Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,409 posts

All posts for February 2019

High ESR after using Oestrogel HRT?

Can anyone help I have lupus, Scleroderma & Antiphosphilipid syndrome and have recently been placed on Oestogel HRT and my ESR has shot over 100. Could the...

Can anyone help I have lupus, Scleroderma & Antiphosphilipid syndrome and have r...

PickledGinger

•5 years ago

3 Replies

Crest raynauds and all the symptoms of polymyositis

Hi I'm a 57 year old male with CREST Raynauds overlapping other interconnective tissue disease's I have recently having a lot of problems with stairs ....

Hi I'm a 57 year old male with CREST Raynauds overlapping other interconnective...

Psg83

•5 years ago

12 Replies

Bloodwork

Hi all. I'm due to attend the Rheumatology clinic tomorrow. What puzzles me is I have lots of symptoms but my A.N.A came back clear. Is this a common...

Hi all. I'm due to attend the Rheumatology clinic tomorrow. What puzzles me is I...

050762

•5 years ago

1 Reply

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Red mottled hands

I have not been diagnosed with Raynaud’s or anything but I didn’t know where else to post this. I have always had this phenomenon where my hands instantly go...

I have not been diagnosed with Raynaud’s or anything but I didn’t know where els...

SomeUsername

•5 years ago

24 Replies

Anyone had success with Tadalafil for treating severe Raynauds?

Hello all I have Systemic Sclerosis and Secondary Raynauds. Have tried (all separately) Nifedipine, Losartan 75mg, then Sildenfil, GTN patches, combined...

Hello all I have Systemic Sclerosis and Secondary Raynauds. Have tried (all sepa...

-missymoo

•5 years ago

7 Replies

Chronic Pain Relief

Have attended Rheumatology and RF scleroderma clinic. Have never had any treatment, diagnosed 2005 by Gastrologist complete hypomotility of oesophagus and...

Have attended Rheumatology and RF scleroderma clinic. Have never had any treatme...

murdina

•5 years ago

5 Replies

PUJ OBSTRUCTION

Hi, I was wondering if anyone else has this problem. Have Limited Scleroderma, Raynaud's, Sjorgrens and associated other bits and bobs. Scleroderma has...

Hi, I was wondering if anyone else has this problem. Have Limited Scleroderma, R...

Fuchia

•5 years ago

3 Replies

No more Fluoxetine!

I was on these for nearly 15 years ! Two a day. Prescribed for depression and they are very good for Raynauds. Well I wasn’t happy, I didn’t have much of a...

I was on these for nearly 15 years ! Two a day. Prescribed for depression and th...

NikkiDoggett

•5 years ago

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Early treatment

Hi there, I haven't yet been diagnosed with scleroderma, but at this point with the symptoms I'm fairly confident that it's going to be. My first...

Hi there, I haven't yet been diagnosed with scleroderma, but at this point with ...

Cullimorer

•5 years ago

7 Replies

Bacterial overgrowth in gut/intestines question

Hello all (Quick background) Diagnosed Limited Cutaneous Systemic Sclerosis and Secondary Raynauds. Saw my rheumatologist today and spoke about my worsening GI...

Hello all (Quick background) Diagnosed Limited Cutaneous Systemic Sclerosis and ...

-missymoo

•5 years ago

12 Replies

CBD OIL Primary Raynaud's

Has anyone tried CBD oil for Primary Raynaud's? I'm thinking about trying it for the pain and discomfort.

Has anyone tried CBD oil for Primary Raynaud's? I'm thinking about trying it fo...

BertieB_280616

•5 years ago

2 Replies

Hi I'm new, have Reynauds and am. Exhausted

I've suffered from Reynauds symptoms for as long as I can remember. I'm 40 and have finally found a gp willing to listen who has prescribed nifedipine. Just...

I've suffered from Reynauds symptoms for as long as I can remember. I'm 40 and h...

Bashfulwhite

•5 years ago

5 Replies

Fatigue and feeling. Cold

Hi everyone Ihave been quite unwell lately Dr says he cannot do anything for me it's the scleroderma so weary keep sleeping and cannot get warm even with...

Hi everyone Ihave been quite unwell lately Dr says he cannot do anything for me ...

Selsey

•5 years ago

5 Replies

Anyone ever have heart valve issues because of scleroderma?

I learned today that I have a moderately leaky heart valve. Which one, I don't know yet, just 'not severe enough I'll look into booking you into hospital...

I learned today that I have a moderately leaky heart valve. Which one, I don't ...

bengali

•5 years ago

7 Replies

Update after sympathectomy

Hi guys not posted in a while as been waiting to see how my recovery after the sympathectomy went......and I am so happy to say since my op on 3rd January my...

Hi guys not posted in a while as been waiting to see how my recovery after the s...

Dousey85

•5 years ago

5 Replies

Birmingham meeting in March 2019 and Facebook page

Hi Folks, just a gentle reminder that we have our next meeting in Birmingham is booked for March 7th at 1.00pm in the John Lewis restaurant. You're more than...

Hi Folks, just a gentle reminder that we have our next meeting in Birmingham is ...

avtargill31

•5 years ago

2 Replies

Worried

So I .burping g all the time. My forearms are.killimg me amd my hands and fingers are swollen. They still haven't told me anything but they think I have...

