Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,301 members•5,734 posts

All posts for January 2021

Illness vs Vanity.....

As a new recruit to the Scleroderma world, I'm finding new questions I want to ask every single day. Today's question? - When illness and vanity clashes, how...

As a new recruit to the Scleroderma world, I'm finding new questions I want to a...

•4 years ago

Positive for anticentromere antibodies and Covid vaccination.

Hi I have recently tested positive for anticentromere antibodies but have no inflammatory markers in my bloods. GP is happy that I am not showing any symptoms...

Hi I have recently tested positive for anticentromere antibodies but have no inf...

•4 years ago

Has anyone here tried that antibiotic protocol ap minocycline treatment ?

Has anyone here tried that antibiotic protocol ap minocycline treatment ? Another forum has a few people who talk about it.

Has anyone here tried that antibiotic protocol ap minocycline treatment ? Anoth...

•4 years ago

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Tadalafil

Hi, has anyone tried Tadalafil for their raynaurds? I start mine later this week and have been reading the side effects. When is the best time to take them and...

Hi, has anyone tried Tadalafil for their raynaurds? I start mine later this week...

•4 years ago

Help with diagnosis

How do you fight to get tested for lupus or Fibro . Im determined to find out more ansswers im tired all the time in pain all sorts of places that come and go...

How do you fight to get tested for lupus or Fibro . Im determined to find out mo...

•4 years ago

Chilblains

Hi, hope everyone is well. Does anyone know how to get rid of really horrible chilblains that have turned in to blisters? I get them every year but not this...

Hi, hope everyone is well. Does anyone know how to get rid of really horrible ch...

•4 years ago

Any experience of Methotrexate please?

About to change med to Methotrexate. Anyone with systemic sclerosis give me any info on their experience with this. (Mycophenalate not been doing any good for...

About to change med to Methotrexate. Anyone with systemic sclerosis give me any ...

•4 years ago

Newbie to Scleroderma

Hello!! I'm a newbie and looking to make contact with people who have similar issues to my own! I'm constantly cold, I have a brown foot due to...

Hello!! I'm a newbie and looking to make contact with people who have similar is...

•4 years ago

Covid vaccination

Has any body with scleroderma had a vaccine and have you had any reaction so far.

Has any body with scleroderma had a vaccine and have you had any reaction so far...

•4 years ago

High lymphocytes blood test

Please does anyone have a lymphocyte blood result that is always higher than the normal range, any comment, advice or how to get it down. Is there any...

Please does anyone have a lymphocyte blood result that is always higher than the...

•4 years ago

Vaccine, ILD & immune suppressants

Hi, anyone any info on if ILD pushing us up the queue for vaccine? I’ve just read article we are 60% more likely to die from covid but yet still way down list...

Hi, anyone any info on if ILD pushing us up the queue for vaccine? I’ve just rea...

•4 years ago

Which London hospitals are providing Iloprost infusions at the moment?

Hi everyone Does anyone know any hospital (even private) in the London / SE area currently providing Iloprost infusions? I’d be very grateful for any info...

Hi everyone Does anyone know any hospital (even private) in the London / SE are...

•4 years ago

Does this look like Scleroderma ?

I was diagnosed with Raynauds & Erythromelalgia 2019 & also have MS, December my fingers swelled up like sausages really dry, sore, tight & some red dots under...

I was diagnosed with Raynauds & Erythromelalgia 2019 & also have MS, December my...

•4 years ago

Want to help my elderly mum

My mum is 78 and was diagnosed with Raynaud's many years ago. Up until 5 years ago she only suffered with cold hands and was very healthy. However, for the...

My mum is 78 and was diagnosed with Raynaud's many years ago. Up until 5 years a...

•4 years ago

Hi can anyone help?

I was diagnosed with Raynauds & Erythromelalgia 2019 & also have MS, December my fingers swelled up like sausages really sore tight & some red dots under skin,...

I was diagnosed with Raynauds & Erythromelalgia 2019 & also have MS, December my...

•4 years ago

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COVID VACCINE

Does anyone know if we can have any of the available vaccines? I heard a scientist on the news saying one of them was a live vaccine which I cannot have...

Does anyone know if we can have any of the available vaccines? I heard a scienti...

•4 years ago

Mycophenalate affecting blood results

Hello everyone! Has anyone been affected by 'yo-yoing' of blood cells on Mycophenalate? One week WBC and neutrphylls OK and then next week... they're not. Have...

Hello everyone! Has anyone been affected by 'yo-yoing' of blood cells on Mycophe...

•4 years ago

hand problems relating to the spine

Fingers are in edinburgh position. Can't have a flat palm

Fingers are in edinburgh position. Can't have a flat palm

•4 years ago

Stent - scleroderma

Hi has anyone had a stent inserted for the purposes of nerve damage??? Any advice would be great Thank u

Hi has anyone had a stent inserted for the purposes of nerve damage??? Any advi...

•4 years ago

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Is it worth getting a diagnosis?

I believe I've had Raynauds all my life (in 46 now) . From chillblains as a child to my grandma affectionately calling me 'old cold nose'. My middle 3 toes go...

I believe I've had Raynauds all my life (in 46 now) . From chillblains as a chil...

•4 years ago