Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,408 posts

All posts for December 2018

Happy new year

Hope everyone had a lovely Christmas and wish everyone a very happy new year, hope you all stay well and warm. Here's to 2019 xxx

Hope everyone had a lovely Christmas and wish everyone a very happy new year, ho...

marie5454

•5 years ago

1 Reply

New Year!

Hello everybody, I hope you are all as well as you can be, and you enjoyed Christmas. Well it"s that time of the year again, where we can say with courage that...

Hello everybody, I hope you are all as well as you can be, and you enjoyed Chris...

fairy56

•5 years ago

4 Replies

Please sign our petition for better access to specialist care for patients with rare AI diseases in Wales

I hope it is OK to post this here. I run the Pembrokeshire Lupus Support Group in conjunction with LUPUS UK. Please sign and share our petition with family and...

I hope it is OK to post this here. I run the Pembrokeshire Lupus Support Group i...

Wendy39

•5 years ago

2 Replies

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CBD oil

Hello, has anyone tried CBD oil & noticed any positive or negatives? Hoping for a little pain & anxiety relief.

Hello, has anyone tried CBD oil & noticed any positive or negatives? Hoping for ...

lennyplus4

•5 years ago

2 Replies

Bad?

How bad does the Raynaud's look today?

Clm1978

•5 years ago

Be the first to reply

Please sign our petition to help patients in Wales access expert medical care in England

I hope it’s OK to post this here. Please find details of my petition following. I have included patients with lupus, raynaud’s, sjogren’s, APS, schleroderma,...

I hope it’s OK to post this here. Please find details of my petition following. ...

Wendy39

•5 years ago

5 Replies

Solve the problems

Hi am 51 last Feb. 8 of finger got gangrene ! It started with blue fingers which I have had problems in the past with Raynaud's , Lupus,Lupus anticoagulant...

Hi am 51 last Feb. 8 of finger got gangrene ! It started with blue fingers wh...

Blue5151

•5 years ago

10 Replies

What will happen if I don’t Take Plaquenil for my systemic scleroderma?

I quit taking my medication because I hate the thought of taking anti-malaria pills. I felt so nauseous. And I’m scared of what it could do to my vision. Any...

I quit taking my medication because I hate the thought of taking anti-malaria pi...

Maryie

•5 years ago

9 Replies

Gastro motility issues?

Has anyone got motility issues? I’ve had bowel problems for years and years. It’s getting worse. I had an ultrasound for my gallbladder that accidentally found...

Has anyone got motility issues? I’ve had bowel problems for years and years. It’...

flowflow

•5 years ago

5 Replies

Fillers and Botox injections with Limited cutaneous systemic sclerosis?

Hi all As the question asks above, I’m considering some kind of fillers or Botox injections and wondered if anyone here has had it with Scleroderma diagnosis?...

Hi all As the question asks above, I’m considering some kind of fillers or Botox...

-missymoo

•5 years ago

4 Replies

Arthritis and chilies

I'm getting a bit fed up with being stiff and sore from head to foot. The nhs say lose weight, I'm underweight, exercise, i get out of breath very quickly. Or...

I'm getting a bit fed up with being stiff and sore from head to foot. The nhs sa...

Inamoment

•5 years ago

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CHRISTMAS

Hello everybody, I hope you are as well as you can be. Christmas is almost here, so I wanted to pass on my best wishes to you all. Hopefully, you are not...

Hello everybody, I hope you are as well as you can be. Christmas is almost here,...

fairy56

•5 years ago

15 Replies

manometry

Has anyone had this procedure? I've just been given an appointment but the description sounded so horrendous that I can't face it and have cancelled. I have...

Has anyone had this procedure? I've just been given an appointment but the descr...

volvox45

•5 years ago

13 Replies

Numbness below knee

Hi, I've been having a lot of pain in my right hip, had x-ray but only slight narrowing showing up. Also there's a patch of numbness below my knee, in fact...

Hi, I've been having a lot of pain in my right hip, had x-ray but only slight na...

marie5454

•5 years ago

4 Replies

Teeth problems

Been to dentist to do impressions for a tooth to go on my denture the dentist did half hurt me cause my mouths so painful it was hard to open my mouth dentist...

Been to dentist to do impressions for a tooth to go on my denture the dentist di...

Frances18

•5 years ago

6 Replies

Steam Cell treatment

Hi I have been offered the chance to have steam cell treatment at Sheffield hospital UK has anyone had it?

Hi I have been offered the chance to have steam cell treatment at Sheffield hosp...

sharon2751

•5 years ago

6 Replies

Pain fatigue uti

Hello everyone my best wishes to you all. Am feeling really low just fatigued all the time and swallowing worse tired of people telling me what lovely...

Hello everyone my best wishes to you all. Am feeling really low just fatigued al...

Selsey

•5 years ago

7 Replies

Itching body

My bottom is itching me. Every time I remove my pant that's when I began to feel it and after I scratched it, some things like misuses will come up and then...

