Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,113 members•5,638 posts

All posts for October 2017

How do you combat post nasal drip?

One of our community said - "I have Scleroderma and Raynaud's and now the winter is coming I get constant post nasal drip especially at night - I've heard it...

One of our community said - "I have Scleroderma and Raynaud's and now the winter...

SRUKadmin

Partner•7 years ago

6 Replies

My Gastric Electrical Trial surgery for Gastroparesis a First for any Scleroderma Patient

I am a Scleroderma patient here in Sunny Perth Western Australia. I have severe gastroparesis and been suffering for many years.I am recently trialling the...

I am a Scleroderma patient here in Sunny Perth Western Australia. I have severe ...

mkugler

•7 years ago

8 Replies

Meds to slow down scleroderma

Which medicine or treatment works best for u to slow down the effects of scleroderma?

Which medicine or treatment works best for u to slow down the effects of sclerod...

Kc_1411

•7 years ago

9 Replies

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How do you manage your Digital Ulcers with Scleroderma or Raynaud's?

How do you manage your Digital Ulcers (sores on your fingers and toes)? Our SRUK specialist, Prof. Denton says "Ulcers over the tip of the fingers are...

How do you manage your Digital Ulcers (sores on your fingers and toes)? Our SRUK...

sclerodermauk

•7 years ago

7 Replies

Iloprost intravenous infusion

I am struggling with secondary Reynaud's (undifferentiated connective tissue disease) and my fingers/hands are swelling so badly during flares and are causing...

I am struggling with secondary Reynaud's (undifferentiated connective tissue dis...

paula-moo

•7 years ago

18 Replies

Has anyone in the group have this Diagnosis

Hello I'm new to the group. I don't know for sure if this is the right one. I had a CT scan of my lungs due to asthma attacks. Seems I'm getting sick every...

Hello I'm new to the group. I don't know for sure if this is the right one. I ha...

Roxy-2018

•7 years ago

1 Reply

Crest Raynaud's

Hi i'm Pete 55 years old and have been diagnosed with CREST and RAYNAUDS It's all new to me . Don't know what to expect . Doctors tell me . To check the...

Hi i'm Pete 55 years old and have been diagnosed with CREST and RAYNAUDS It's ...

Psg83

•7 years ago

21 Replies

Issues with teeth

Hey all so my husband has scleroderma for 15yrs. His teeth are in a bad way bleeding gums severe deterioration. Also his mouth has shrunk so can't open it wide...

Hey all so my husband has scleroderma for 15yrs. His teeth are in a bad way blee...

Kc_1411

•7 years ago

15 Replies

Sweating

Hi I’m James! I have raynauds and am tired of excess sweating, I am a teacher and am always on the run (yes we do work before and after school 😁) but I...

Hi I’m James! I have raynauds and am tired of excess sweating, I am a teacher ...

james87

•7 years ago

6 Replies

Sicca/ sjogrens too

Hi Anyone out there with diffuse plus sjogrens? It adds to the dryness and means swallowing is hard. It would be good to chat if so! .

Hi Anyone out there with diffuse plus sjogrens? It adds to the dryness and mean...

LilaJoe

•7 years ago

6 Replies

Little cuts on fingers and feet too..?

I do not understand why I keep getting these cuts on my fingers and feet also. They are like small like paper cuts and they are very, very painful!! And they...

I do not understand why I keep getting these cuts on my fingers and feet also. T...

Kenike1969

•7 years ago

3 Replies

Working with children

Hi I have limited systemic sclerosis (and some other overlap conditions). I’m taking methotrexate weekly along with the other usual drugs form digestion and...

Hi I have limited systemic sclerosis (and some other overlap conditions). I’m ...

Sami13

•7 years ago

14 Replies

Acupuncture

Hi There, Has any 1 tried Acupuncture for tightness on hands? And making it easier to bend down and pick up stuff. Remember the days of squatting :( Thanks...

Hi There, Has any 1 tried Acupuncture for tightness on hands? And making it easi...

naila_007

•7 years ago

5 Replies

Finally diagnosed with RA and Inflammatory Fasciitis instead of possible Scleroderma

After lots of tests and a visit to the Royal Free at London to check whether I had some form of scleroderma I now have a diagnosis of Inflammatory Fasciitis...

After lots of tests and a visit to the Royal Free at London to check whether I h...

