to my lungs ...joints are...

jingsdog

•5 years ago

5 Replies

Bad stomach pain😖

Hello...been diagnosed with Systemic Scleroderma in 2017. Have been experiencing the most extreme and debilitating stomach pain. Am off to Dr end of week but...

Hello...been diagnosed with Systemic Scleroderma in 2017. Have been experiencing...

KfromOz

•5 years ago

4 Replies

Advice please

Diagnosed Raynaud’s waiting on results re scleroderma but symptoms going crazy over last few days! In particular hands swelling fingers and very stiff and...

Diagnosed Raynaud’s waiting on results re scleroderma but symptoms going crazy o...

Melarky

•5 years ago

21 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for July 2019

Constant strong taste of salt

Disability act

Painful legs when walking

Wierd finger bruise

Informal chilled out meeting 06.10.19

Steroid injections for tarsal tunnel

Radiotherapy to pelvic region with crest.

Really itchy ‘bites’ maybe

Frankincense and Colloidal Silver

Stem Cell Patches

Chemotherapy for scleroderma

ANA nucleolar pattern 1:320, ENA negative and dsDNA negative - scared about nucleolar pattern

Lack of understanding

Numb sausage fingers!

Informal chilled out meeting 28.07.19 (reminder)

Nifedipine/ Coracten

Pip/ esa

Muscle pain

Strange Nose!

Why

Stem cell treatment

Scheloderma/Thyroid

Nifedipine

Bowel Problems

Eyes not able to focus

Help

Foot problem HElp!!!

Just Wondering.

Bad stomach pain😖

Advice please

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