So I .burping g all the time. My forearms are.killimg me amd my hands and finger...

Painter111

•5 years ago

1 Reply

Worried

I have been diagnosed with sclerdoma. My forearms are killing me . They feel really tight. They hurt when I squeeze my hands and use them. Has anyone else...

I have been diagnosed with sclerdoma. My forearms are killing me . They feel rea...

Painter111

•5 years ago

4 Replies

Removed rapeseed oil from diet and raynauds has gone

Hi there, I just wanted to let people know that after completely removing rapeseed oil from my diet my Raynauds symptoms have completely disappeared....

Hi there, I just wanted to let people know that after completely removing rapes...

Kieran_a

•5 years ago

12 Replies

First Post: MCTD and Raynaud's

Hi, new here and am enjoying reading others' posts! Got a very recent diagnosis of MCTD with lupus-like features and secondary Raynaud's. I have a pretty mild...

Hi, new here and am enjoying reading others' posts! Got a very recent diagnosis...

JodieBelll

•5 years ago

1 Reply

Sudden skin rash and splitting fingers

What is this? I do not believe it is eczema!!!! I was 100% healthy and fine until a miscarriage that lead to a procedure called a "DNC" where I was put under....

What is this? I do not believe it is eczema!!!! I was 100% healthy and fine unti...

Jasmine84

•5 years ago

14 Replies

Painful and swollen hands

Hi I have raynauds, hands feet and lips, it’s been quite bad recently but today my hands haven’t really been cold but they’re red, swollen and splitting and...

Hi I have raynauds, hands feet and lips, it’s been quite bad recently but today ...

SnookerNut

•5 years ago

3 Replies

Ganglion Cyst on worst effected hand/wrist. Scleroderma association?

Hello I have what I think maybe a painful Ganglion Cyst on my most effected hand wrist. Is this common with Scleroderma? My GP thinks it could be related?!...

Hello I have what I think maybe a painful Ganglion Cyst on my most effected hand...

-missymoo

•5 years ago

1 Reply

Healing from Autoimmune: Epstein Barr Virus

Am recovering from systemic scleroderma using homeopathy and diet control (moving food sensitivities and triggers which only feed the fire of inflammation)....

Am recovering from systemic scleroderma using homeopathy and diet control (movin...

inform_75

•5 years ago

10 Replies

Reynaud's and Nursing

I had cramping with my first pregnancy. My Ob/Gyn told me to take bedrest for a few days with a heating pad on my stomach. She said it would increase blood...

I had cramping with my first pregnancy. My Ob/Gyn told me to take bedrest for a ...

JTimm

•5 years ago

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Help me please

Is itching scalp and body anything like pregnancy symptoms, I don’t understand anymore or is it because is a frozen transfer?

Is itching scalp and body anything like pregnancy symptoms, I don’t understand a...

Abibridget

•5 years ago

7 Replies

Cramping

Hi everyone am new here please I need help. 5dt from FET 5dpt today don’t have any other symptoms only cramping does this mean no hope?

Hi everyone am new here please I need help. 5dt from FET 5dpt today don’t have a...

Abibridget

•5 years ago

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Raynauds Pain control

I have primary Raynauds, with several attacks daily. My rheumatologist said he isnt sure if it is or not due to lack of success with treatments; amlodipine,...

I have primary Raynauds, with several attacks daily. My rheumatologist said he i...

BertieB_280616

•5 years ago

7 Replies

Raynauds/CREST frustrated

Woke up with aching joints etc,. Over dressed wound up sweating profusely while doing errands. Felt like a furnace with partly cold parts. Got home and went...

Woke up with aching joints etc,. Over dressed wound up sweating profusely while ...

Coldallover

•5 years ago

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low dose naltrexone for CREST with Raynaud's and IBD?

Hello. Does anyone else have IBD and CREST? Technically, my GI doctor said it looks like I have "mild Crohn's activity", although there's a slight chance the...

Hello. Does anyone else have IBD and CREST? Technically, my GI doctor said it ...

NewbieAP

•5 years ago

5 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for February 2019

High ESR after using Oestrogel HRT?

Crest raynauds and all the symptoms of polymyositis

Bloodwork

Red mottled hands

Anyone had success with Tadalafil for treating severe Raynauds?

Chronic Pain Relief

PUJ OBSTRUCTION

No more Fluoxetine!

Early treatment

Bacterial overgrowth in gut/intestines question

CBD OIL Primary Raynaud's

Hi I'm new, have Reynauds and am. Exhausted

Fatigue and feeling. Cold

Anyone ever have heart valve issues because of scleroderma?

Update after sympathectomy

Birmingham meeting in March 2019 and Facebook page

Worried

Worried

Removed rapeseed oil from diet and raynauds has gone

First Post: MCTD and Raynaud's

Sudden skin rash and splitting fingers

Painful and swollen hands

Ganglion Cyst on worst effected hand/wrist. Scleroderma association?

Healing from Autoimmune: Epstein Barr Virus

Reynaud's and Nursing

Help me please

Cramping

Raynauds Pain control

Raynauds/CREST frustrated

low dose naltrexone for CREST with Raynaud's and IBD?

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