TeriLynn26

•7 years ago

1 Reply

Pip

Hey all I am waiting results for pip claim, has anyone else claimed?? I what were you awarded???

Hey all I am waiting results for pip claim, has anyone else claimed?? I what wer...

Kc_1411

•7 years ago

31 Replies

Flu Jab

Hi All, Has anyone NOT had the flu jab? and got the flu while on immune suppressents? The thought of another needle just makes me blah :( I am on my...

Hi All, Has anyone NOT had the flu jab? and got the flu while on immune suppres...

naila_007

•7 years ago

10 Replies

Nutrisips anyone?

Hi, Has anyone been prescribed these by your GP? I am unable to taste or smell food at all and have very dry mouth and low saliva( sjogrens like symptoms)...

Hi, Has anyone been prescribed these by your GP? I am unable to taste or smell f...

LilaJoe

•7 years ago

11 Replies

Lots of needles!!

Hi everyone, I have not been on this site for ages. Well I had my flu jab 2 weeks ago, the site remained very hot and hard for a week, a steroid injection last...

Hi everyone, I have not been on this site for ages. Well I had my flu jab 2 week...

fairy56

•7 years ago

5 Replies

My knees are on fire!!

Hi all This is a pic of my knees that is causing me great pain again,they just burn and my legs feel like lead weights Does anyone get the same thing, or...

Hi all This is a pic of my knees that is causing me great pain again,they just ...

Daisy78

•7 years ago

1 Reply

Gynecology and scleroderma

Hey guys, I've just found you! I was wondering if anyone can offer any advice/suggestions about the gyny troubles I have been having please? I have no idea if...

Hey guys, I've just found you! I was wondering if anyone can offer any advice/s...

Rainbowfingers87

•7 years ago

1 Reply

Flu jab if having a flare up ?

Hi guys , does anyone know if I should have my flu jab while having a bad flare up . I've had it the last 5 years with no problems but i was stable on...

Hi guys , does anyone know if I should have my flu jab while having a bad flare ...

Suzyannayoung

•7 years ago

3 Replies

LDN

Any one have luck with low dose naltrexone? What improvements have you seen? I've been on it about 4 months, I feel better but still have a lot of symptoms and...

Any one have luck with low dose naltrexone? What improvements have you seen? I'v...

Littleleni

•7 years ago

3 Replies

Lungs

Hi is there anyone out there whose Scleroderma started in their lungs, with nowhere else affected and no other asdociated illnesses. I know in one way I'm...

Hi is there anyone out there whose Scleroderma started in their lungs, with nowh...

Hidden

•7 years ago

6 Replies

Small white stains on my feet

I noticed that another white stain has appeared on my foot apart from having a swollen muscle near my ankle. Could this be linked to scleroderma? Is there...

I noticed that another white stain has appeared on my foot apart from having a s...

Rudiguer

•7 years ago

1 Reply

Not good with stress now

Well folks 2 weeks ago I had a little trip to A&E with chest pain. After ECG, Chest Xray, swabs from nose and mouth and 2 lots of bloods 4 hours apart nothing...

Well folks 2 weeks ago I had a little trip to A&E with chest pain. After ECG, Ch...

nanagill

•7 years ago

1 Reply

OH NO..MY FINGERS AND TOES ARE NUMB AGAIN!

For the past several years I have been experiencing and have been diagnosed various conditions including Raynaud's syndrome, rheumatoid arthritis, fibromyalgia...

For the past several years I have been experiencing and have been diagnosed vari...

AtlantaJana

•7 years ago

9 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for October 2017

How do you combat post nasal drip?

My Gastric Electrical Trial surgery for Gastroparesis a First for any Scleroderma Patient

Meds to slow down scleroderma

How do you manage your Digital Ulcers with Scleroderma or Raynaud's?

Iloprost intravenous infusion

Has anyone in the group have this Diagnosis

Crest Raynaud's

Issues with teeth

Sweating

Sicca/ sjogrens too

Little cuts on fingers and feet too..?

Working with children

Acupuncture

Finally diagnosed with RA and Inflammatory Fasciitis instead of possible Scleroderma

Pip

Flu Jab

Nutrisips anyone?

Lots of needles!!

My knees are on fire!!

Gynecology and scleroderma

Flu jab if having a flare up ?

LDN

Lungs

Small white stains on my feet

Not good with stress now

OH NO..MY FINGERS AND TOES ARE NUMB AGAIN!

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