My bottom is itching me. Every time I remove my pant that's when I began to feel...

Toppzydo

•5 years ago

2 Replies

Weakly positive ANAs - best rheumatologist?

All, just want to say thanks to everyone for their advice. My raynauds is getting worse and I’m getting weird spontaneous bruising on my fingers and face...

All, just want to say thanks to everyone for their advice. My raynauds is gettin...

Julesboz

•5 years ago

2 Replies

Ear Arthritis ...., I swear I feel like I'm going to die .....

How many of y'all ever Heard about Arthritis of the 3 little Bone's in your Ear's ??? I have been having trouble w/ ear pain ..., Repeatedly treatment's for...

How many of y'all ever Heard about Arthritis of the 3 little Bone's in your Ear'...

8whitetoes

•5 years ago

6 Replies

Reversing Osteoporosis

Hi at the age of 50 i found out i had osteopinia,i started doing weight training and yoga at the gym 4 times a week,when had dexa scan it had not gone any...

Hi at the age of 50 i found out i had osteopinia,i started doing weight training...

Hidden

•5 years ago

7 Replies

FOLLOW UP TO HELPING HAND

Hi everybody, hope you are all as well as you can be. So off to Sainsburys to do my weekly shop, lanyard in my shopping bag, as I have said before I really...

Hi everybody, hope you are all as well as you can be. So off to Sainsburys to do...

fairy56

•5 years ago

12 Replies

Hydroxychloroquine

Hi guys it’s been a while, hope u are all well and looking forward to Xmas! So... my husband has gone in for his yearly iloprost treatment he missed last...

Hi guys it’s been a while, hope u are all well and looking forward to Xmas! So...

Kc_1411

•5 years ago

17 Replies

Treatment for raynauds in a teenager

Hi all, I have primary raynauds and all 3 of my children have unfortunately inherited it. My 2 adult children aren’t too bad and manage things like I’ve always...

Hi all, I have primary raynauds and all 3 of my children have unfortunately inhe...

Julesboz

•5 years ago

3 Replies

Cyclophosphamide

Hi All Just been told that I have to have a course of cyclophosphamide one day a month for 6 months. Has anyone else had this and what effects did you have....

Hi All Just been told that I have to have a course of cyclophosphamide one day a...

Pennypetra

•5 years ago

10 Replies

Hot water bottle is my new best friend

So...I’ve found that permanently having my poorly hand on a hot water bottle really works, it comes everywhere with me, bed, sofa, mums house and now even...

So...I’ve found that permanently having my poorly hand on a hot water bottle rea...

Dousey85

•5 years ago

4 Replies

Any help in Florida?

Hey y'all, seems like being here feels like I'm doomed😢 I really want A stem cell transplant. How would I get it? How do I sign up? I Really wish I lived in...

Hey y'all, seems like being here feels like I'm doomed😢 I really want A stem ce...

Susanissufferingtoo

•5 years ago

11 Replies

Do I really have Raynauds?

Hi Last month I was diagnosed with Raynaulds by Dr Price. I have had this health problem for 15 years now which has been diagnosed incorrectly twice already...

Hi Last month I was diagnosed with Raynaulds by Dr Price. I have had this healt...

wrongdiagnosis

•5 years ago

Be the first to reply

Erythromelalgia getting worse

Hi, community. In response to Coco's post with the new TEA Guidelines, I said I had an appointment to see an NHS consultant in London. Professor Chris Denton...

Hi, community. In response to Coco's post with the new TEA Guidelines, I said ...

skylark15

•5 years ago

4 Replies

Chronic gvhd and treatments

Hi ,is anybody taking sirolimus for chronic gvhd. Been on few months now seems to be slowing it down. Second attempt on this been on a few treatments but had...

Hi ,is anybody taking sirolimus for chronic gvhd. Been on few months now seems t...

jontee

•5 years ago

2 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for December 2018

Happy new year

New Year!

Please sign our petition for better access to specialist care for patients with rare AI diseases in Wales

CBD oil

Bad?

Please sign our petition to help patients in Wales access expert medical care in England

Solve the problems

What will happen if I don’t Take Plaquenil for my systemic scleroderma?

Gastro motility issues?

Fillers and Botox injections with Limited cutaneous systemic sclerosis?

Arthritis and chilies

CHRISTMAS

manometry

Numbness below knee

Teeth problems

Steam Cell treatment

Pain fatigue uti

Itching body

Weakly positive ANAs - best rheumatologist?

Ear Arthritis ...., I swear I feel like I'm going to die .....

Reversing Osteoporosis

FOLLOW UP TO HELPING HAND

Hydroxychloroquine

Treatment for raynauds in a teenager

Cyclophosphamide

Hot water bottle is my new best friend

Any help in Florida?

Do I really have Raynauds?

Erythromelalgia getting worse

Chronic gvhd and treatments

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